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melinda_is_done

@melindaiscomplex.bsky.social

My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her

1,859 Followers  |  2,035 Following  |  103 Posts  |  Joined: 27.08.2023  |  2.3647

Latest posts by melindaiscomplex.bsky.social on Bluesky

These people are evil. Never stop saying so. Don’t be intimidated into shutting up.

08.10.2025 02:22 β€” πŸ‘ 9958    πŸ” 3525    πŸ’¬ 284    πŸ“Œ 129

The brave men and women who serve in our national guards must not be used as political props. This is a moment where every American must speak up and help stop this madness.

06.10.2025 01:44 β€” πŸ‘ 5399    πŸ” 976    πŸ’¬ 117    πŸ“Œ 32

​I call on Governor Abbott to immediately withdraw any support for this decision and refuse to coordinate. There is no reason a President should send military troops into a sovereign state without their knowledge, consent, or cooperation.

06.10.2025 01:44 β€” πŸ‘ 6233    πŸ” 1179    πŸ’¬ 103    πŸ“Œ 57

We must now start calling this what it is: Trump’s Invasion. It started with federal agents, it will soon include deploying federalized members of the Illinois National Guard against our wishes, and it will now involve sending in another state’s military troops.

06.10.2025 01:44 β€” πŸ‘ 7618    πŸ” 2032    πŸ’¬ 127    πŸ“Œ 92

This evening, President Trump is ordering 400 members of the Texas National Guard for deployments to Illinois, Oregon, and other locations within the United States. No officials from the federal government called me directly to discuss or coordinate.

06.10.2025 01:44 β€” πŸ‘ 13509    πŸ” 4311    πŸ’¬ 707    πŸ“Œ 401

we simply do not have a union anymore if the president is using troops from one state to invade others entirely on the basis of political disagreements

06.10.2025 02:33 β€” πŸ‘ 3435    πŸ” 904    πŸ’¬ 27    πŸ“Œ 26

Hey #NEISvoid has anyone gotten a zero-gravity power recliner? Looking for feedback good/bad. Thx! #POTS #MEcfs

06.10.2025 02:56 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

It's 2025, 6 years into a pandemic that has caused an epidemic of new cases of #MECFS.

There have never been so many advocacy orgs and quality resources available to inform on MECFS.

And still, media pieces that mention #MyalgicEncephalomyelitis are misinformed and incorrect.

#pwME

29.09.2025 02:00 β€” πŸ‘ 40    πŸ” 17    πŸ’¬ 1    πŸ“Œ 1

IKEA tariffs is trending but not the 100% tariff on brand name pharmaceuticals which will actually kill ppl.

America in a nutshell.

26.09.2025 10:43 β€” πŸ‘ 47    πŸ” 10    πŸ’¬ 1    πŸ“Œ 0
News in Brief - September 2025 This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

14.09.2025 21:12 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0

I'm seeing some people post this and not realize this is PART of the radicalization. Building an audience from reasonable sounding videos and converting them into the pipeline. Weiss is doing this now as I get The Free Press ads about things like "low tech parenting" and workout fads.

13.09.2025 22:05 β€” πŸ‘ 1874    πŸ” 645    πŸ’¬ 4    πŸ“Œ 25

it's absolutely critical to understand in this moment that people aren't largely reacting to who Charlie Kirk was as a person, but who they knew him as because of what tiny pieces of him got clipped out and stuck in their newsfeeds.

14.09.2025 01:58 β€” πŸ‘ 3072    πŸ” 693    πŸ’¬ 76    πŸ“Œ 24

RFK is secretary of Hazards and Human Suffering. His testimony today shows his staggering incompetency and his complete indifference to the truth β€” indifference that is costing lives.

He must be impeached before he harms more people. #ImpeachRFK

04.09.2025 17:09 β€” πŸ‘ 758    πŸ” 254    πŸ’¬ 19    πŸ“Œ 11

Please Add your name here:
act.standupforscience.net/forms/sign-o...

