The PSP Association

🎄Christmas is fast approaching and we want to ensure you know you can still received support from our Helpline, with this adjusted scheduled. Find out more here: ow.ly/LlVr50XCKnN We wish you a peaceful festive season and look forward to supporting you in the New Year #Christmas #Helpline

Thank you! Merci! Danke! Gracias!

What would we do without you? 🙌

It's #InternationalVolunteerDay, & we want to take the opportunity to say THANK YOU to every single volunteer who has helped us translate our resources into multiple languages.
If you'd be up for helping us translate our resources, email info@parkinsonseurope.org

Last week we said goodbye to our CEO Rebecca Packwood, who was with the charity for 4 years. Some of Rebecca's achievements include: driving forward the research strategy, meeting with MPs and took on fundraising challenges. Thank you for everything Rebecca, we will miss you!💜🧡 #CEO #CharityUpdate

The 2026 London Winter Walk is taking place over the weekend of January 24-25. It’s a great opportunity to walk off the festivities of the season whilst also raising money and awareness for PSPA. Find out more about the event and how to sign-up here: ow.ly/3V7X50XsXfa #LondonWinterWalk #Fundraising

Did you miss our Falls and Mobility Management masterclass for patients living with PSP & CBD? Well don’t worry because you can watch the full session back on our YouTube channel. Watch the session in full anytime and share with your colleagues here: ow.ly/VSs250XtntZ #webinars #masterclass

Have you checked out our redesigned, dedicated page for health and social care professionals? We redesigned the page to make it easier for you to access our downloadable guides, previous masterclasses and information. Check out and share our webpage here: ow.ly/7HT650XtmwX #healthcareprofessionals

🎄To help keep PSPA groups providing vital support and connection to people living with PSP & CBD, please dedicate a Christmas bauble and donate to PSPA. Find out more here: ow.ly/eJtc50XtkAg #ChristmasAppeal #BaubleAppeal #Fundraising #ChristmasGiving 🎄

For this #InternationalMensDay, sign-up to the next meeting of our Men’s Carers Support Group. This monthly online group allows men to connect with other men who are caring for a loved one living with PSP or CBD. Learn more about the next meeting here: ow.ly/vzij50XpQXt #MensMentalHealth

🎄There’s just over a month to go until Christmas! We have four new festive card designs and some beautiful hummingbird ornament gifts. Purchasing from our shop helps to keep providing vital support to people living with PSP & CBD: ow.ly/q1yk50XpSq6 #ChristmasShop #CharityShop #ChristmasGiving 🎄

This week's #MondayMotivation is our very own Rugby Support Group, led by Group Coordinator Jenny Knight. The group came together for their annual Bake Sale Fundraiser at Wren Hall. With so many delicious treats on offer, the group raised a fantastic £960. Thank you team! #Fundraising

Our Introduction to PSP & CBD guide is now available to download in multiple languages to give you a better understanding of the conditions. Visit our publications page and download our guide in your preferred language - ow.ly/RRbS50Xoj0z

#PSP #CBD #MultilingualSupport #CommunitySupport

Support people living with PSP & CBD, by dedicating a bauble to a loved one and donating to PSPA. Your donation will help ensure that nobody living with PSP or CBD, or their families feel alone, especially during the festive season. Read more here ow.ly/3W2750XohQu #ChristmasAppeal #CharityAppeal

Today, we pause to remember.
We honour the courage, sacrifice, and selflessness of those who served — and those who still serve — in the pursuit of peace and freedom. May we never forget their legacy.

