Good night from Arizona๐
06.10.2025 04:54 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@oxygenandink.bsky.social
My son experienced a massive heat stroke 3 years ago. He awakened a non-verbal quadriplegic at 37 years old. This is about his courage, our love, forgiveness, hope, and sometimes hopelessness. But mostly it is about our unbreakable bond.
๐ค๐ผ
01.10.2025 05:50 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Saw this guy this weekend-as I -do most weekends. I captured a pic of him that is
โNormalโ as if time turned back. As if he wasnโt non-verbal and a quadriplegic. As if he werenโt severely mentally ill. I see his love for me. I love this picture. ๐๐ฅ
Take care of yourself this weekend! ๐
27.09.2025 01:33 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?
28.07.2025 04:59 โ ๐ 5 ๐ 0 ๐ฌ 0 ๐ 0Iโm of the age where my peers are jealous of state-of-the-art medical procedures! They used to be envious of the concerts I attended ! Oh. Boy. Life gets weird.
27.07.2025 22:38 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
Itโs victories like this that give me optimism.
Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.
08.07.2025 02:19 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0I drive 48 miles to see my son on most Saturdays. The reason? No facility on east side of valley that has the capability to care for him and his disabilities. Maybe some day ~
07.07.2025 02:22 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Iโm off in the AM to this guy. My guy. My first born. How I wish things were different for us. But they are not. Love is all there is. ๐
05.07.2025 03:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0๐
05.07.2025 03:13 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0My son is going to love this station!
05.07.2025 02:49 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0lil tardy for the party, but--
Happy Disability Pride!
remember: not all disabilities are obvious or visible. don't be an presumptuous prick.
No kidding here. This is my tribe๐๐ผThe caretakers. The solid consistent net for the vulnerable, the underdog. Because I get what it is like in the middle of the chaos.
01.07.2025 16:54 โ ๐ 7 ๐ 3 ๐ฌ 0 ๐ 0Weโve entered our 8 week summer heat wave! It gets ugly๐
30.06.2025 20:42 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Decorating his room. ๐ซ
30.06.2025 01:18 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0It was Motherโs Day or close to it. I had just completed my Masterโs degree in Education Administration. We were so happy. I stole them away for a couple of hours- had them all to myself and we went and had our portraits takenโฅ๏ธ
27.06.2025 09:31 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0the press isn't telling the public that federal corporate oversight no longer functions, so most of the public is walking around not really prepared for the concussive, systemic failures that are coming for systems they routinely take for granted
24.06.2025 13:17 โ ๐ 316 ๐ 83 ๐ฌ 3 ๐ 10He was laughing so hard because he got my Kamala Harris hat off me! He isnโt laughing now about the election and yells periodically f@%k tRump!
26.06.2025 06:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0You know the unhoused people begging on the corner of intersections? They many times come from a family like this. Like MY family. Mental illness is a thief. It stole our family. Be kind to them. They are suffering. Give them water and food. A smile. Recognize them. For they are human & loved.
25.06.2025 21:11 โ ๐ 6 ๐ 1 ๐ฌ 0 ๐ 0How do I give him hope? For I donโt think life is much without it. And nearly 3 year in Iโm out of ideas.
25.06.2025 10:23 โ ๐ 4 ๐ 0 ๐ฌ 1 ๐ 0It was such fun. I would do it all over again just to be their mama.
24.06.2025 03:12 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0It was you teacher glare that would do it for me!
23.06.2025 18:20 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I miss this guy. I am grateful to still have him๐ซ
23.06.2025 18:03 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Why are no headlines focusing on the unconstitutional and dictatorial nature of this action?
22.06.2025 02:44 โ ๐ 30745 ๐ 7106 ๐ฌ 1268 ๐ 393Welp! We are knee deep into our Arizona summer! Put your sunscreen on and wear a hat! Even the parking lots are treacherous! โ๏ธ๐
22.06.2025 20:53 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Chris was a gifted musician before mental illness gripped him. We were so happy and filled with innocence hope. โฅ๏ธ
22.06.2025 20:48 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Extract from BLACK DOGS by Ian McEwan (1992) It is photography itself that creates the illusion of innocence. Its ironies of frozen narrative lend to its subjects an apparent un- awareness that they will change or die. It is the future they are innocent of. Fifty years on we look at them with the godly knowledge of how they turned out after all โ who they married, the date of their death โ with no thought for who will one day be holding photographs of us. โโโโโโโโโโ Main post extracted from THE CHILDREN ACT by Ian McEwan (2014).
Blind luck, to arrive in the world with your properly formed parts in the right place, to be born to parents who were loving, not cruel, or to escape, by geographical or social accident, war or poverty. And therefore to find it so much easier to be virtuous.
โซ๏ธIan McEwan, 2014
#BOTD
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