@michaeltikus.bsky.social
‚in June 2025 Elsevier published its 11th edition of Kumar and Clark's "Clinical Medicine". To widespread disbelief, ME was firmly sited in the "General Hospital Psychiatry" section‘
…and they‘re not going to change it.
Read this.
#ME
www.margaretwilliams.me/2025/is-else...
So well articulated, thank you Binita and Sarah!
22.07.2025 09:47 — 👍 1 🔁 0 💬 1 📌 0@lizneeley.bsky.social have you seen www.trumpactiontracker.info?utm_source=s... ?
21.07.2025 21:04 — 👍 0 🔁 0 💬 0 📌 0In the TImes today - archive.is/PHQvo
20.07.2025 08:48 — 👍 3 🔁 0 💬 0 📌 0Did you see this paper?
www.sciencedirect.com/org/science/...
“...while patient involvement with ME/CFS research is critical, unmanaged intellectual conflicts of interest may threaten the trustworthiness of research efforts.”
I've submitted a rapid response to this BMJ Opinion piece - speaking from my dual experience as both researcher and 'recovered ME/CFS patient' (not a term I'd choose to employ).
15.05.2025 16:45 — 👍 128 🔁 43 💬 12 📌 4
Are there any more GPs with Long Covid out there who would be interested in reading my article in the British Journal of General Practice (BJGPlife) and maybe comment on it?
#LongCovid
bjgplife.com/suzanne-osul...
We are very sad to announce that the #ThereForME campaign has suspended our collaboration with the ME Association. Like others in the ME community, we have deep concerns about a recent editorial published by the ME Association and authored by the ME Association’s Chairman (‘Animals need to move’). We wrote to the ME Association today expressing concerns about the editorial and asking for an update on the actions that the ME Association would be taking to address them. We did not feel that the response we received was adequate and so we have taken the decision to suspend our collaboration with immediate effect. We are very proud of how we have managed to bring the ME and Long Covid communities together under a shared advocacy message since launching the campaign four months ago. We believe our community is strongest when we can work together and so this is not a decision that we have taken lightly. However, we are also very grateful for the trust we have built with the ME community. We therefore feel that we cannot in good conscience continue our collaboration with the ME Association until the very valid concerns from the community have been sufficiently addressed. We have made clear to the ME Association the actions we believe are necessary from their side in order to resume our collaboration. The door remains open to continue working together once we feel sufficient action has been taken. We very much hope that this will be the case. In the meantime, we will be focusing our time and energy on what we feel our campaign does best: speaking up for people with ME and Long Covid, who will always be at the heart of our campaign. Karen, Emma and Oonagh
We are sad to announce that #ThereForME has suspended our collaboration with the ME Association.
We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.
More here 👇
