Sammie McFarland

#MeetTheBoard
Prof Mark Faghy is one of our Trustees.
🏃 @profmarkfaghy.bsky.social is a Professor in Clinical Exercise Science at the @derbyuni.bsky.social with research interests in Long Covid, acute respiratory infection, recovery, & the impact of prolonged symptom profiles on quality of life.

“Lack of use, plus three bouts of COVID, probably phased out the plectrum for me”: Mark Knopfler tells why he’s ditched the pick in favor of fingerpicking The former Dire Straits guitarist told us why he moved away from the plectrum but still regards the pick as “a superior thing”

Sound track of my childhood - #DireStraits

“Lack of use, plus three bouts of COVID, probably phased out the plectrum for me”: Mark Knopfler tells why he’s ditched the pick in favor of fingerpicking

www.guitarplayer.com/players/mark...

#LongCovid #Guitar

🧡

Thank you Anita.
This is a story so many will relate to.
Good luck.

“Before she contracted Covid-19, Anita had just finished a Master’s degree in Media and Globalisation, and was about to start applying to PhD opportunities. The mental effects of her condition have meant that she has had to delay studying”

www.leicestermercury.co.uk/news/real-li...

#LongCovid

Yep, my third and fourth Covid infections were both in July.

What do we know about the Covid-19 virus five years on? As the virus continues to evolve, experts assess its latest variants, seasonal prevalence and levels of vaccine uptake

“It is absolutely true that you are as likely to get Covid in summer as in winter,” said @daltmann.bsky.social, an immunologist at Imperial College London.

www.theguardian.com/world/2025/a...

#Summer #SummerHolidays

School absence discussion on
@thismorningitv.bsky.social chat covering potential causes but missing the 🐘 in the room - SARS-CoV-2 infection alters health - kids have been infected.
Hoping the U.K. COVID inquiry deliver recommendations to protect CYP in the future & conversations cover impact.

Smashing playful advocacy that tells a powerful story from Woody Woodhouse.
Thank you! for raising awareness of @longcovidkids.bsky.social @longcovidsupport.bsky.social
@bathspauni.bsky.social

The first posters have started to arrive!

There is so much talent out there - please keep them coming for a chance to win one of the cool prizes.

www.longcovidkids.org/post/design-...

#Win #Competition #Summer #posterdesign #LongCovidKids #LongCovid #SummerFun

@longcovidsupport.bsky.social

Joe Ireland 100K across June for Long Covid Kids Help Joe Ireland raise money to support Long Covid Kids

Joe ran 100 Kilometres in June for LCK - he is just shy of his £1000 target and would appreciate any help to hit it!

Joe says: Watching my brother Ben robbed of his teenage years by such a terrible condition has been heart breaking.

Read their story:
www.justgiving.com/page/joe-ire...

#LongCovid

Thank you Joe!

🌻 We’re thrilled to share some sunny news! 🌻

This year Silkstead Sunflowers have chosen LCK as their charity of the year — and we couldn’t be more grateful. 💛

📍 Learn more: silksteadsunflowers.co.uk

#SilksteadSunflowers #SummerHolidays #DaysOut #Winchester #FamilyFun #SummerHolidays #Charity

This is really hopeful for MIS-C, which is systemic inflammation following Covid. I really hope this could be a treatment to help our kids with Long Covid too.

Thank you for the lovely feedback on the FREE LCK Support Guide.
Published in 2022 - it’s still providing vital supoort to families caring for children & young people with Long Covid & related conditions.
Find it under ‘Support’ 🔗
www.longcovidkids.org

#LongCovidSupport #Resources
#LongCovidKids

⭐ “While our study is small, its results are powerful and have implications not only for MIS-C, but potentially for long COVID,” said lead author @laelyonker.bsky.social ⭐️

www.massgeneralbrigham.org/en/about/new...

#PIMS #MISC #Treatment
#LongCovidKids #LongCovid #ChildHealth

“Our findings suggest that larazotide is safe and quickly resolves symptoms in children with MIS-C. We are now running a clinical trial to test whether larazotide may also be a useful therapy to treat patients with long COVID.” @laelyonker.bsky.social
🙏🫂

Really exciting to see this progress!

Thank you for sharing.

