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Alan Finglas

@alanfinglas.bsky.social

Founder/Research Manager of MSD Action Foundation, my son is affected by Multiple Sulfatase Deficiency, a clinically devastating Lysosomal Storage Disorder.

14 Followers  |  28 Following  |  2 Posts  |  Joined: 17.03.2025  |  1.4139

Latest posts by alanfinglas.bsky.social on Bluesky

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It's been a long road since MSD found my family in late 2014. | Alan Finglas It's been a long road since MSD found my family in late 2014. I would be grateful if you could acknowledge this day, MSD World Day 2025 for all the families, like mine, that have (& had) no option but...

www.linkedin.com/posts/alanfi...

30.07.2025 23:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Death Notice of Dylan Finglas (Dublin 15, Dublin) | rip.ie The death has occurred of Dylan Finglas of Dublin 15, Dublin Ireland, on 20/03/2025. You can view the full death notice and add your condolences here.

I am so sad to be sharing this news πŸ’” Our sunshine has passed rip.ie/death-notice...

23.03.2025 09:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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