Mama Kat

So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?

I’m of the age where my peers are jealous of state-of-the-art medical procedures! They used to be envious of the concerts I attended ! Oh. Boy. Life gets weird.

This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
It’s victories like this that give me optimism.

Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.

I drive 48 miles to see my son on most Saturdays. The reason? No facility on east side of valley that has the capability to care for him and his disabilities. Maybe some day ~

I’m off in the AM to this guy. My guy. My first born. How I wish things were different for us. But they are not. Love is all there is. 💝

🙏

My son is going to love this station!

lil tardy for the party, but--

Happy Disability Pride!

remember: not all disabilities are obvious or visible. don't be an presumptuous prick.

No kidding here. This is my tribe👇🏼The caretakers. The solid consistent net for the vulnerable, the underdog. Because I get what it is like in the middle of the chaos.

We’ve entered our 8 week summer heat wave! It gets ugly😎

Decorating his room. 💫

It was Mother’s Day or close to it. I had just completed my Master’s degree in Education Administration. We were so happy. I stole them away for a couple of hours- had them all to myself and we went and had our portraits taken♥️

the press isn't telling the public that federal corporate oversight no longer functions, so most of the public is walking around not really prepared for the concussive, systemic failures that are coming for systems they routinely take for granted

He was laughing so hard because he got my Kamala Harris hat off me! He isn’t laughing now about the election and yells periodically f@%k tRump!

You know the unhoused people begging on the corner of intersections? They many times come from a family like this. Like MY family. Mental illness is a thief. It stole our family. Be kind to them. They are suffering. Give them water and food. A smile. Recognize them. For they are human & loved.

How do I give him hope? For I don’t think life is much without it. And nearly 3 year in I’m out of ideas.

It was such fun. I would do it all over again just to be their mama.

It was you teacher glare that would do it for me!

I miss this guy. I am grateful to still have him💫

Why are no headlines focusing on the unconstitutional and dictatorial nature of this action?

Welp! We are knee deep into our Arizona summer! Put your sunscreen on and wear a hat! Even the parking lots are treacherous! ☀️😎

Chris was a gifted musician before mental illness gripped him. We were so happy and filled with innocence hope. ♥️

Extract from BLACK DOGS by Ian McEwan (1992) It is photography itself that creates the illusion of innocence. Its ironies of frozen narrative lend to its subjects an apparent un- awareness that they will change or die. It is the future they are innocent of. Fifty years on we look at them with the godly knowledge of how they turned out after all – who they married, the date of their death – with no thought for who will one day be holding photographs of us. —————————— Main post extracted from THE CHILDREN ACT by Ian McEwan (2014).

Blind luck, to arrive in the world with your properly formed parts in the right place, to be born to parents who were loving, not cruel, or to escape, by geographical or social accident, war or poverty. And therefore to find it so much easier to be virtuous.
▫️Ian McEwan, 2014

#BOTD
💙📚 📚🖋

OMG! I’m just getting it! 😂😜

Worked three jobs for many of my 30 yr career; we provided for our kids. We did it well. I never have had expectations that my kids would support me in old age. I also never thought I’d be a caregiver to an adult child.
#handsoffmedicaid
#handsoffmedicare

Today is my day to visit Chris. I was supposed to be at a celebration of life for a dear aunt but am instead anchored to my couch. I can’t explain the constant low ebbing flow of guilt I have when I don’t get across town to see Chris. Some days are like this. I just sort of freeze.

This is Chris. He suffered massive heat stroke in our 120 degree heat 3 years ago. If they cut Medicaid we have nowhere to go. His needs are beyond me. He’s 6’4” - changing him, getting him from wheelchair to bed is an event. And it’s not the Ritz where he is at! But it is good. And I AM GRATEFUL.