Antibody repertoire associated with clinically diverse presentations of pediatric SARS-CoV-2 infection Pediatric SARS-CoV-2 infection results in clinical presentations ranging from asymptomatic/mild infection to severe pulmonary COVID-19, to Multisystem Inflammatory Syndrome in Children (MIS-C), charac...

In a sample of children infected with SARS-CoV-2, "all SARS-CoV-2 infection manifestations were associated with increased autoantibody production, suggesting pediatric SARS-CoV-2 infection as a risk factor for autoimmune complications"

#LongCovid (preprint)

www.medrxiv.org/content/10.1...

Good luck Anita. 👏🏼

Anita is aiming to walk 140 miles to raise awareness and funds for LCK.

You can follow her journey on Instagram - 📷
#chronicallyanita

www.instagram.com/p/DMp1wr5NM4j/

#LongCovidKids #LongCovid #CharityWalk

A myth founded in misinformation and misinterpretation, defection, smoke and mirrors.
The level of harm was, and continues to be unnecessary. It is imperative that the UK COVID Inquiry makes actionable recommendations that protect children, now and in the future.

#LongCovidKids #CovidInquiry

Thanks to the carefully thought out PPI on this study
(@lindsayskipper.bsky.social ) the team here are all masking, there are air filters in the room and the windows are open.

Involving people with lived experience in every stage of research is key!

#LongCovid #Research #LivedExperience #PPI

I am laying on a hospital bed in a ward at the research centre, my head is on a pillow, in the background you can see a blue chair, a wall lamp and an eye test chart on the wall. I have long dark hair, sunglasses on my head (for some reason!) and a green face mask. I am wearing a white t-shirt and black jogging bottoms. In one hand I am holding a green book by Miranda Hard 'I haven't been entirely honest with you', the other arm is laid over a pillow and connected to the IV.

Over the last 5 weeks I've been a participant in #research for the #ERASE study - just over 1/2 way through the appointments. It's all about the accessories 🙃...
Today's carefully chosen book and mask combo!
@profmarkfaghy.bsky.social @derbyuni.bsky.social
@longcovidsupport.bsky.social
#Hope

💻 Looking for information and support for yourself or a child or young person living with Long Covid?

Our website is packed with practical tools, guidance, and resources to help children & young people, families, professionals, and schools better understand Long Covid and related conditions.

Image showing the UK Houses of Parliament with Big Ben and a red double-decker bus in the foreground. Action for ME's logo is in the top right corner. A banner reads: “Policy news – Department of Health & Social Care releases the Final Delivery Plan on ME/CFS.”

Statement from Action for ME Chief Executive Sonya Chowdhury on the Department of Health & Social Care’s Final Delivery Plan on ME/CFS. The quote welcomes parts of the plan, such as tackling stigma and training, but criticises it for not going far enough and says people with ME feel ignored. The Action for ME logo appears in the top right corner.

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❗️ DHSC publishes the Final Delivery Plan on ME/CFS

The Department of Health & Social Care has published the Final Delivery Plan on #MECFS

We have issued a detailed statement on our website 👇

www.actionforme.org.uk/dhsc-publish...

#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan

⬇️

You spend, brands donate to Long Covid Kids and Friends. Help us when you shop with 7,000+ brands. Join now.

Please sign up to support @longcovidkids.bsky.social for free today! It’s completely free & would make a big difference to fundraising. Once you’ve signed up you can raise free donations for LCK when you shop online with over 8,000 retailers. ✍️ here: join.easyfundraising.org.uk/long-covid-k...

YouTube video by Long Covid Kids Long Covid & Me | Understanding Long Covid In Children And Young People

We know that explaining the impact of Long Covid can be exhausting.
Please share with anyone who may need more info.
Help us raise awareness that COVID infections can lead to complex health challenges.

🌟Avoiding infection is the best way to avoid risk.

youtu.be/e0U7K54RiSg
#LongCovidKids #CleanAir

An article in @thetimes.com
today by Emily Dugan highlights the challenges families can face when complex health conditions are poorly understood.

‘We demand help for our sick children. We were accused of abuse’

#FII

to reduce risk - & why @longcovidkids.bsky.social
continue to advocate for #cleanair in schools/ indoor spaces, all year round.
Assisting the UK Covid Inquiry
to understand that prevention remains a key goal - future recommendations must drive action to protect CYP.

#LongCovidKids #LongCovid