Jack Nunn

It's been a great experience attending the Cochrane Leadership meeting in Lisbon, alongside my colleagues from the Patient and Public Network Executive. As Co-Chair, it's really exciting to see the attention that patient & public involvement in evidence synthesis is getting. #evidence @cochrane.org

.@JackNunn talking #citizenscience #australia

Improved data about political and other influences on science is required: "safeguards from the politicisation of citizen-led research are needed"

doi.org/10.1101/2025.08.13.670232

#CitSciOz25 #science #misinformation #disinformation #transparency #data #politics

"lawmakers could either reframe protests relating to scientific data as a legal form of scientific research translation and dissemination, or as ‘illegal protest’."

doi.org/10.1101/2025.08.13.670232

#CitSciOz25 #science #law #protest #slapps

How do we improve citizen science? I'm presenting at the Australian Citizen Science Association conference about how we co-created 10 recommendations with researchers and the public.

You can read our discussion paper pre-print here:

doi.org/10.1101/2025.08.13.670232

#CitSciOz25

Science for All are proud to have been involved in the project "Improving citizen science: Co-creating recommendations with researchers and the public"

As well as a pre-print below, you can read a STARDIT report about this work here:

stardit.wikimedia.org.au/wiki/0202407...

#openscience #citizen

Congratulations Internet Archive and everyone involved. The most important site on the net

"Improving citizen science: Co-creating recommendations with researchers and the public"

A pre-print about an exciting project with Science for All, supported by the Australian Citizen Science Association & the Australian Academy of Science

doi.org/10.1101/2025...
#citizenscience #public #science

Here's a peer-reviewed article about this work: doi.org/10.1136/bmjo...

#health #dementia #involvement #dementiacare #qualitycare #stardit

0202208100258

I'll be facilitating, and we'll hear from people involved in the project.

Read more here: stardit.wikimedia.org.au/wiki/0202208...

We're excited to share the details for the online launch of the Core Outcome Measures for Improving Care (COM-IC).

Join us online this Monday 29th September, 9am AEST:

uqz.zoom.us/j/82827279556

Thank you - here's the correct link - I shared the wrong BMJ article!

doi.org/10.1136/bmjo...

Proud to share this - Science for All has been working for years on this project help to involve people affected by dementia in co-designing outcome measures for dementia care

bmjopen.bmj.com/content/13/1...

We used STARDIT to report the whole process:

stardit.wikimedia.org.au/wiki/0202208...

I'm pleased to share that I'm now a Co-Chair of the Cochrane Patient and Public Involvement Network Executive.

Cochrane will no longer use the term ‘consumer’ to represent patients and the public.

Learn more here:

www.cochrane.org/news/cochran...
#public #involvement #research #evidence

Published today: "Understanding the Unmet Needs of People Living with Type 2 Diabetes in Self-Managing Their Condition"

Involvement of people with diabetes in the project was reported using Standardised Data on Initiatives (STARDIT).

Read more here
doi.org/10.3390/nu17...

#diabetes

"you have to show that the preservation of the planet and of life is not a frantic duty. It’s a pleasure"

Alan Watts

www.organism.earth/library/docu...

#environment #politics #conservation #preservation #AlanWatts

I'm involved with some research exploring the priorities and concerns of Australian people in relation to DNA testing.

There's still time to share your views as part of a survey:
bit.ly/4aAOSRu

Learn more about this project here: stardit.wikimedia.org.au/wiki/0202407...

#genomics #dna #testing

I guess I mean some of the issues you're talking about would be caused by people who are buying things who are not aware of what is happening - how can we, as a species, do better sharing this kind of data? I'm probably a bit more articulate here about this:

wikimedia.org.au/wiki/STARDIT...

STARDIT

Brilliant research and journalism. Would love to hear any ideas you have for sharing this kind of data so it's more accessible to people - could this be used? STARDIT.wikimedia.org.au

Now I can tag you @fionarusso.bsky.social

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research:

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...

#HSR24

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research.

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...
#HSR24

Thank you for the photos and would love to connect :)

Excited to be presenting today about a project to improve the lives of people living with dementia by involving them and other stakeholders in developing outcome measures for care.

STARDIT report here:
stardit.wikimedia.org.au/wiki/0202208...

@scienceforall.bsky.social
@hsraanz.bsky.social
#HSR24

“I just don’t know enough”: Australian perspectives on community involvement in health and medical research - Research Involvement and Engagement Background There is increasing global support from governments and other funding bodies for community involvement in research, alongside a scientific and moral imperative for responsible and ethical r...

I'm proud to have worked with an inspiring team exploring public perspectives on involvement in health-related research activities in this new peer-reviewed article:

doi.org/10.1186/s409...

STARDIT report about the Australian Genomics project:

stardit.wikimedia.org.au/wiki/0202312...

Humanity faces multiple simultaneous crises.

"To understand these crises, we need reliable and trusted information"

Read more in our 'World Evidence Based Healthcare Day' blog:

worldebhcday.org/blog/2024/wh...

#research #evidence #WorldEBHCDay #scienceforall

Standardised data on initiatives—STARDIT: Beta version - Research Involvement and Engagement Background and objective There is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, m...

STARDIT - the first open access web-based data-sharing system which standardises the way that information about initiatives is reported across diverse fields and disciplines, including information about which tasks were done by which stakeholders researchinvolvement.biomedcentral.com/articles/10....