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Miranda

@crookedneighbor.bsky.social

Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her) LongCovidSafety.net

178 Followers  |  355 Following  |  678 Posts  |  Joined: 19.09.2023  |  2.561

Latest posts by crookedneighbor.bsky.social on Bluesky

Ahhhh this is such a lovely idea and these are so much better than the official one!

09.12.2025 02:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Red and black flyer which reads:

Urgent Mutual Aid Request: A Black scientist and abolitionist who has shaped vital liberation movements is navigating an intense transition and needs immediate upport for urgent housing and healthcare. She needs $400.00 today to cover immediate transportation and housing. $2000.00 will support in meeting urgent needs and healthcare for the month. All contributions can be made to paypal.me/cynthmalone or venmo: @cynthia-malone. With deep gratitude and many blessings for your support.

Red and black flyer which reads: Urgent Mutual Aid Request: A Black scientist and abolitionist who has shaped vital liberation movements is navigating an intense transition and needs immediate upport for urgent housing and healthcare. She needs $400.00 today to cover immediate transportation and housing. $2000.00 will support in meeting urgent needs and healthcare for the month. All contributions can be made to paypal.me/cynthmalone or venmo: @cynthia-malone. With deep gratitude and many blessings for your support.

Sharing from a long-time organizing comrade. Their friend is housing insecure and trying to make it back to NYC within the next month for stable housing. Please support if you can!

08.12.2025 23:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Donate to Help First Gen Immigrant Get Documents, Survive Homelessness, organized by Sam Dylan Finch Dear community, The story of what my friend has endured i… Sam Dylan Finch needs your support for Help First Gen Immigrant Get Documents, Survive Homelessness

If every one of my 3000+ followers could give DΓ©sirΓ©e $2, she'd exceed her goal for getting safe housing. I know that everyone won't see this, but if you do see it and have $5 or a bit more to spare, please consider it.

gofund.me/cfd069ce3

01.11.2025 04:42 β€” πŸ‘ 14    πŸ” 11    πŸ’¬ 1    πŸ“Œ 2

And yes I am going to try to get a doctor's note for it at some point. There's just so much medical stuff on my to do list and no way to do it all at once. (Which btw I have an article coming out tomorrow that's partly about this! Accidental plug lol)

08.12.2025 19:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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State Prisons Are Turning Away Visitors After Scanners Pick Up Their… Guards demanded body scanners to cut down on contraband. Now they’re turning visitors away over their hygiene and medical supplies.

Did you see this one btw? nysfocus.com/2025/12/06/d...

08.12.2025 19:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I desperately want the shingles vax even though I'm "too young." Had chicken pox at 14 (unvaccinated--it was so rare at the time that the doctor called all their staff over to see what it looked like). Got a staph infection because of the open wounds. Staph infection gave me permanent nerve damage.

08.12.2025 19:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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RECOVER: Researching COVID to Enhance Recovery The long-term effects of COVID are real. Join the NIH in the search for answers.

I'll be writing about #LongCOVID trials in kids for
@thesicktimes.org.

With the protocol for the LDN trial now available for public comment. I wanted to hear from parents and researchers about their thoughts on the protocol. DM me to get in touch.

recovercovid.org/news/recover...

05.12.2025 14:16 β€” πŸ‘ 31    πŸ” 17    πŸ’¬ 1    πŸ“Œ 1

The white & classist oppression of many "COVID-cautious" people also helped push a mask bloc cofounder into houselessness. It's been almost a year & things haven't improved.

They could use financial support ($ app: $PoetJaleane) if you're willing to share.

bsky.app/profile/wort...

08.12.2025 02:04 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

As people support me & @lizzietask.bsky.social w mutual aid β€” I can’t help think people haven’t been as generous w another survivor w a now over-the-rainbow bridge pup. The obvious difference is I’m white β€” naming that

As someone inside because of mutual aid, I’m asking you to share (the post & $)

07.12.2025 09:17 β€” πŸ‘ 4    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

This man did a photo opp of himself destroying homeless people's last possessions.

07.12.2025 01:36 β€” πŸ‘ 2561    πŸ” 687    πŸ’¬ 79    πŸ“Œ 13

I've also testified at a bunch of City Council hearings and I really have no idea how that's been received. The hearings are long (sometimes more than 6 hours!) and by the time they get to public testimony, the decision makers have left a lot of the time.

06.12.2025 23:55 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

In my experience, looking beyond long covid, social services are just not actually designed to care what happens to anybody. They're designed to refer you onward so that you can be someone else's problem. So these administrators are not very interested in hearing about structural problems.

06.12.2025 23:54 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Sorry, had to think about this because I don't even know besides "aaaaa, frustration" lol. I'm mostly interacting with social services and Medicaid administrators, who just don't listen well in general, *and* fundamentally don't care about disability or long covid.

