FRONTIER Research Group

@annavolkmer.bsky.social could you please repost the link? It doesn't appear to work from this (down under) side of the world.

Excellent elevator pitch, @sterredeboer.bsky.social!

Better Conversations training is going down under!

@jadecartwright.bsky.social @lissbee.bsky.social @aphasiacre.bsky.social

Any Australian speech pathologists interested in attending our training:

Sydney - Monday 10th Nov

Perth - Monday 17th November

Sign up here: ucl.ac.uk/brain-sciences…

FRONTIER's information day is on Wednesday 24th September. Scan the QR to learn more.

#endFTD

New (workable) link: onlinelibrary.wiley.com/doi/10.1111/...

Missing #AAIC25 or just too much to see? Take a look at the Dementia Researcher YouTube Channel where we have researchers taking the ‘Research in a Short’ Challenge presenting their work in 3 minutes or less

youtube.com/@dementiares...

@sterredeboer.bsky.social You get more brownie points if you can coordinate an all-in group photo :)

Amazing! Sooo good to see the band get back together!!

Calling young Aussies (18–40)! Researchers from UNSW, Curtin University, and the University of Surrey want to hear your thoughts on ageing—and your experiences if you're supporting someone with dementia. Your voice matters. Take the survey.

New paper! Johan and colleagues explore psychological wellbeing and burden in those caring for individuals living with #PPA.

dx.doi.org/10.1111/1460...

#endFTD

I love that the National Aphasia Association is putting out aphasia-friendly summaries of research! See a recent one from our lab here: aphasia.org/latest-resea...

We understand that care management can be tough. For July Care Management Monday, we are sharing tips on FTD & Sundowning.

📍Check out our website for more information on Support & Resources

As the 7th Pacific Rim Conference comes to a close, it's been a valuable few days of learning and collaborating. Well done to Jess, Fiona, Ramon, and Sophie for their excellent talks—and to all from our team who presented.

Another successful day at the 7th Pacific Rim Conference in Brisbane. Frontierers and vintage Frontierers assemble!

Fantastic first day at the 7th Pacific Rim Conference in Brisbane—insightful talks and great energy throughout. Wonderful to see FRONTIER so well represented, with excellent presentations from Sau Chi, Natacha, and David.

New paper by David Foxe and James Muggleton investigating the survival rates across the #FTD, #PPA, and #AD dementias.

www.tandfonline.com/eprint/HHXMM...

New paper published in #EurJNeurol by James Carrick and Sau Chi Cheung explores ACE-III performance distributions and clinically meaningful change.

onlinelibrary.wiley.com/doi/epdf/10....

The University of Canberra, together w/ @aihw.bsky.social, have launched the first Living with Dementia Survey! Visit our website at www.dementiasurvey.com.au for more information or sign up to www.stepupfordementiaresearch.org.au We need everyone’s help to spread the word!

This is very exciting!

Cure MAPT FTD is a global patient advocacy group fighting for a future without frontotemporal dementia caused by mutations in the MAPT gene. It brings together families, researchers, and others with a shared goal: pushing for treatments that can change the course of this disease.
www.curemaptftd.org

Two Drugs Selected for New PSP Platform Trial - FTD Disorders Registry The Association for Frontotemporal Degeneration (AFTD) has shared that two drugs have been selected for evaluation in a new platform trial aimed at accelerating the development of treatments for progr...

Two drugs have been selected for evaluation in a groundbreaking platform trial aimed at accelerating the development of treatments for progressive supranuclear palsy (PSP).

Cityscape

Brief but spectacular.
Sydney turned pink for just a few moments at dawn.

Well done, Grace, Fiona, and colleagues!

Post-diagnostic care pathways in dementia: Experiences and needs of family carers and considerations for interventions - Grace Wei, Skye McDonald, Michelle Kelly, Kirrie J Ballard, Fiona Kumfor, 2025 Objectives Social and behavioural symptoms, prevalent across dementia syndromes, contribute to increased carer challenges and stress. However, post-diagnostic s...

Delighted to share our new paper on post-diagnostic care in #dementia #FTD and the need for targeted interventions. Led by Grace Wei

doi.org/10.1177/1471...

Stay tuned for our study soon to launch on the Carers Way Ahead-Dementia

@frontier-usyd.bsky.social

Promotional graphic for Brain Awareness Week 2025, featuring an illustration of a brain divided into the frontal and temporal lobes with a caption that reads "What is FTD?" Explanation text states that Frontotemporal Degeneration (FTD) affects the frontal and/or temporal lobes of the brain. Logo of AFTD is visible, encouraging viewers to swipe to learn more.

Infographic for #BrainAwarenessWeek2025 showing types of Frontotemporal Degeneration (FTD). The pie chart divides FTD into five parts: PSP, bvFTD, PPA, FTD-ALS, and CBS. Each section is accompanied by a brief description of the symptoms or effects, such as personality changes, movement issues, and language decline. Swipe to learn more.

Image displaying an infographic titled "FTD is frequently misdiagnosed as:" followed by four colored circles with Alzheimer's, Depression, Parkinson’s, and a psychiatric condition. The text explains that FTD (Frontotemporal Degeneration) shares symptoms like personality changes and language comprehension issues with these conditions. The hashtags #BrainAwarenessWeek2025 and #AFTD are included.

#FrontotemporalDegeneration is the most common dementia for people under 60, yet it’s frequently misdiagnosed. It can affect personality, behavior, language, and movement—impacting families, work, and finances in ways that set it apart from #Alzheimer’s.

🔗 Learn more about FTD: bit.ly/3DySdGa

A great article! Thanks for sharing these great hot tips.

Well done, Sam!

👋 from the Brain and Mind Centre on Mallett Street, Camperdown

Untangling Primary Progressive Aphasia, Part One: Clarification and assessment PPA has gotten some media exposure, but what exactly is it— and how do we assess it? And what therapy goals should we set? Don't miss our downloadable assessment tracker.

A useful article by @theinformedslp.bsky.social summarising the clinical features and assessment of #PPA

www.theinformedslp.com/review/untan...

To pop or not to pop? That is the question. New paper by Molly-Eve Day, Stephanie Wong, and colleagues on risky decision-making in people living with bvFTD and AD doi.org/10.3758/s134...

@brainandmindcentre.bsky.social