I had the privilege of knowing someone with a mitochondrial disorder, with severe dystonia. A drug like this would have been life changing for her. It is unconscionable to not move forward with the approval process. Thank you for sharing Hope's story.
24.06.2025 12:21 β π 6 π 0 π¬ 0 π 0
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. π§΅
23.06.2025 21:21 β π 7868 π 4824 π¬ 210 π 248
β’β’β’β’β’β’β’BREAKING.β’β’β’β’β’β’β’
The measles outbreak in western Texas has hit 481 cases, with 59 new infections confirmed in just the last 3 days.
In Texas alone, at least 56 measles patients β mostly children β have been hospitalized thus far.
Based upon the steady, often rapid increase in the number..
05.04.2025 02:42 β π 1751 π 781 π¬ 117 π 70
Same postcards now with black Sharpie script that says "and I have to add our military too..."
Added another bit to the front...because WTAF!
24.03.2025 22:50 β π 0 π 0 π¬ 0 π 0
Postcards addressed to Rep Jackson, Sen Cornyn, with the one to Sen Cruz flipped over showing the front. It has a pink background with white lettering saying "Don't mess with Texas Women."
In the background is a sheet of paper with their addresses and year they run for reelection.
It's been a couple of months. Trying to drag myself into spring and do something constructive. My goal is actual letters and phone calls in the weeks to come. Considering where I live, I *might* be spitting into the wind on getting any of my representatives' heads out of their asses. π«€
24.03.2025 22:39 β π 1 π 0 π¬ 1 π 0
I like the curved strip quilt, looks like it was fun to make.
19.01.2025 04:10 β π 0 π 0 π¬ 0 π 0
π
12.01.2025 15:59 β π 0 π 0 π¬ 0 π 0
Fabric collage made of cotton, lace and silk. Blue and teal owl on red pink background.
One hour recorded FABRIC COLLAGE webinar calicohorses.com/recording-fa...
Link is also in my profile. Please share.
#fabriccollage #quilt #artquilt #artquilts #fabricollageart #embroidery #ArtShare #sew #collage #art #webinar #sewing #quiltsky
07.01.2025 13:14 β π 37 π 3 π¬ 3 π 0
Beautiful! Love the color combos.
07.01.2025 00:46 β π 1 π 0 π¬ 0 π 0
Yellow fabric with a white circular accent pattern matches up along a seam in a quilt block.
Yellow fabric with a white circular accent pattern matches up along a seam, in a second quilt block.
Quilting practice showing stylized flowers and loops with some leaves.
Quilting practice of a design that has large random swirls using wavy lines.
Serendipitous matching fabric patterns along a seam (twice!) and practicing some free motion quilting after about a year of doing nothing on the longarm. Both were particularly satisfying this past week. #tinyjoys #quiltsky
07.01.2025 00:31 β π 25 π 3 π¬ 0 π 0
Thank you!
01.01.2025 01:15 β π 1 π 0 π¬ 0 π 0
Many future generations! π
01.01.2025 01:14 β π 1 π 0 π¬ 0 π 0
A lemon pig sits on a windowsill in front of a lace curtain. He has matchstick legs, cloves for eyes, tiny ears, and a fold in the lemon makes a smiling mouth that holds a penny.
First I've heard of making a lemon pig for luck, but I'm giving it a go. I unfortunately squashed one of his clove eyes. His tail is a bent sewing pin. Used the oldest penny from my purse (1951). He leaks a bit, but looks optimistic and smells nice.
01.01.2025 01:13 β π 3 π 0 π¬ 0 π 0
I really like how you've placed the contrasting fabrics around each block!
31.12.2024 01:30 β π 1 π 0 π¬ 1 π 0
Quilt blocks made with floral fabrics and contrasting yellow fabrics. The block pattern is known as "Jacob's Ladder."
A brindle dog with white markings sits in front of a colorful quilt top. She looks concerned that she is not getting treats for sitting nicely.
