The Real McCoy's Avatar

The Real McCoy

@rippermd41.bsky.social

My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England

2,246 Followers  |  911 Following  |  1,775 Posts  |  Joined: 08.09.2023  |  2.0949

Latest posts by rippermd41.bsky.social on Bluesky

Heath Howard enters the chat

running for the seat now held by Jeanne Shaheen

Those of you following along at home have heard me scream about how Jeanne and Mags Hassan have been 25% of the problem w/ key votes 2025

Heath is an Autistic guy w/ a disability who seems to be a real one doing the work

10.01.2026 04:35 — 👍 25    🔁 8    💬 1    📌 0
Preview
Im Having A Lot Fun This Is Really Fun For Me Dan Levy GIF Alt: GIF of Dan Levy in Schitt’s Creek saying “I’m having a lot of fun.

Nothing like getting ready for in-person doctor’s appt with #MECFS

Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠

05.01.2026 17:18 — 👍 23    🔁 5    💬 1    📌 0
Preview
Donate to Keep LC Campaign Founder Housed and Medically Stable, organized by Melissa Mazur Friends, Long COVID Campaign Founder Meighan Stone needs our help! … Melissa Mazur needs your support for Keep LC Campaign Founder Housed and Medically Stable

#pwLC #pwME #NEISVoid @lccampaign.bsky.social founder @meighanstone.bsky.social needs our help! She’s had a recent housing emergency/mold exposure—causing unforeseen expenses/health issues. More info here.👇 Please help if you can and share with anyone you know who can assist. gofund.me/6bd94d22d

04.01.2026 23:47 — 👍 32    🔁 29    💬 3    📌 5

Urgent last request to help us meet our fundraising goal at @thesicktimes.org! Help be a part of independent journalism on Long COVID.

All donations and shares are greatly appreciated 🙏🏼😷

31.12.2025 20:00 — 👍 45    🔁 47    💬 0    📌 2

Statement Re: OU Discrimination Investigation

Today, my client, Mel Curth, submitted her appeal of the University's Institutional Equity Office finding that she engaged in arbitrary and capricious grading of a student's assignment in violation of that student's religious liberty.

30.12.2025 16:36 — 👍 2563    🔁 590    💬 39    📌 63
Preview
Hey Jon Stewart, jokes about wearing masks aren't funny Critics of the Daily Show host say he's a hypocrite.

Wrote about how disappointing it is that Jon Stewart punched down on people masking at @motherjones.com, when people should mind their own business and leave mask wearers be. www.motherjones.com/politics/202...

29.12.2025 18:54 — 👍 3837    🔁 955    💬 50    📌 183

I want to try it but I’m not sure if it’ll work for me. The clip can only go in your left ear. I mostly lie on my side and rely on noise cancelling earbuds. Not sure I can wear the earbuds with the clip. I need to reach out to them because they can help figure out which earbuds are compatible.

26.12.2025 23:48 — 👍 2    🔁 0    💬 0    📌 0

I asked a couple weeks ago and didn’t get many responses here or on Twitter.

But a couple people responded.

bsky.app/profile/ripp...

26.12.2025 23:42 — 👍 3    🔁 0    💬 1    📌 0

Anyone use Lumia? #POTS #MECFS #LongCovid. Looking for personal experience.

26.12.2025 22:09 — 👍 11    🔁 8    💬 2    📌 0

I became more like this as I aged, especially after developing ME.

Task initiation/switching is so much harder now. It takes me hours to be functional in the AM.

24.12.2025 20:52 — 👍 4    🔁 0    💬 0    📌 0
Preview
If you have Acadian or French roots in Louisiana, you might be wondering, does Bill C-3, Canadian Citizenship by descent,give me a Canadian passport? Check in today to understand how you are affected... TikTok video by Laurie RCIC, legal professor

I think that’s just the example they’re giving

Did come across this video specifically talking about those with Acadian heritage.

www.tiktok.com/t/ZTrvWbUAx/

23.12.2025 21:01 — 👍 0    🔁 0    💬 0    📌 0

I haven’t seen any exceptions for health/disability. This pathway appears to be different than applying for citizenship.

23.12.2025 19:03 — 👍 0    🔁 0    💬 0    📌 0
Change to citizenship rules in 2025 - Canada.ca Bill C-3 changes the first-generation limit for Canadian citizenship by descent. Find out who is affected and how the law impacts citizenship eligibility.

The official site listing the rule change to citizenship by descent.

23.12.2025 12:33 — 👍 5    🔁 3    💬 1    📌 0
Change to citizenship rules in 2025 - Canada.ca Bill C-3 changes the first-generation limit for Canadian citizenship by descent. Find out who is affected and how the law impacts citizenship eligibility.

It might extend further than that but I’m not 100% sure.

This is the official site.