06.12.2025 23:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

For context Chalder was one of the primary investigators on the infamous PACE graded exercise therapy trial.

She spent her career focusing on psychosocial factors with #MECFS and believes you can treat it with CBT.

She now has a study on #LongCovid showing up on Visible.

06.12.2025 20:56 β€” πŸ‘ 44    πŸ” 10    πŸ’¬ 1    πŸ“Œ 2
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13 Days of Accessibility Review the 13 WCAG 2.1 guidelines that web designers and developers can follow to create accessible websites.

Kasey Bonifacio's 13 Days of Accessibility is a great way to dig into the Web Content Accessibility Guidelines, which are international standards used to measure accessibility. Kasey's resource makes WCAG more digestible.

a11ycalendar.kaseybon.com

06.12.2025 21:50 β€” πŸ‘ 20    πŸ” 10    πŸ’¬ 3    πŸ“Œ 0

I am really trying, for what it's worth. Have not had a lot of luck so far.

06.12.2025 18:44 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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States Should Fund Rental Assistance as a Frontline Strategy to Address the Housing Affordability Crisis Rental assistance is a key policy intervention that state policymakers should add to their toolbox to address housing affordability at scale.

We need actual monetary solutions (cash, housing vouchers), not a system that willfully looks the other way and artificially deflates its statistics by only counting people who are in shelters.

www.cbpp.org/research/hou...

06.12.2025 16:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I have felt like vomiting every day for over a month, lost so much weight trapped in the yt racist, physical violence of Karen Traite & Joe Levy, whose initial offer to stay I declined.

But their abuse violence shame is not mine to hold.

EsmΓ©, I am sorry I couldn’t get you out of there sooner.

06.12.2025 15:55 β€” πŸ‘ 7    πŸ” 4    πŸ’¬ 0    πŸ“Œ 2

As a housing organizer, I'm also frustrated at how often the idea of "moving in with friends" (or strangers) is put forward as some sort of alternative to needing or entering a shelter. I did this in 2020 and just ended up homeless again. @sndesireecha.bsky.social did it and was subjected to DV.

06.12.2025 16:34 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Maybe I'm riffing too far off topic here, but I believe it's all connected. The absolute lack of concern from the covid cautious community when it comes to homelessness will haunt me forever.

And "rescue" is not concern, by the way. Rescue too often becomes abuse.

06.12.2025 16:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

These are the people who are more morally affronted that a hospital makes you take your mask down at security than that the same hospital is starving someone or locking them up in psych. They care about nosocomial covid but not about nosocomial sepsis, which can kill people with long covid.

06.12.2025 16:12 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

They look at covid safety as a thing you can buy, or lobby institutions for. And they want it so that they can protect themselves and their allies from becoming like us.

They're the same people who think if you have rights under the ADA, you just have to ask for them with the right tone of voice.

06.12.2025 16:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I believe @sndesireecha.bsky.social is spot-on in her critique of the covid-cautious community here. A huge percentage of these people (many of whom are white, and all of whom I presume are housed) are really only interested in masking etc. as a way to protect themselves and their nuclear families.

06.12.2025 15:59 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

Please read this full thread, donate to DΓ©sirΓ©e's GFM if you can, and show up for your homeless neighbors.

This is another blatant instance of a disabled, covid-cautious POC being offered housing by white people and then violently abused and made homeless again. It has to stop.

gofund.me/6b8af16ac

06.12.2025 15:48 β€” πŸ‘ 14    πŸ” 16    πŸ’¬ 1    πŸ“Œ 5

Malone is now talking about the role of undocumented migrants in spreading measles.

There is no evidence of this. I am disgusted. The measles outbreak is American-grown due to declining vaccination coverage in response to disinformation.

05.12.2025 20:04 β€” πŸ‘ 923    πŸ” 264    πŸ’¬ 50    πŸ“Œ 18

Not this shit again

06.12.2025 00:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

All right, I know my inbox wasn't open for that long, but I am preparing to close for the year THIS SUNDAY, December 7.

If you've got something for me, now's your chance! Send it in before Sunday, or else wait until January. :)

05.12.2025 22:28 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom I do not want to talk to an AI of my dead mom

05.12.2025 01:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#MEAction Partner Caregiver Support Call | #MEAction The Partner Caregivers Support Group invites caregivers who are spouses, partners, or significant others of people with ME/CFS or Long COVID (and associated conditions) to join us to connect, share, a...

We’re discussing Grief, Stress, and Connection During the Holidays at the #MEAction Partner Caregiver support group meeting this Sunday, Dec. 7, from 12–1 p.m. PST / 3–4 p.m. EST / 8–9 p.m.

All caregivers are welcome to join

www.meaction.net/event-detail...

03.12.2025 22:02 β€” πŸ‘ 5    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0

Well not the becoming goo part, but the rest lol. I'm beginning to see your argument in favor of goo

02.12.2025 20:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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