#RemembranceDay #LestWeForget #WeRemember

Know your rights as a Carer, this Carers Rights Day 👇

#Carers #CarersRightsDay #Resources #Awareness

Laura from Neuro Heroes, spoke to us about the benefits of movements for people living with PSP & CBD, and what to expect from the online exercise classes that Laura and her team run. You can listen to this episode and more: ow.ly/Q0j850XeYmg #Podcast #ListenNow #Spotify #Movement #Support

Ferrer have announced they have completed recruitment of 220 patients for the PROSPER Study – a Phase 2 clinical trial in Progressive Supranuclear Palsy (PSP) – ahead of schedule. Read more about it here: ow.ly/yvKB50XgcMG #ProgressiveSupranuclearPalsy #ClinicalTrials #MedicalTrials #Research

We’re delighted to share our recently launched Introduction to PSP & CBD Guide in multiple languages. The guide is now available in Welsh, Urdu, Spanish and Bengali, making it more accessible. You can learn more and download the guides from our website: ow.ly/hp0t50XbA1m #guides #accessible

When caring for someone it's as important to take of yourself. One of the best ways to do this is to make sure you’re properly fuelled. Take a look at our handy worksheet that provides helpful tips for cooking whilst caring for a loved one. View and download it from our webpage: ow.ly/QMt750X8w7x

A big thank you to #TeamPSPA who recently ran the Royal Parks Half. Our incredible runners have raised over £2,500 with Gift Aid! To take part next year, sign up for the ballot reminder here www.royalparkshalf.com. A limited number of charity places will also be available #RoyalParksHalf

We are extremely grateful to The Medicash Foundation who have awarded £2,000 towards our Helpline - helping people living with PSP and CBD to live their best lives possible with emotional support, helpful information and more! #Donation #Corporate #Helpline #Support

PSPA Trustee Jon Garrard will be making a call for life-changing research by sharing his personal story of his dad, Chris, who was diagnosed with PSP and took part in research himself. Find out how to support the appeal on Sunday 19 October at 7.54am and 9.25pm. #Radio4Appeal #RadioAppeal

Last year we encouraged people living with PSP & CBD to take part in the Neuro Alliance My Neuro Survey and we have now shared the results in our latest edition of PSPA Matters. You can read the full article on pages 30-31 here issuu.com/pspacharity/... #research #results #survey

On #GiftAidAwarenessDay, we want to say a BIG THANK YOU to all our donors and fundraisers who #TickTheBox. You help us to help so many more! Every year, charities miss out on £560m in unclaimed Gift Aid tax relief. Help us claim more and do more. #GiftAid

We have so many helpful and enlightening articles in our latest edition of PSPA Matters. From a sneak peek at our BBC Radio 4 Appeal, to supporting the new generation of research, to personal experiences. There’s so much to read, so grab a cuppa, take a break and check it out: ow.ly/MZIt50X3Ikv

Listen to the @moversand6 podcast about Parkinsonism, that features our CEO Rebecca Packwood, and supporter Lisa Rodrigues who has CBD. The pair discussed the rare, neurological conditions PSP & CBD with the team and how PSPA can support. Listen here ow.ly/uCZl50X3uM5 #podcasts #listennow #spotify

Our Helpline Care Navigators, Cathy and Kaysha, are excited to be at the PDNSA (Parkinson’s Disease Nurse Specialist Association) Annual Conference at the @uni-of-warwick.bsky.social to connect with more healthcare professionals and share more about what PSPA does. Stop by and say hi 👋 #conference

Watch our 'It Could Be CBD' animation which is voiced by Professor Huw Morris and include the most common symptoms of Corticobasal Degeneration (CBD) and how to support patients who are diagnosed with it. Watch the full video on our website or YouTube: ow.ly/nN2N50X0h7h
#corticobasaldegeneration

Who’s Moving: Mermaids, Solace, Arts Emergency and more In this fortnightly column, Civil Society looks at people moving roles in the UK charity sector…

Who’s Moving: @solacewomensaid.bsky.social, @pspassociation.bsky.social, @ciofundraising.bsky.social, @charitydebra.bsky.social and more

New Frontier Economics report, commissioned by @amrc-uk.bsky.social & @wellcometrust.bsky.social, showcases the many benefits of non-commercial clinical research. It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives bit.ly/3KrW7nf

If you’re supporting carers who are looking after people living with PSP and CBD, please share our Carers Wellbeing Hub with them. This is an online hub of resources such as downloadable worksheets, podcasts and more. You can find the Wellbeing Hub here ow.ly/m4tX50WWHxc #carers #wellbeing