A quilt top is draped over the rails of a quilting machine. Colors are yellow, red, white and cream, black, and gray.
It took almost 10 years, but I put borders on my Allietare! Miss Freddy approves. Did I pull out another of my many unfinished projects to work on? No, no I did not. Always wanted to make a Florabunda quilt. I'm on a @quiltville-bonnie.bsky.social streak this month! #quiltsky
30.12.2024 22:48 β π 26 π 2 π¬ 2 π 0
It looks like "Elvira" from GE Designs.
29.12.2024 03:19 β π 1 π 0 π¬ 1 π 0
π
28.12.2024 01:06 β π 0 π 0 π¬ 0 π 0
Just beautiful! I love the colors and how everything flows together.
27.12.2024 13:38 β π 1 π 0 π¬ 1 π 0
Large black mug with a teaspoon handle sticking out. There is a small chip on the rim. It contains hot coffee with milk.
A 9x13 pyrex dish with cranberry cake. The cake is lightly browned on top, and reddish cranberries are peeking through the crust. The dish is sitting on a white stovetop cooling.
My #tinyjoys for the past week. My favorite coffee mug. Perfect weight and size. Showing it's age since I can't find another. Tried a new recipe, cranberry cake, and it was yummy! (I don't feel much like cooking lately, so that was a win).
26.12.2024 13:34 β π 5 π 2 π¬ 0 π 0
Beautiful, thanks for sharing!
22.12.2024 13:32 β π 1 π 0 π¬ 0 π 0
First was Challenger, we were watching in school. Second, fall of the Berlin Wall.
18.12.2024 01:17 β π 1 π 0 π¬ 0 π 0
Red bloom in the foreground, on a green plant. It's in a white pot and sitting on a red and white table.
Tabby cat with yellow-green eyes looking at the photographer. His ears are perky and he wants to be petted.
Making me happy this week, the red Holiday cactus is blooming, and I got to snuggle a random garage cat. He was a purrfect chonk!
17.12.2024 13:27 β π 2 π 0 π¬ 0 π 0
YouTube video by PBS NewsHour
Researchers report stunning surge of misogyny after the election
Is it really stunning though? Really? youtu.be/dgxj_wfH-0w?...
14.12.2024 00:15 β π 0 π 0 π¬ 0 π 0
Pulling it out and working on it, I'm realizing what a neat pattern it is! I still have 2 more mysteries to finish.
07.12.2024 02:56 β π 0 π 0 π¬ 0 π 0
One corner of a quilt top with white, black, yellow, gray, and red. There is a border piece made of white scrappy strips lying next to the top.
Crescent moon in a dark sky next to Venus.
Making me happy this week: Progress on the scrappy strippy borders, and stopping to admire the moon and Venus. I might have this quilt top finished by the end of the month!
06.12.2024 01:17 β π 7 π 0 π¬ 0 π 0
I have plenty of holiday/seasonal fabric, and keep telling myself I'll make themed quilts from it, but still haven't!
05.12.2024 20:44 β π 1 π 0 π¬ 0 π 0
The Supreme Courtβs Hearing on Trans Rights Was Bigotry Masquerading as Law
The conservative majority spent much of the oral arguments for US v. Skrmetti trying to erase the trans community.
Here is my write up in @thenation.com about yesterdayβs awful anti-trans hearing at SCOTUS.
If I made the arguments Alito and Barrett made when I was in law school, I would have gotten an F. Unless my professors were bigots like them.
05.12.2024 16:42 β π 1436 π 416 π¬ 36 π 20
Quilt top with red, yellow, cream, gray, and black colors. It is draped on the bars of a quilting machine.
Close up of a quilt block, in the center is a patch of white fabric with the word "moo" repeated across it in small black script letters. It is set in contrast with more traditional floral and geometric fabrics.
A brown and cream / white quilt top hanging on a gray design wall. Blocks have colors striped diagonally with a blue strip at the center of each block.
