The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
Disrupter. Director of Digital at a media company. Married to @RogueNerdOne Corgi mom. BBQ enthusiast. Books, music, art. Punk. Born in #YVR. Lives in #YEG 🇨🇦
Reporter at STAT. The Harry Kane of biotech. Dog ❤️er. Polk Award winner. Said one analyst: The likes of Adam Feuerstein attack viciously.
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org.
Designed & built a custom AAC eye gaze computer.
BCI candidate to drive my exoskeleton. Python & CoPilot noob.
Interested in EAPs. #MedSky
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
onein300.com
ALS = Lou Gehrig's Disease Thought it had been cured by now?
Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous.
https://x.com/alsadvocacy
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
