These people are evil. Never stop saying so. Donβt be intimidated into shutting up.
08.10.2025 02:22 β π 9958 π 3525 π¬ 284 π 129@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
These people are evil. Never stop saying so. Donβt be intimidated into shutting up.
08.10.2025 02:22 β π 9958 π 3525 π¬ 284 π 129The brave men and women who serve in our national guards must not be used as political props. This is a moment where every American must speak up and help stop this madness.
06.10.2025 01:44 β π 5399 π 976 π¬ 117 π 32βI call on Governor Abbott to immediately withdraw any support for this decision and refuse to coordinate. There is no reason a President should send military troops into a sovereign state without their knowledge, consent, or cooperation.
06.10.2025 01:44 β π 6233 π 1179 π¬ 103 π 57We must now start calling this what it is: Trumpβs Invasion. It started with federal agents, it will soon include deploying federalized members of the Illinois National Guard against our wishes, and it will now involve sending in another stateβs military troops.
06.10.2025 01:44 β π 7618 π 2032 π¬ 127 π 92This evening, President Trump is ordering 400 members of the Texas National Guard for deployments to Illinois, Oregon, and other locations within the United States. No officials from the federal government called me directly to discuss or coordinate.
06.10.2025 01:44 β π 13509 π 4311 π¬ 707 π 401we simply do not have a union anymore if the president is using troops from one state to invade others entirely on the basis of political disagreements
06.10.2025 02:33 β π 3435 π 904 π¬ 27 π 26Hey #NEISvoid has anyone gotten a zero-gravity power recliner? Looking for feedback good/bad. Thx! #POTS #MEcfs
06.10.2025 02:56 β π 4 π 2 π¬ 0 π 0It's 2025, 6 years into a pandemic that has caused an epidemic of new cases of #MECFS.
There have never been so many advocacy orgs and quality resources available to inform on MECFS.
And still, media pieces that mention #MyalgicEncephalomyelitis are misinformed and incorrect.
#pwME
IKEA tariffs is trending but not the 100% tariff on brand name pharmaceuticals which will actually kill ppl.
America in a nutshell.
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
I'm seeing some people post this and not realize this is PART of the radicalization. Building an audience from reasonable sounding videos and converting them into the pipeline. Weiss is doing this now as I get The Free Press ads about things like "low tech parenting" and workout fads.
13.09.2025 22:05 β π 1874 π 645 π¬ 4 π 25it's absolutely critical to understand in this moment that people aren't largely reacting to who Charlie Kirk was as a person, but who they knew him as because of what tiny pieces of him got clipped out and stuck in their newsfeeds.
14.09.2025 01:58 β π 3072 π 693 π¬ 76 π 24RFK is secretary of Hazards and Human Suffering. His testimony today shows his staggering incompetency and his complete indifference to the truth β indifference that is costing lives.
He must be impeached before he harms more people. #ImpeachRFK
Please Add your name here:
act.standupforscience.net/forms/sign-o...
Save HHS #USAnotRFK Step 1 Demand RFK Jr's Resignation Step 2 Contact your Representatives Step 3 Share this message Protect America's Public Health
Unite w/ over 1000 current & former HHS employees (includes CDC) in the call for RFK Jrβs immediate removal as HHS Secretary. saveHHS.org
RFK Jrβs attacks on CDC affect health & safety of the nation. Public health is based on evidence & science not personal or political agendas.
#USAnotRFK #SaveHHS
Can't believe it's been 7 years since the first Symposium. That was a wonderful "worth it" day.
02.09.2025 20:28 β π 2 π 0 π¬ 1 π 0Useful to think about this administration as a set of reactionary regime changes. At CDC, from pro-science to pro-quackery. And, at the Pentagon, from pro-Union to pro-Confederacy.
29.08.2025 04:09 β π 145 π 45 π¬ 5 π 1Please consult with House members and begin the impeachment process! @alsobrooks.senate.gov
28.08.2025 15:28 β π 0 π 0 π¬ 0 π 0Leading doctors, scientists and medical experts are leaving the CDC because theyβre so disgusted with RFK Jrβs βleadershipβ and the direction the agency is headed in.
This is very bad news for public health all over the world.
What happens in the US wonβt stay in the US.
My Jtube broke and I have to go to the hospital and Iβm feeling stressed...
It is so hard seeing the real world and feeling it and then coming back to my room and closing all the doors...
Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...
#MECFS #LongCovid
gives off unicorn vibes
25.08.2025 22:48 β π 1 π 0 π¬ 0 π 0This! This is why my bf likes him so much πππ
25.08.2025 22:20 β π 1 π 0 π¬ 0 π 0@elfreth.house.gov @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov
@repkweisimfume.bsky.social Today is Severe ME (Myalgic Encephalomyelitis) Awareness and Remembrance Day. Please ensure the Senate language on ME/CFS makes it through the reconciliation process!
#UnitedForME
@raskin.house.gov @alsobrooks.senate.gov
@vanhollen.senate.gov @repjohnnyo.bsky.social
Today is Severe ME (Myalgic Encephalomyelitis) Awareness and Remembrance Day. Please ensure the Senate language on ME/CFS makes it through the reconciliation process! #SevereMEDay #UnitedForME
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end ππ
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
DECODE ME has published its results.
Massive congratulations to @cgatist.bsky.social and team in Edinburgh.
Letβs hope this is the start of a paradigm shift in how we view, research and treat this dreadful illness.
www.decodeme.org.uk/initial-dna-...
I lost my Mom to pancreatic cancer when I was 19. She was only 47.
My grandmother also died from it at 53.
When Mom was diagnosed, she sat me down and said she knew exactly what I was feeling because she felt the same way when her Mom was dying.
π§΅
Big swing in humidity?
06.08.2025 08:36 β π 1 π 0 π¬ 0 π 0Share your words.
In honor of #SevereMEAwareness Day (Aug 8), we're gathering short reflections for a special storytelling series.
Deadline: Aug 4
Email: outreach@batemanhornecenter.org
Help others understand life with Severe ME/CFS.
Video w/o music: bit.ly/4lVrS6l