A hand holds an empty plastic container in front of a quit top, showing the project is finished and not stored in the container.
Hope top is complete! (Pattern from GE Designs). Celebrating an empty bin.
Next up, Allietare. (pattern by Bonnie Hunter @quiltville-bonnie.bsky.social) My first mystery quilt; it's been waiting for borders since 2016! Favorite part? Moo fabric. π
#quilt #quilting
30.11.2024 15:29 β π 11 π 0 π¬ 2 π 0
Love the colors!
30.11.2024 14:42 β π 0 π 0 π¬ 0 π 0
Public radio's lively language show! On-air in US, free podcast worldwide. https://waywordradio.org words@waywordradio.org. Toll-free US/Canada 24/7 1-877-929-9673 or https://wa.me/16198004443 #linguistics #etymology #podcast #books #language
Co-host, βA Way with Wordsβ public radio show
USA TODAY bestselling author, FRIENDS WITH WORDS: ADVENTURES IN LANGUAGELAND
marthabarnette.com
#etymology #writing #books #words @wayword
Berkeley professor, former Secretary of Labor. Co-founder of @inequalitymedia.bsky.social and @imcivicaction.bsky.social.
Substack: http://robertreich.substack.com
Buy my new book: https://sites.prh.com/reich
Visit my website: https://rbreich.com/
Artist, quilter, birder, botanist, not necessarily in that order
Meteorologist - wife/mom - ENTP - reading connoisseur - music lover - STL sports. Thoughts mine, not employers.
2025 Read Goal: 60/90
Current π: Well, Actually
Dog mom, quilter, pro-democracy. I've been known to camouflage errors with pigma pens. Embrace the wabi sabi! I'm here for the quilts. Please don't be offended if I don't follow back.
Quilts, colour theory, traditional blocks, glassblowing, constant explorations in creativity. Aussie in Canada.
Visual diary (wens_was_here)
Etsy- https://sewnbywens.etsy.com
What I have is a particular set of skills; skills that make me a nightmare for Nazi dickbags on the internet. I joke, and drive a Nissan Altima
posts too much
ecol/biologist in climate change
settler. knitter π§Ά. antiracist. chronically ill.
#yeg Edmonton Alberta Treaty 6 Canada
born @ 340ppm CO2
#BiInSci
Wildfire resources: https://bsky.app/profile/alisonborealis.bsky.social/post/3lqep5ttvnt25
Accountant by day, Quilter by night!
Love all things quilty, crochet, and cross stitch. Obsessed with Stitching! Possibly a Sophomore Citizen since 60 is the new 50!!! Independent
Hello! ππ» ππΌββοΈ π¨π¦/πΊπΈ
Iβm just an amateur quilter who loves sharing my quilting journey! I also enjoy designing quilt patterns every once in a while.
Tag: #aqhcreative
Quilter/ Retired Public School Administrator/ Advocate for Career and Technical Education and Work Based Learning/ Advocate for Equity, Universal Healthcare and LGBTQ+ Rights
Iβm a textile artist creating to support endangered animals also Art Director for the Library of American Comics
π«NFTπ«AI π«MAGA
https://calicohorses.com/
A team of scientists & activists, in & around Yellowstone National Park. 501c3. Posting photos, ideas & solutions, because together, we can change the world.
Please report malicious trolls & imposters.
We are AltYelloNatParkβ’οΈ
Camera traps, nature, history, weather, Hartsel prairie. Wildlife researcher and community scientist. Colorado.
Alt-text: Night photo of raccoon sitting on right side with front paws together, mouth open. Shrubs near him. Avatar: My logo with wildlife.
Geoffrey Chaucer (Le Vostre GC): Servaunt of the Kynge. Blogger. Wryter of verse. Wearer of litel woolen hatte. Deputy Forestere of North Petherton. He/hym/hys.
Immigrant. Citizen. Mouthy advocate for common sense. Official accountπ
https://linktr.ee/politicsgirl