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Something Chronic

@somethingchronic.bsky.social

Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness

1,063 Followers  |  1,943 Following  |  967 Posts  |  Joined: 01.12.2024  |  2.3358

Latest posts by somethingchronic.bsky.social on Bluesky

Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit:

docs.google.com/document/d/1...

06.02.2026 19:32 — 👍 20    🔁 15    💬 2    📌 0

Thank you

30.01.2026 19:11 — 👍 1    🔁 0    💬 0    📌 0
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Barrister accused of transphobia threatens Jolyon Maugham for defamation Last summer, Good Law Project accused barrister Sarah Phillimore of harassment and transphobia. Now, the barrister is suing its founder over the allegations

The transphobic barrister Sarah Phillimore is threatening to sue me for defamation - and we've published our response to her Letter Before Action.

30.01.2026 15:01 — 👍 286    🔁 74    💬 21    📌 10

🌷💞

29.01.2026 20:24 — 👍 0    🔁 0    💬 0    📌 0

Kansas just passed a monstrous bill enabling criminal penalties and vigilante lawsuits for trans people using the bathroom according to their gender identity and requires them to surrender their current drivers licenses and birth certificates if it does not match their sex assigned at birth.

28.01.2026 23:43 — 👍 3790    🔁 1676    💬 120    📌 242
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The UK government didn't want you to see this report on ecosystem collapse. I'm not surprised | George Monbiot It took an FOI request to bring this national security assessment to light. For ‘doomsayers’ like us, it is the ultimate vindication, says Guardian columnist George Monbiot

Please spread this far and wide, as stories don't get much bigger than this. When the government blocks even the intelligence services from telling us we're heading for environmental catastrophe, you know we have a problem. A very big problem.
Thank you.
www.theguardian.com/commentisfre...

28.01.2026 07:18 — 👍 3105    🔁 2197    💬 61    📌 144
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Karen update: Mental capacity assessment & response from East Sussex NHS Trust’s solicitors. Photo: August 2025 - Karen with her new PICC line 4 days after it had been put in. Hello Everyone Karen has now been in Conquest hospital for 1 year and 9 months. Karen is continuing to have TPN (IV f...

Latest update from the Gordon family about Karen Gordon - 15 October 2025

Karen has been in Conquest Hospital for nearly 2 years now.

All because the NHS do not have a scooby about how to treat very severe ME. 😩

#Justice4ME #SevereME

www.change.org/p/save-karen...

27.10.2025 09:56 — 👍 6    🔁 3    💬 1    📌 0

This is your reminder Savannah needs our help to stop the NHS starving her to death.

Please email the hospital she is in. Details in post below

www.thecanary.co/uk/analysis/...

#mecfs #pwME #GreatestMEdicalScandal

25.01.2026 10:52 — 👍 19    🔁 13    💬 2    📌 4

💙💙💙

28.01.2026 22:23 — 👍 1    🔁 0    💬 0    📌 0

TW:
More deaths of #pwME 💙

@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?

@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal

28.01.2026 22:22 — 👍 2    🔁 0    💬 0    📌 0
Over the last months and particularly one week Paula deteriorated very quickly. Talking became harder ...and Paula loved to talk.Feeding more difficult. Eating tiring needing longer breaks between each teaspoon. It took 3 hours to finish a small bowel of puree. We stopped watching short funny shows together. Forced into a bent over position, no longer getting to a window. She had loved standing with support briefly at the window, smelling fresh air, watching Hurley play in the garden.

Over the last months and particularly one week Paula deteriorated very quickly. Talking became harder ...and Paula loved to talk.Feeding more difficult. Eating tiring needing longer breaks between each teaspoon. It took 3 hours to finish a small bowel of puree. We stopped watching short funny shows together. Forced into a bent over position, no longer getting to a window. She had loved standing with support briefly at the window, smelling fresh air, watching Hurley play in the garden.

Learned of another death of a friend with ME/CFS, this time someone I’d known for six years.

Very grateful to all of you who support work to relieve this terrible suffering.

20.01.2026 00:57 — 👍 83    🔁 24    💬 13    📌 1

🫂💙🩵

28.01.2026 04:47 — 👍 1    🔁 0    💬 1    📌 0

‼️Who has big following?
Please tweet me to them!

I need a safe place to live in #Melbourne
🚨Please help me escape #abuse/ #neglect / #CoerciveControl / #DV

#MutualAidMonday
#MutualAidAustralia
#HelpFolksLive #HelpSky #FundSky #MutualAidVoid #PWD #MARequest
💕💸🏡🏠🥺

See below 👇

19.01.2026 06:09 — 👍 6    🔁 8    💬 0    📌 1
Preview
### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

Please help me escape abuse.
Anything helps.
Info in Chuffed link.

💸Crowdfund: www.chuffed.org/project/1619...
☕️BMaC: buymeacoffee.com/Halcionandon
🎁Amazon: www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon

Please share.

