The PSP Association

US civil rights leader Jesse Jackson dies aged 84 - live updates Jackson, who marched with Martin Luther King Jr in the 1960s and later ran for president twice, died peacefully on Tuesday morning surrounded by his family.

We are sorry to hear of the passing of civil right leader, Jesse Jackson. He was diagnosed with Progressive Supranuclear Palsy (#PSP) last year. www.bbc.co.uk/news/live/c3...

🌟 BOOKING OPEN! 🌟 Don’t miss our FREE Masterclass: “Cognition & Mental Health in PSP & CBD” with Dr Susan O’Connell, Wed 25 March, 6:30pm. Learn about cognitive changes & mental health in PSP & CBD. Sign up: ow.ly/Pgw150YgWt3 #PSP #CBD #Cognition #Webinar #Neuropsychology #Zoom

Red background with white text that reads, "Have you been affected by Carer’s Allowance overpayments?" Below the text is the Carers UK logo.

Have you experienced a Carer's Allowance overpayment?

We're gathering insights from carers and advisers to build strong evidence for why the system needs to change and better meet carers' needs.

Share your experience https://carersuk.pulse.ly/oj025pjk7w

Discover strategies to support people with PSP & CBD. Specialist Physiotherapist Jade Donnelly covered clinical insights, mobility tips, and therapy approaches in our masterclass. Watch now: ow.ly/Sxqr50Y9c43 #PSP #CBD #webinar #healthcare

Health and social care professionals in Lincolnshire: Join our FREE PSP & CBD Awareness Event! 🧠

📅 Wed 25 Mar 2026, 1:30–4pm
📍 Petwood Hotel

Learn to spot signs, support those affected and connect with peers. Book: bit.ly/PSPALincs2026

#events #lincolnshire #healthcare

Are you a health or social care professional working with PSP or CBD? Our #free guides offer practical insights to help you provide the best care. Download and share with your colleagues to make a difference!
👉 ow.ly/WjWx50Y4W2a #PSP #CBD #Downloads #Guides

🌟 Health and social care professionals 🌟

Join our first in-person event of 2026 to learn about PSP & CBD, how to spot the signs, and ways to support your patients.

🗓️ Wed 25 March | 1:30–4:30pm Book FREE: ow.ly/wVWY50Y4KK7 #Healthcare #Events #MedicalProfessionals

Remember, the PSPA is here to #support you and your patients. Take a look at our helpful #poster that shows the different areas of support you can access for yourself and your patients. You can also find out more on our #Healthcare Professionals Hub: ow.ly/mZmX50Y09ix #resources

We are hosting a free event for healthcare professionals in #Lincoln on Wednesday 25 March, 1:15-4:30pm. The event will help you:

🔬Recognise early symptoms
🔬Understand disease progression
🔬Implement effective management strategies

Book your tickets here ow.ly/3Tzx50XZw #freeevent #healthcare

Rising costs and inconsistent funding have pushed hospices to breaking point. Without funding reform for hospices, vital end of life care could be cut, just as demand is rising.

[3/3]

It is reassuring to hear this in today's Public Accounts Committee on the financial sustainability of adult hospices in England.

Hospices care for 270,000 people every year in England. Yet on average, they receive just 40% of the cost of care from statutory funding.

[2/3]

"None of us believe that end of life care and the services to provide it is where we would like it to be... We are committed to making sure that reform happens in practise." - Samantha Jones, Permanent Secretary at the Department for Health and Social Care.

[1/3]

🔬Announcement: We’re proud to fund Dr Michele Hu (University of Oxford) through the Aileen and David Heath Memorial Grant as she develops a smartphone + AI tool to help distinguish PSP from Parkinson’s earlier in the disease course.
#PSP #MovementDisorders #NeuroResearch #Research

🔬Announcement: We’re proud to fund @ProfMicheleHu (University of Oxford) through the Aileen and David Heath Memorial Grant as she develops a smartphone + AI tool to help distinguish PSP from Parkinson’s earlier in the disease course.
#PSP #MovementDisorders #NeuroResearch

Calling all #HCPs and specialists in PSP & CBD! 🧠

Help families understand their care options by joining our monthly online Support Groups. Share your insight and make a direct impact.

