Rare Disease Mom's Avatar

Rare Disease Mom

@rarediseasemom.bsky.social

Lindsay. Democratic nominee for VA House of Delegates district 69 (I had to resign from running sadly due to unexpected health emergency) Super focused on my local community ( Hampton Roads ) and rare disease advocacy.

271 Followers  |  534 Following  |  22 Posts  |  Joined: 13.11.2024  |  1.762

Latest posts by rarediseasemom.bsky.social on Bluesky

Post image

To all my Bluesky friends, please join me in this effort to fight back and protect our democracy! ๐Ÿ’™
#Resist

27.02.2025 17:24 โ€” ๐Ÿ‘ 12625    ๐Ÿ” 3647    ๐Ÿ’ฌ 342    ๐Ÿ“Œ 167
The photo is a fake missing persons report of Congressman Rob Wittman. It has a photo of him to the right with various veiled insults on the left. His contact information is located on the bottom.

The photo is a fake missing persons report of Congressman Rob Wittman. It has a photo of him to the right with various veiled insults on the left. His contact information is located on the bottom.

Attention: Missing (in the middle of a Constitutional Crisis) Congressman!

25.02.2025 19:13 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Video thumbnail

Possibly the best clap back against ignorant antivaxxers.

05.01.2025 16:04 โ€” ๐Ÿ‘ 36346    ๐Ÿ” 9488    ๐Ÿ’ฌ 1216    ๐Ÿ“Œ 876

I wrote longer discussion board posts in college than that.

11.12.2024 14:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The judge who decided there wasnโ€™t enough evidence last month to charge him with the first domestic arrest should really be investigated.

09.12.2024 21:24 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

If you think the reason the Republicans won is because of Fox and other MSM youโ€™re truly missing the entire information ecosystem that exists. Most people arenโ€™t even watching MSM anymore. Itโ€™s a massive diverse information world. Remember mocking Trump for going on WWE and comedy podcasts?

Yeah.

21.11.2024 14:16 โ€” ๐Ÿ‘ 2393    ๐Ÿ” 276    ๐Ÿ’ฌ 187    ๐Ÿ“Œ 32

Every book I want to read is already checked out, and honestly itโ€™s a good problem to have but frustrating regardless.

20.11.2024 18:39 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™ve seen book lists floating around, and just finished up my to be read. Can someone tag me in or point me in the direction of disability activism books? Trying to see what gems are out there Iโ€™ve overlooked.

19.11.2024 17:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

My husband is a teacher! How funny lol Iโ€™d love any suggestions because the programs weโ€™ve found so far arenโ€™t very inclusive.

19.11.2024 16:07 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Iโ€™ve been doing really well! Took a much needed break from social media and feel ready to be back. Heโ€™s in 6th grade and almost a teenager. How are your kids?

19.11.2024 16:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Thatโ€™s how weโ€™re feeling right now trying to find a new virtual school for next year. His current one is amazing, but stops at 6th grade.

19.11.2024 13:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
For 2nd year, Chesapeake Bayโ€™s striped bass population is down. Regulators will decide if more rules are needed. According to a 2024 survey from the Virginia Institute of Marine Science, this yearโ€™s average was โ€œsignificantly lowerโ€ than the historical average.

In the Chesapeake Bay: โ€œThe current trajectory of our striped bass population is alarming.โ€ www.pilotonline.com/2024/11/17/f...

19.11.2024 02:21 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Schumer at the lectern, hands gripping over the top of it.

TEXT:

MR. SCHUMER: I MOVE TO PROCEED TO EXECUTIVE SESSION TO CONSIDER CALENDAR 711.

Schumer at the lectern, hands gripping over the top of it. TEXT: MR. SCHUMER: I MOVE TO PROCEED TO EXECUTIVE SESSION TO CONSIDER CALENDAR 711.

This is the shot of the night.

Chuck Schumer is filing cloture on several judicial nominations. The Republicans are forcing them to go into executive session separately for each nomination. Schumer and the Democrats are just pushing ahead. Here was Schumer before the 10th vote, by my count, began.

19.11.2024 02:48 โ€” ๐Ÿ‘ 6137    ๐Ÿ” 1142    ๐Ÿ’ฌ 109    ๐Ÿ“Œ 113

It really is! I have a whole new lens to view my past/present and future. Like the Christmas ghost but autism haha

19.11.2024 01:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Bluesky tip for newbies: Bluesky has no real algorithm. Likes here do nothing but show the poster that you enjoyed their content.

That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. ๐Ÿ™‚

18.11.2024 10:27 โ€” ๐Ÿ‘ 26416    ๐Ÿ” 9196    ๐Ÿ’ฌ 20    ๐Ÿ“Œ 12

My husband is a teacher. He promised his students heโ€™d shave his beard in whatever weird way they request if they get good test scores. They did, and heโ€™ll be walking into work with cat whiskers.

18.11.2024 14:36 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Finding out other adults are also finding out theyโ€™re autistic late in life has been so incredibly comforting.

18.11.2024 03:46 โ€” ๐Ÿ‘ 9    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Such a great idea!

18.11.2024 02:06 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Such great advice/how to instructions!

18.11.2024 02:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Got the #DisabledInSTEM Starter Pack up and running!

Can't wait to see the list grow and meet new connections! ๐Ÿ’œ

go.bsky.app/SwJ4rFX

17.11.2024 18:19 โ€” ๐Ÿ‘ 151    ๐Ÿ” 77    ๐Ÿ’ฌ 39    ๐Ÿ“Œ 9
Preview
The Xitter Exodus and What it Means for the Disability Community Disabled and chronically ill people have long used Twitter/X for community, fundraising, companionship and support. With folks leaving in droves - where will we go and how can we stick together?

If you know people still on twitter who WANT to leave but are struggling to make the leap - my latest article is designed to ease the transition.

Itโ€™s got tips and tricks as well as suggestions for how to ensure communities stick together.

Small ๐Ÿงต of other helpful articles Iโ€™ve found /1

17.11.2024 03:38 โ€” ๐Ÿ‘ 319    ๐Ÿ” 133    ๐Ÿ’ฌ 22    ๐Ÿ“Œ 5
Post image

I didnโ€™t purchase this, and am filled with regret.

17.11.2024 20:08 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Homemade apple fritters, my apple cider donuts were a fail but these are so good!

17.11.2024 17:08 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Local Food Directories: Community Supported Agriculture (CSA) Directory | Agricultural Marketing ServiceLock

I recently found out about Community Shared Agriculture! It appears to have some financial obstacles that may be a barrier to entry, but if you already get fresh veggies & fruit it could be a cost effective way to develop stronger communities vs mega store profits.

www.ams.usda.gov/local-food-d...

17.11.2024 16:29 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I blocked an entire list and will continue to. No engagement from me for that garbage.

16.11.2024 22:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I left Twitter when Elon bought it, and sort of hibernated from social media. Blue sky is nice, early Twitter vibes without the popularity contest and bots.

16.11.2024 13:49 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A photo of a diluted tortie cat, mostly grey in color with some orange. The cat has light green eyes. There is a bed with a crochet blanket on it and green walls in the background.

A photo of a diluted tortie cat, mostly grey in color with some orange. The cat has light green eyes. There is a bed with a crochet blanket on it and green walls in the background.

Happy Saturday.

16.11.2024 12:28 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Am I no one? Or am I invisible, if so neat. Itโ€™s a super hero app.

16.11.2024 01:24 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@rarediseasemom is following 19 prominent accounts