Institute for Health and Disability Policy Studies

A man in a wheelchair holding a megaphone points at the closing message Text: The NSHD closes today - July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The National Survey on Health and Disability closes today - share your voice before it's too late!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

A man using a power wheelchair watches as his service dog pulls a door closed Text: The NSHD closes July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The NSHD closes soon - share your voice before it's too late!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

A woman with a developmental disability flexes her arms Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

There is still time during Disability Pride Month to share your story by taking the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice #DisabilityPrideMonth

"It has become clear that the admin’s policy agenda is not merely to bend higher ed institutions to its political will, but that attacking higher ed is in and of itself a policy agenda." Devastating findings from @americanprogress.bsky.social's @gbedekovics.bsky.social & @citizenwillis.bsky.social

Graphic for a webinar titled "Lactation and Breastfeeding with a Disability" on Wednesday, August 6, 2025, at 12 PM ET, featuring speakers Alesha Thomas, Elizabeth Campbell Soper, and Norma Morán. The flyer features a purple background with speaker photos and accessibility icons indicating the availability of sign language interpretation and closed captioning.

In honor of National Breastfeeding Month, which raises awareness about the importance and benefits of breastfeeding, we’re hosting a webinar to discuss how to support new parents with a variety of disabilities in lactation and breastfeeding their child.

Register on Zoom: zurl.co/UMvAl

The image is a quote graphic featuring Tori Lajous. It includes her photo in a circular frame at the top left, overlapping a large blue text box with quotation marks. Quote text is the answer response given in the caption.

Tori Lajous shares: “Disabled people know best what issues are affecting our community. The same way there has been a push to include Black people in Black research and queer people in queer research, there should be a push to include disabled people in disability research.” View: zurl.co/mhMr0

A woman using a wheelchair lifts a weight - her socks are brightly colored. Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

There is still time during Disability Pride Month to share your story by taking the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice #DisabilityPrideMonth

Medicaid Recipients Fear Loss Of Coverage, Though It Won't Happen For Years The first cuts won't hit immediately, but people on Medicaid, including those with disabilities, fear they could experience significant setbacks under the "big, beautiful bill."

The first cuts won't hit immediately, but people on #Medicaid, including those with #disabilities, fear they could experience significant setbacks under the "big, beautiful bill."

A man with a disability rides a recumbent tri-wheel handcycle on a brick path Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

A man with a beard using a wheelchair talks on a cellphone while looking at his wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

In measuring disability, do not abandon US standards - doi.org/10.1377/fore...

The Disability Mismatch: The Case for a Comprehensive Disability Status Measure AbstractIntroduction. Current disability questions used in many U.S. federal surveys exclusively measure disability as having one or more of six functional

The disability mismatch: The case for a comprehensive disability status measure - doi.org/10.1093/hasc...

A white woman with one arm holds up one finger Text: The disability mismatch: The case for a comprehensive disability status measure & In measuring disability, do not abandon US standards Published by HealthAffairs

Two articles from former IHDPS Director Jean Hall and fellow disability researchers dive into how we count people with disabilities in the U.S.

Published by @healthaffairs.bsky.social

Links in comments below

#DisabilityResearch

A black man wearing headphones and sitting on a couch uses his tablet Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

A woman with a prosthetic leg sitting down while looking at her wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

Woman with developmental disability wearing a medical mask waits on the phone Text: Differences in Demographics and Access to Care by Source of Health Coverage for Adults with Intellectual and Developmental Disabilities Published by MACPAC

Interested in findings from the National Survey on Health and Disability kuhealthsurvey.org ?

Read about differences in care and insurance access for adults with I/DD: tinyurl.com/56dkkfbk

Clicking the blue link works but for some reason the link preview that auto-displays below comes up as a missing page. (Just a heads up!)

"An absolute moral failure": Disability advocates react to Trump's Medicaid cuts "At the end of the day, this Congress lacks the courage to do the right thing."

The bill will strip close to one trillion dollars from federal Medicaid funding across a decade—an attack expected to cause tens of thousands of preventable deaths each year, disproportionately affecting the disabled community.

Disability advocates tell @juliametraux.bsky.social what this means 🧵

Cutting Medicaid and federal programs are among 4 key Trump administration policy changes that could make life harder for disabled people Tracking disability policies has long been challenging − this will become a harder task under the Trump administration.

Medicaid provides health insurance to a larger share of the disabled population than any other insurer.

The Affordable Care Act in 2010 let states expand Medicaid coverage, and most did. The number of people without insurance went way down.

That’s an undeniable social good—which we may now lose.

Act NOW to stop the worst Medicaid cuts in history - Autistic Self Advocacy Network The Senate just voted in favor of the worst Medicaid cuts ever.  If this bill becomes law, at least 17 million people will have their health care taken away. This is deeply disappointing, but it is…

If this bill passes, over 17 million people in the US could lose their health care. We can’t let that happen! Call your Representative now, and keep calling. We’ll tell you how. autisticadvocacy.org/2025/07/act-...

An older black man with glasses stands using a walker Text: We need more men to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

We need adults of all genders to take the NSHD - but we are especially lacking men's voices!

Do you know disability advocates? Tell them about our survey!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

Graphic - Pie chart made out of cartoon people standing, with a slice separated from the rest Undercounts of people with serious mental illness using the Washington Group Short Set questions Published in Frontiers in Psychiatry www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2025.1606154/full

Interested in research from the National Survey on Health and Disability kuhealthsurvey.org ?

Read about how some counting methods may be missing people with mental illness in a new paper -

tinyurl.com/55nvpdkz

No matter how you slice it, the Republicans are are cutting Medicaid. This will lead to people, including disabled people, being kicked off Medicaid. It will lead to higher death rates.

A young woman with a prosthetic leg wearing glasses sits on a couch Text: We need more people under 35 to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

We need adults of all ages to take the NSHD - but we are especially lacking voices from people under 35!

Please tell disability advocates you know about the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

Disability isn’t one size fits all. It can be physical, sensory, cognitive, or mental.
Some disabilities are visible, others are not. Some are lifelong, others temporary.
In higher education, understanding this range is essential to designing access that reflects real student experiences.

Waterfront Mississippi city - tall buildings and a bridge on a river Text: We need more people in Mississippi to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies

We need people all over the U.S. to take the NSHD - but we are especially lacking voices from Mississippi!

Do you know disability advocates in Mississippi? Send them a message about our survey!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice

The Big, ‘Beautiful’ Bill Attacks Medicare Recipients and People With Disabilities by Driving Up Costs and Cutting Benefits Join the Center for American Progress for a conversation on the consequences of congressional Republicans’ reconciliation bill on Medicare enrollees.

Join @americanprogress.bsky.social tomorrow at 10:30ET for a virtual panel detailing the reconciliation bill threats to Medicare and disability supports. RSVP: www.americanprogress.org/events/the-b...

How Can Research Better Represent People with Disabilities? No data source can fully capture the diversity of the disabled population, but researchers can take steps to ensure data are meaningful and inclusive.

People may change how they answer disability-related questions depending on how they are asked.

Disability research is important – read more in this article from Urban Institute: tinyurl.com/5dxf4jt2

One way you can participate in disability research is to take the 2025 NSHD: kuhealthsurvey.org

The Rainbow Support Group has created a guidebook to help family members and service providers better understand the lives and experiences of LGBTQ+ people with intellectual and developmental disabilities.