04.09.2025 18:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Save HHS 
#USAnotRFK
Step 1 Demand RFK Jr's Resignation
Step 2 Contact your Representatives
Step 3 Share this message
Protect America's Public Health

Save HHS #USAnotRFK Step 1 Demand RFK Jr's Resignation Step 2 Contact your Representatives Step 3 Share this message Protect America's Public Health

Unite w/ over 1000 current & former HHS employees (includes CDC) in the call for RFK Jr’s immediate removal as HHS Secretary. saveHHS.org

RFK Jr’s attacks on CDC affect health & safety of the nation. Public health is based on evidence & science not personal or political agendas.
#USAnotRFK #SaveHHS

03.09.2025 12:09 β€” πŸ‘ 341    πŸ” 164    πŸ’¬ 12    πŸ“Œ 204

Can't believe it's been 7 years since the first Symposium. That was a wonderful "worth it" day.

02.09.2025 20:28 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Useful to think about this administration as a set of reactionary regime changes. At CDC, from pro-science to pro-quackery. And, at the Pentagon, from pro-Union to pro-Confederacy.

29.08.2025 04:09 β€” πŸ‘ 145    πŸ” 45    πŸ’¬ 5    πŸ“Œ 1

Please consult with House members and begin the impeachment process! @alsobrooks.senate.gov

28.08.2025 15:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Leading doctors, scientists and medical experts are leaving the CDC because they’re so disgusted with RFK Jr’s β€œleadership” and the direction the agency is headed in.

This is very bad news for public health all over the world.

What happens in the US won’t stay in the US.

28.08.2025 02:16 β€” πŸ‘ 185    πŸ” 57    πŸ’¬ 7    πŸ“Œ 7
Preview
Remembering What Real Life Is Like My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all th...

My Jtube broke and I have to go to the hospital and I’m feeling stressed...
It is so hard seeing the real world and feeling it and then coming back to my room and closing all the doors...

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

27.08.2025 15:29 β€” πŸ‘ 44    πŸ” 7    πŸ’¬ 1    πŸ“Œ 0

gives off unicorn vibes

25.08.2025 22:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This! This is why my bf likes him so much πŸ˜‚πŸ˜‚πŸ˜‚

25.08.2025 22:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@elfreth.house.gov @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov
@repkweisimfume.bsky.social Today is Severe ME (Myalgic Encephalomyelitis) Awareness and Remembrance Day. Please ensure the Senate language on ME/CFS makes it through the reconciliation process!
#UnitedForME

08.08.2025 17:55 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@raskin.house.gov @alsobrooks.senate.gov
@vanhollen.senate.gov @repjohnnyo.bsky.social
Today is Severe ME (Myalgic Encephalomyelitis) Awareness and Remembrance Day. Please ensure the Senate language on ME/CFS makes it through the reconciliation process! #SevereMEDay #UnitedForME

08.08.2025 17:54 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Video thumbnail

Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!

All participants IG handles tagged at the end πŸ’™πŸ’™

#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME

08.08.2025 10:15 β€” πŸ‘ 35    πŸ” 26    πŸ’¬ 3    πŸ“Œ 4
Preview
Initial DecodeME DNA Results - DecodeME 06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysisΒ  Your genes ...

DECODE ME has published its results.

Massive congratulations to @cgatist.bsky.social and team in Edinburgh.

Let’s hope this is the start of a paradigm shift in how we view, research and treat this dreadful illness.

www.decodeme.org.uk/initial-dna-...

06.08.2025 18:50 β€” πŸ‘ 97    πŸ” 26    πŸ’¬ 2    πŸ“Œ 1

I lost my Mom to pancreatic cancer when I was 19. She was only 47.

My grandmother also died from it at 53.

When Mom was diagnosed, she sat me down and said she knew exactly what I was feeling because she felt the same way when her Mom was dying.

🧡

06.08.2025 08:45 β€” πŸ‘ 472    πŸ” 93    πŸ’¬ 22    πŸ“Œ 12

Big swing in humidity?

06.08.2025 08:36 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Share your words.

In honor of #SevereMEAwareness Day (Aug 8), we're gathering short reflections for a special storytelling series.

Deadline: Aug 4
Email: outreach@batemanhornecenter.org

Help others understand life with Severe ME/CFS.

Video w/o music: bit.ly/4lVrS6l

31.07.2025 16:33 β€” πŸ‘ 11    πŸ” 8    πŸ’¬ 3    πŸ“Œ 0

@melindaiscomplex is following 20 prominent accounts