Leila Segal

Dying a “Good” Death: Disability and the Assisted Suicide Debate Dying a “Good” Death: Disability and the Assisted Suicide Debate    Nicole Schroeder Content warnings: suicidal ideations, mentions of medical abuse and neglect   Like most disabled peopl…

Kicking 2025 off with the most vulnerable thing I've ever written. I hope that those who read can sit with this, and reflect on what it means to die a "good" death. disabilityvisibilityproject.com/2025/01/01/d... 1/3

“and placed my grief
in the mouth of language
the only thing that would grieve with me”

—Lisel Mueller

Sarabande will publish Katie’s and my translations of Lesyk’s powerful poems about life in Bucha, Ukraine during Russian invasion. It’s available for pre-order now on their website:

Thrilled to announce that #FireRush 🔥 has won The PEN Open Book Award @penamerica.bsky.social It’s incredible to see the world of the dub reggae scene making waves in the US. Thanks to all the judges and my fantastic editorial team @vikingbooks.bsky.social Congratulations to all the other nominees

Waiting for the Monsoon by Rod Nordland review – a war reporter finds a ‘second life’ in the shadow of death The Pulitzer prize-winning New York Times foreign correspondent provides fascinating insights into surviving his job and his 2019 diagnosis with an aggressive form of brain cancer in this inspiring jo...

Thank you @jonungoedthomas.bsky.social for this review of my book Waiting for the Monsoon at The Observer in London.

I have a new donated coat from my friend Patti that I’m very excited about as it’s freezing here in New York. Let’s talk coats:

War reporter Rod Nordland on his memoir 'Waiting for the Monsoon' and facing death After decades of covering war, traveling the world and being estranged from his family, journalist and author Rod Nordland was in New Delhi when he was struck by a grand mal seizure and given a diagno...

I love this interview on PBS Newshour with Rod about his memoir Waiting for the Monsoon 🩷 www.pbs.org/newshour/sho...

Good palliative care can alleviate the pain of dying – this bill means Labour must fund it | Rachel Clarke Making dying easier is not the solution when NHS, social and palliative care are simply not there for patients

My direct appeal to @rthonwesstreeting.bsky.social
& Keir_Starmer in the light of yesterday's vote on AD.

If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?

www.theguardian.com/society/2024...

People advocate for AD in theory while the reality of those of us caring for vulnerable loved-ones mitigates against it. I have seen how pressure even from palliative care staff to ‘consider stopping treatment’ weighs heavily on a person beholden to so many for their survival.

We have used a hospital at home service and found it immensely beneficial and far more suitable for some situations than an ER visit. It allows far better continuity of care in the case of a serious chronic disease such as glioblastoma.

Hello - my partner is receiving experimental immunotherapy for glioblastoma and I’m interested to learn as much as I can. Thank you for your work.

David Lynch describes going to to Bob’s Big Boy to drink vast sums of coffee and chocolate milkshakes

Picked up this little book of writers’ writing rituals, & I think most of em are liars — “up at dawn, 6 hours at my desk, followed by calisthenics, liquor, & reading edifying works.” But David Lynch delivers the goods.

Brain Cancer Was Supposed to Kill Me. Instead, It Gave Me a Second Life. A devastating diagnosis prompted a reporter to revisit his past — and repair its mistakes.

Rod Nordland: Brain Cancer Was Supposed to Kill Me. Instead, It Gave Me a Second Life. - A devastating diagnosis prompted a reporter to revisit his past — and repair its mistakes. The New York Times www.nytimes.com/2024/03/04/w...

Five reasons the journalists are striking

Why are Guardian and Observer journalists going on strike for four days in December over the deal to offload the Observer onto a failing digital startup? Five reasons here. Please repost 🙏

Beautiful new edition of my book Breathe – thanks to my publisher @flippedeye.bsky.social Available in the UK at flippedeye.net/product/breath… and US readers can order at https://blackwells.co.uk/bookshop/product/Breathe-by-Leila-Segal/9781905233663

The ambulance rattled along New York's broken streets. The siren was on.

He wore the indignity of the hospital.

At home, Aaron and his colleague were gentle. Aaron held Rod's left arm through each door. We all came into the dark and empty living room, which had been waiting for us.