23.12.2025 12:32 — 👍 2    🔁 0    💬 1    📌 0
Change to citizenship rules in 2025 - Canada.ca Bill C-3 changes the first-generation limit for Canadian citizenship by descent. Find out who is affected and how the law impacts citizenship eligibility.

This is the official site with the rules if you want to look into it.

23.12.2025 12:25 — 👍 1    🔁 0    💬 0    📌 0

Thank you! I need to start tracking down birth certificates.

23.12.2025 12:22 — 👍 1    🔁 0    💬 1    📌 0

From what I’ve read, yes.

The example they give goes all the way back to a great grandparent.

23.12.2025 12:19 — 👍 1    🔁 0    💬 1    📌 0
Preview
Claiming Canadian Citizenship by Descent Under Canada’s New Citizenship Act Bill C-3 - Canada Immigration and Visa Information. Canadian Immigration Services and Free Online Evaluation. Learn how Canada’s new Bill C-3 restores citizenship by descent, removes the first-generation limit, and allows multigenerational claims for those born abroad.

In case you missed it Canada changed their citizenship laws recently.

If you have Canadian ancestry you may be eligible for citizenship by descent.

I need to look into it some more but this is amazing.

immigration.ca/claiming-can...

23.12.2025 03:28 — 👍 176    🔁 85    💬 12    📌 25

March 31, 2020:

22.12.2025 00:42 — 👍 67    🔁 20    💬 1    📌 0
Preview
Telehealth is vital for people with Long COVID. Don’t let it disappear. - The Sick Times Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.

Telehealth is vital for people with #LongCOVID. Don’t let it disappear

thesicktimes.org/2025/12/19/t...

This article explains why telehealth (remote/virtual healthcare) is needed by patients with Long Covid,ME/CFS, & other chronic illnesses & lists some advocacy actions for Canada & the US

#MEcfs

21.12.2025 22:36 — 👍 43    🔁 17    💬 2    📌 1

#NEISvoid Letterboxd squad: have you rated Unrest yet?

There’s some pretty frustrating ableism in the reviews that’s dragging the score down. I’d love to boost it to encourage other Letterboxd viewers to check it out!

21.12.2025 06:37 — 👍 12    🔁 6    💬 1    📌 0

This hurts my heart because some parents would risk having a dead kid due to believing that's better than having an autistic kid.

(No, vaccines don't lead to people being autistic but that's why some people aren't get their kids vaccinated).

20.12.2025 00:21 — 👍 124    🔁 21    💬 2    📌 0

Congratulations to everyone who wrote an op-ed about how he just wants americans to eat better

19.12.2025 23:56 — 👍 6709    🔁 1637    💬 74    📌 37

Unfortunately I am super not interested in leading it but “Civics for Long Covid” would be an immensely valuable teach-in.

19.12.2025 20:42 — 👍 8    🔁 1    💬 1    📌 0

If any journalist wants to talk to a trans man with a PhD in Human Genomics who was trained in labs that studied the evolution of sex, I'm right here

Or just keep platforming Republicans who have a 5th grade understanding of biology so they get more trans people killed, sure 🤷🏻‍♂️

18.12.2025 17:27 — 👍 3788    🔁 1301    💬 35    📌 12

Instead I get to spend the rest of my day in a 10x13’ room staring at the ceiling in the dark.

Trying not to think and trying not to feel.

If I feel well enough I may listen to an audiobook or spend 5 mins on here.

That’s it.

#MECFS

18.12.2025 19:40 — 👍 5    🔁 0    💬 2    📌 0

Having #MECFS is a nightmare.

I am so angry about this.

But I can’t be angry because that emotional exertion could trigger post-exertional malaise (PEM).

And I can’t use any coping strategies like going for a run because they all require physical or cognitive exertion.

18.12.2025 19:40 — 👍 26    🔁 3    💬 1    📌 0

Folks need to examine philosophically why it is that—in the span of just a couple of years—the leaders of the American Democratic, Canadian Liberal & British Labour Parties have all gone all in on assisred suicide (while making healthcsre harder to attain) www.cityandstateny.com/policy/2025/...

17.12.2025 06:17 — 👍 220    🔁 89    💬 7    📌 10

I disagree. Many doctors think ME is psychological based on next to no evidence.

We need to push back on that by stating we are seeing physiological abnormalities in the research. Say there is nothing definitive, these findings need to be replicated.

But they need to know those studies exist.

18.12.2025 19:20 — 👍 2    🔁 0    💬 1    📌 0

Cis people really have no idea how it feels to watch a regime hold a press conference to admit, on camera, the pogrom against trans people they've been waging for 11 months is not only real, but they're going to double down on genocide and try to wipe out all the children first.

18.12.2025 17:27 — 👍 3122    🔁 993    💬 21    📌 36

@rippermd41 is following 20 prominent accounts