@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
Join on zoom! Today at 4PM ET. temple.zoom.us/j/99060976097
12.02.2026 16:37 β π 0 π 0 π¬ 1 π 0My tracing is lousy, but these panels are shifted and slightly rotated.
14.12.2025 02:03 β π 8 π 0 π¬ 1 π 0I'm so excited to see this Perspective with @jasonsynaptic.bsky.social out in Neuron! About 8% of our genome is made up of the remnants of LTR-containing retroelements - here, Jason and I explore the activities of retroTEs in neurological health and disease!
authors.elsevier.com/c/1lzTx3BtfH...
Great meeting. Lots of work to do.
#BetterTogether #EndALS #NEALS2025 #NEALSMtg
While it wouldn't seem surprising if this is happening, the recent Nikkei "investigation" article about it (below) is un-sourced and filled with anonymous quotes. I tried searching myself and only found those same couple papers on arxiv, none on medrxiv or biorxiv. asia.nikkei.com/Business/Tec...
07.07.2025 10:45 β π 1 π 0 π¬ 1 π 0Listener effort measures clinically meaningful change of dysarthria in amyotrophic lateral sclerosis url:https://academic.oup.com/braincomms/article/doi/10.1093/braincomms/fcaf232/8161195 #BetterTogether #EndALS
19.06.2025 18:04 β π 1 π 0 π¬ 0 π 0we're crowd-sourcing a searchable repository of tangible benefits stemming from federally-funded research. Come enjoy the great stories; or send in an idea; or volunteer to join the team.
publicusaresearchbenefits.com
please share and re-share so we get more great stories in there!
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als
#ALSRegistry
#ALSBiorepository
#ALS
Nonprofit agencies that assist ALS patients and support research sent a letter to the bipartisan ALS Congressional Caucus after a leaked proposed budget memo from the Health and Human Services Department called for defunding the registry and a biorepository with thousands of lab specimens.
25.04.2025 21:05 β π 14 π 8 π¬ 0 π 0bsky.app/profile/mwya...
04.04.2025 00:24 β π 1 π 0 π¬ 0 π 0We own several games from www.neurdgames.com and love them all. I just ordered 2 copies of this new one and can't wait to play!
01.04.2025 01:36 β π 4 π 0 π¬ 1 π 0I just checked the wayback machine. It looks like that goofy icon of a flag with the wrong number of white "stars" and stripes has actually been used on these websites for many years. Still seems wrong though.
15.03.2025 00:38 β π 0 π 0 π¬ 1 π 0Changes to MSc, PhD and postdoc funding programs from π¨π¦ tri councils. Harmonization across councils, more awards, and new eligibility for international PhD and postdoc applicants!
14.03.2025 23:06 β π 162 π 53 π¬ 2 π 3URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch
13.03.2025 16:58 β π 4 π 1 π¬ 0 π 0We are very concerned about the proposed budget cuts at the NIH and the DOD that could impact ALS research. Our Board of Trustees and staff are taking to Capitol Hill on Wednesday to urge Congress to continue to fund ALS research.
10.03.2025 23:51 β π 19 π 4 π¬ 2 π 1A vote for this legislation is a vote to cut federally funded cancer research. Please take action today to ask Congress to vote no on the CR and instead approve a full-year FY25 Defense Appropriations Act that fully funds the OCRP and CDMRP.
www.votervoice.net/Shares/B0Y6T...
WOW. This is absolutely remarkable work!
10.03.2025 22:27 β π 4 π 0 π¬ 1 π 0Thank you for the quick response! He comes home next Friday for Spring Break and will be in touch and send you his CV then.
08.03.2025 22:17 β π 0 π 0 π¬ 0 π 0Do you have Summer internships for university students? Our son is an Environmental Geoscience major, in his 3rd year at College of Wooster.
08.03.2025 22:00 β π 0 π 0 π¬ 1 π 0Here is a screengrab from Research!America with some of the same info. www.researchamerica.org/marys-letter...
07.03.2025 23:19 β π 1 π 0 π¬ 1 π 0Entire CDMRP FY25 budget may be in jeopardy. Please see below and spread the word. bsky.app/profile/alsa...
07.03.2025 23:17 β π 4 π 1 π¬ 1 π 0www.facebook.com/share/p/16De...
07.03.2025 20:39 β π 3 π 1 π¬ 0 π 0reporter.nih.gov too. Off and on past several hours.
01.03.2025 23:23 β π 0 π 0 π¬ 1 π 0Please read this if you want to understand more about how indirect rates are set, and why indirect costs are critical to research. Then, sign the petition linked in the article. #ScienceMatters #BetterTogether
28.02.2025 22:05 β π 5 π 3 π¬ 0 π 0Each year ALS advocates ask Congress to support the federal funding of ALS research through appropriations requests. Help these advocates supercharge their requests in YOUR district by becoming a constituent! iamals.org/action/help-...
24.02.2025 14:38 β π 6 π 2 π¬ 0 π 0From Everything ALS:
π¬ Join us for a free webinar with Dr. Laura P.W. Ranum! π§
π
Date: February 19, 2025
β° Time: 7 PM EDT | 4 PM PDT
π Free Online Webinar
π’ Register now and be part of the conversation: everythingals.org/events
Dear federal scientists: If you have been affected by the probationary firings and would be willing to speak with Science, please reach out to me by email (klangin@aaas.org) or on Signal. We can guarantee annonymity.
14.02.2025 20:05 β π 2473 π 1300 π¬ 24 π 15