#MutualAidAustralia
#MutualAid #HelpSky #MutualAidMonday

05.01.2026 01:12 — 👍 4    🔁 14    💬 2    📌 5
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EXCLUSIVE: the DWP has a secret team planting benefit fraud propaganda in the mainstream media In an exclusive report, the Canary reveals that the DWP has internal guidance on placing propaganda in the MSM - including doxing claimants

The DWP has a secret team planting benefit fraud propaganda in the mainstream media

EXCELLENT investigation by my @thecanaryuk.bsky.social
colleague Hannah Sharland www.thecanary.co/uk/analysis/...

26.01.2026 19:44 — 👍 52    🔁 39    💬 4    📌 6

@suey2y.bsky.social 🫂 x

27.01.2026 15:11 — 👍 1    🔁 0    💬 0    📌 0
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An NHS hospital is starving a severe ME patient and has now stopped giving her fluids Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk

"An NHS hospital is starving a severe #ME patient and has now stopped giving her fluids"
@georgemonbiot.bsky.social @tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social @wesstreeting-mp.bsky.social

#ME #pwME #MedSky #MEAwareness
www.thecanary.co/uk/analysis/...

23.01.2026 12:01 — 👍 16    🔁 14    💬 1    📌 2

Governments, public health and medical authorities know much of this is caused by COVID & other infections, that a lot of this is Long Covid, which they choose to do nothing about and cover up.

They know it. They're lying about not knowing why. They're doing what the tobacco industry did.

26.01.2026 16:00 — 👍 22    🔁 10    💬 2    📌 0

Two years today since my friend @dutchlauren.bsky.social passed away 🕯💙

Going to eat some nuggets (which she loved) and will try to watch one of her favorite movies.

#severeME
#reMEmberLauren

27.01.2026 06:55 — 👍 23    🔁 4    💬 3    📌 1
Preview
An NHS hospital is starving a severe ME patient and has now stopped giving her fluids Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk

Savannah is asking for anyone who can to email the chief medical director at the hospital. The Canary has drafted a template email, which can be sent as is, or adapted.

Send an email to stop this abuse & improve care for Savannah before it's too late!

#severeME

www.thecanary.co/uk/analysis/...

23.01.2026 14:21 — 👍 20    🔁 11    💬 1    📌 0

🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
“It’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵

1/

21.01.2026 22:46 — 👍 24    🔁 2    💬 1    📌 4

It’s been used in the military since at least 2018 – possibly 2016. Loads of contracts since then unfortunately.

22.01.2026 11:58 — 👍 0    🔁 0    💬 0    📌 0

🫂

22.01.2026 11:57 — 👍 0    🔁 0    💬 0    📌 0

@teamlabouruk.bsky.social this is the behaviour that you are condoning. Not condemning this and other illegal acts is complicity.

22.01.2026 01:47 — 👍 0    🔁 0    💬 0    📌 0

@teamlabouruk.bsky.social this is the behaviour that you are condoning. Not condemning this and other illegal acts is complicity.

22.01.2026 01:43 — 👍 0    🔁 0    💬 0    📌 0

@teamlabouruk.bsky.social this is the behaviour that you are condoning. Not condemning this and other illegal acts is complicity.

22.01.2026 01:36 — 👍 0    🔁 0    💬 0    📌 0
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Tell Your Story A chance to be heard

Today's Post "Tell Your Story"
open.substack.com/pub/undercla...
Uncovered scandals, injustices, unlikely breakthroughs. I want to hear about them all.
Pls read RT and subscribe

16.01.2026 10:17 — 👍 2    🔁 5    💬 0    📌 0
Trial By Error: More of the Same Old Nonsense from the "Oslo Chronic Fatigue Consortium" | Virology Blog By David Tuller, DrPH It is extremely dispiriting to have to respond to yet another wail of desperation from psychologizing dead-enders who have lost contro ...

Sorry had to stop & rest before but meant to add that lots of the consortium are also linked to Uni of Oslo. Helena Liira is a member & is former Editor in Chief of the Scandinavian Journal of Primary Health Care, which published the piece Tuller wrote about – link below.

And… must rest again now!

19.01.2026 21:56 — 👍 1    🔁 0    💬 1    📌 0

Interesting!

I also note RH’s ties to Uni of Oslo. May be incidental but interesting given the ‘Oslo Chronic Fatigue Network’ (previously Consortium) that @davetuller1.bsky.social has written about has lots of Lightning Process advocates & includes numerous key BPS people on the steering committee.

19.01.2026 20:54 — 👍 1    🔁 0    💬 1    📌 0
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The emotional determinants of health: The Lancet-London School of Hygiene & Tropical Medicine Commission - PubMed The emotional determinants of health: The Lancet-London School of Hygiene & Tropical Medicine Commission

“I even withdrew my participation as an invited contributor to a series of papers about emotional determinants of health for The Lancet after I discovered this figure was a commissioner.”
Mendenhall, Substack 18 Jan

Found a 2020 Lancet article of the same name. Could commissioner be Richard Horton?

19.01.2026 18:45 — 👍 1    🔁 0    💬 1    📌 0

@somethingchronic is following 19 prominent accounts