Interested? Contact Carol at: carol.amirghiasvand@pspassociation.org.uk 📩

🔬 New research alert! This month, Dr. Filipa Henderson Sousa @BowlesLab begins a vital @PSPA-funded study into the breakdown of proteostasis in #PSP. By exploring how tau mutations disrupt protein balance in neurons vs. astrocytes, we're one step closer to targeted therapies🧬

Have you read the latest edition of PSPA Matters yet? It’s another packed edition filled with research updates and personal stories. You can check out and download the new edition here: ow.ly/fXMx50XMX4g #magazine #charitynews #news

Thanks to kind donations to our Understood Appeal, we've awarded four Small #Research Grants.

One grant recipient is confirmed as Dr Dianne Lopez who has received 12 months funding to study cells in the brain called astrocytes, which are affected by PSP.

www.pspassociation.org.uk/introducing-...

Our CEO James Cusack shared a thank you on behalf of everyone at PSPA. We appreciate all the support, fundraising, volunteering and more that you have all done this year. You can watch his message here: www.pspassociation.org.uk/news/thank-y... #yearinreview #ceomessage

💡We're hiring!💡

Opportunity for a Research Assistant to join @soyonhonglab.bsky.social (UK DRI at UCL).

The Hong Lab investigates glia-immune mechanisms of synapse loss in age-related neurodegenerative diseases, including Alzheimer’s and Parkinson’s.

🗓️ Deadline: 7 Jan 2026

👉 lnkd.in/eQiEeipU

Read the latest edition of PSPA Matters now! It features more on our Understood Research Appeal, how our support grants help the quality of life of those with the conditions, and a review of our Pathway to Progress event. Download it here ow.ly/fLUC50XJw9O #magazine #news

This week’s #MondayMotivation is our very own Hampshire Support Group who recently held their annual festive celebrations! With a raffle and loads of festive fun, together they raised over £350 for PSPA! A huge thank you to everyone involved 💜🧡 #Hampshire #ChristmasFun

The recordings from our final #Research Information Day of the year are now available to watch on our YouTube! We had some fantastic speakers sharing the latest on their research projects. Watch them here: Session 1: www.youtube.com/watch?v=lK6M...
Session 2: www.youtube.com/watch?v=pr8f... #Webinar

Our Christmas opening times are now live on our website. We understand the festive period can be a difficult time, but our Helpline is still here to support you throughout this time. ow.ly/L1nP50XG9qb #ChristmasOpeningTimes #Support #Helpline #Christmas

Our poster has been designed to support Health and Social Care professionals in delivering the best care to their patients. Take a look at this and even more resources available on our website here: ow.ly/ex8250XG9NS #healthcare #supportservices #healthprofessionals #resources

With the festive season fast approaching, we want to ensure everyone's aware of our adjusted opening hours and Helpline times. You can find the adjusted schedule here: ow.ly/83jt50XCP5x #ChristmasOpeningHours #FestiveSeason #Helpline #CharityUpdates #CommunitySupport

“Now the Bereaved Carers Support Group is helping me along as I process my loss and move forward without Prema.” Our Bauble Appeal funds vital support for carers who have lost a loved one to PSP or CBD. Dedicated a bauble here: ow.ly/3xAl50XAz4N #ChristmasAppeal #ChristmasGiving #Fundraising

The Nature Partner Journals Dementia are looking for essays from clinicians and researchers who have experience with all forms of Dementia. The essays will be collated together to create "The Human Connection". Learn more here: ow.ly/9yrK50XAyH1 #researchers #journal #essays #personalexperiences

We are delighted to be joined by our Trustees in the office today for our end-of-year meeting! The Trustees have lunch, catch-up with staff and meet with the senior management team to look back at 2025, discuss plans for 2026 and welcome our new CEO James. #Trustees #Charities #Meeting #Connection

🎄Christmas is fast approaching and we want to ensure you know you can still received support from our Helpline, with this adjusted scheduled. Find out more here: ow.ly/LlVr50XCKnN We wish you a peaceful festive season and look forward to supporting you in the New Year #Christmas #Helpline