I hear it works wonders for psoriasis. It has not really helped my joints and frquency of flares

I have psa and my disability application is currently being evaluated by social security - so i'd like the govt open--- but my kid is trans and i hope and pray that democrats take action and stand firm to protect their rights and yours

I am a surgical candidate, but only if I loose weight. Because of the condition that I am not allowed to have surgery for, I need to take meds that have a side effect of gaining weight. I have had a gastric sleeve, I count calories and insurance does not cover GLP-1s. Ugh #chroniclife

They just don't get it.

Oh man, don't ever get a sequestered disc. That shit is painful and debilitating! #degenerativediscdisease #spine #chronicpain #neuropathy #radiculopathy

Nothing amplifies your chronic issues like an acute incident. Traumatic injury on Friday night requires non weight bearing (wheelchair for me because other side knee and same side wrist are bad). Follow up with hematology and pcp, and preventative antibiotics. Ugh.

I use figure 8 lace up braces when things are bad - but if it's not super bad or I know i am going to be on uneven ground I use hiking boots - they are easier to get onn and off and give my ankles the support they need

You know how they say if you go to work hungover, that’s addiction and it’s time to get help? IMO that’s the metric we should apply to disability: if you’re going to work when normies with the same symptoms would call out and/or go to the doctor, here’s your benefits, that’s disability

You know who the best person in the world is? Its the one who puts your icepack back in the freezer in the morning. #bestpartnerever #psoriaticarthritis #chronicpain

#chrinicallycrafting! Join us ever Sunday & post what you're working on!

Also, if you are having a bad week feel free to post something that you worked on in the past! Let's build some community #chronicallycrafting

strips of crochet - one dark purple with a bumpy raised texture, one pale yellow with window pane style holes/negative space and one with purple and teal striped that have ridges

Sunday is #chronicallycrafting day! If you have a chronic condition & craft - share what you're working on with the #chronicallycrafting hashtag!

This week I am continuing work on a sensory blanket made up of different textures. 🧶

#crochet
#craft
#chroniclife
#chronicpain
#disability
#neisvoid

I decided that Saturdays are for chronic crafters, so i posted with the hashtag today - feel free to join in!!! #chronicallycrafting

Getting ready to fly to a work event. My #psoriaticarthritis is an invisible disability. I use a wheelchair for distance in airports in hopes that it saves stress on my body. I dread the responses of the general public and potential co-workers about not looking disabled #chronicillness #notfaking

For psoriatic arthritis. I have tried enbrel, humeria, remicaide, cimzia, rinvoq and now skyrizi

I have been on methotrexate for years. I had side effects with the oral pills but switched to injections and have no side effects now! It's a compliment to other biologics for me

Has anyone created a bluesky #disabilityactivist starter pack? I used to have a good list on twitter back in the day, but here looking for disability sky

#spoonie #neisvoid #disability #chronicpain #fibromyalgia #medsky #psoriaticarthritis #chroniclife

Packing to go on my annual company trip to Mexico sounds glam, until I start packing first aid kits, backup steroids, backup pain meds, just in case antibiotics, CPAP, psoriasis skin creams & ointments. I think my disease needs its own bag and I don't want to take it with me

What if once a week we posted works in progress (or completed works, or if it is a flare week a completed item from the past) with the hashtag #chronicallycrafting It could be a nice check in 🧶

#chroniclife
#chronicallyill
#chronicpain
#fiberarts
#crochet
#crossstich
#knitting

I am currently working on a sensory blanket - the blanket will be made up of several 6-12 inch wide strips that each have a different texture.

It will be donated for a theatre project that makes musical theatre accessible to young disabled actors

Fuck decorum. Please ahow your resistance

If the democrats don't show a dramatic display of resistance to trump/musk tonight I will be looking for a new party that really represents my values.

Oh, and can someone start a new party please?

I am absolutely terrified about what is to come for our seniors and disabled Americans. I have been fully disabled for more than a decade, and depend on social security.

Stress actually exacerbates MANY disabilities. People WILL die because of this.

At my Rheumatologist's office today and she mentioned how many patients had come in crying in the past two months. She asked them if they were in pain and they said that's not it. It's just everything. Everything is too much

That is frustrating

That is a lot of surgeries, although if i think about it I average about 1 a year if I don't count pain procedures

That is awesome! Here we are #chronicallycrafting

@bsky.app needs a disability activist starter pack!

I recently picked up crochet as a hobby and on most bad days i can still crochet- it helps me feel productive and i have something to show for the time spent in my recliner

I would recommend getting a second opinion from an academic medical center. I had a rough go of my diagnosis in my small town, but when I got to Northwestern my a Rheumatologist was very thoughtful, took time and definitely understood that some people are seronegative