(have quite a bit of free time this week and next before being busy again, should anyone be in need of some words - I can do columns/features/profiles/book reviews/basically everything but news stories, and can be found on marie.s.leconte@gmail.com)
07.07.2025 11:04 β π 42 π 16 π¬ 3 π 0
Very sad.
04.07.2025 06:10 β π 1 π 0 π¬ 0 π 0
Osage Orange, Maclura pomifera, is a beautiful wood from the southern Midwest! The heartwood is golden to bright yellow, which usually ages to a darker medium brown with time, primarily due to exposure to UV light. Osage Orange is extremely durable and is considered to be one of the mo
MS DINOSAURS
Multiple Sclerosis
My brain on MS
I am so excited to post a picture of the artwork by Santa Fe community college student art exhibit Artist Richelle Elder.
She made it in the wood, Turning Class from Osage Orange, Maclura pomifera, wood.
Title: Mourning Burl
02.07.2025 16:28 β π 3 π 1 π¬ 0 π 0
I have this. I havenβt worked out how to manage it.
02.07.2025 05:32 β π 3 π 0 π¬ 0 π 0
Really useful. Thank you.
11.06.2025 07:11 β π 1 π 0 π¬ 0 π 0
I am sad for him.
05.06.2025 05:51 β π 1 π 0 π¬ 0 π 0
The glands at the back of my throat.
04.06.2025 06:21 β π 2 π 0 π¬ 0 π 0
I hadnβt spotted him! But youβre right.
02.06.2025 21:45 β π 0 π 0 π¬ 0 π 0
Iβve really enjoyed it. This week Iβve got my hubby hooked and so Iβm watching it again with him.
02.06.2025 21:42 β π 1 π 0 π¬ 0 π 0
So, I think it's time I begin, in detailed specifics, talking about the mess that is Unbound / Boundless as a book publisher, in essence stealing most of a years royalties from me and many other authors, as a result of poor financial decisions, and legal BS.
Please read and share this thread.
31.05.2025 09:33 β π 5446 π 2686 π¬ 101 π 179
Good new for Vets / Veterans!
20.05.2025 13:27 β π 1 π 1 π¬ 0 π 0
π€
23.05.2025 13:30 β π 2 π 0 π¬ 0 π 0
This made me so angry.
17.05.2025 12:16 β π 2 π 0 π¬ 0 π 0
Has anybody else spotted David in a bit part in Andor?
#TheArchers
14.05.2025 18:44 β π 4 π 0 π¬ 2 π 0
Vidofludimus - a Slam Dunk, or not?
Many will say there is no place for teriflunomide me-too in the MS therapeutic landscape. Do you agree?
#MS_Selfie Vidofludimus - a Slam Dunk, or not?
Many will say there is no place for teriflunomide me-too in the MS therapeutic landscape. Do you agree? Would you participate in the iVido study? => buff.ly/yABfmU6
09.05.2025 12:45 β π 1 π 1 π¬ 0 π 0
Friends living with #MS.
Does anybody else find that if they start shivering at all, it becomes a rib-shattering endeavor that lasts several minutes? Its like a Charley-horse from my shoulders to my hips, and its just indesctibable.
Anybody experience similar? Anything help? Struggling here.
09.05.2025 18:23 β π 1 π 1 π¬ 0 π 0
At this point it would be hard work. I donβt think heβd be interested.
10.05.2025 07:16 β π 3 π 0 π¬ 0 π 0
Be Part of Research - Trial Details - SETTLE
${dotPageContent.seodescription}
#MSers in or able to travel to London this trial might be for you bepartofresearch.nihr.ac.uk/trial-detail... #MS
08.05.2025 20:53 β π 2 π 1 π¬ 0 π 0
Amazing what turns up when you start clearing out the garage π€£π€£π€£
04.05.2025 17:43 β π 1 π 1 π¬ 0 π 0
A tree trunk surrounded by bluebells with dappled sunlight
A very merry Beltane to you all
01.05.2025 05:23 β π 27 π 2 π¬ 1 π 0
Clare sitting smiling on her paddle board
View across Poole Harbour
View across Poole Harbour
View across Poole Harbour
Back out in my happy place, paddle boarding by Brownsea Island
This is what you can do when MS is playing nicely - grabbing every opportunity, use it or lose it!
#MSAwarenessWeek
30.04.2025 13:59 β π 4 π 1 π¬ 0 π 2
YouTube video by theMSguide | Riding Canada 4 MS
ALL WELCOME - THE CHALLENGE STARTS TOMORROW!!
ALL WELCOME - THE CHALLENGE STARTS TOMORROW!!
youtube.com/shorts/4VKEw...
30.04.2025 21:19 β π 1 π 1 π¬ 0 π 0
Fellow MSers!
Does anyone have any experience with a Dictus band, or similar, to help with foot drop? Any advice and reviews greatly appreciated, thank you π§‘
29.04.2025 14:49 β π 4 π 1 π¬ 1 π 0
Over 150,000 of us in the UK live with MS but most people don't know anything about the disease or what life with MS is like.
It's MS Awareness week, time to find out more & talk about MS.
28.04.2025 19:03 β π 1 π 2 π¬ 0 π 0
Herbies Exeter 25 years ago. Itβs still there but now Iβm diagnosed as a Coeliac I wonβt be able to have their burger.
24.04.2025 17:05 β π 0 π 0 π¬ 0 π 0
@feargalsharkey.bsky.social
22.04.2025 17:05 β π 2 π 2 π¬ 2 π 0
anyone want a gift sub? enquire below
16.04.2025 18:24 β π 4 π 3 π¬ 0 π 0
Great piece!
15.04.2025 17:47 β π 0 π 0 π¬ 0 π 0
Q&A 85: RIS or RRMS? What about PPMS?
Please tell her that both tolebrutinib and fenebrutinib, two new-generation BTK inhibitors, are in trials to treat primary progressive MS. buff.ly/NsuRLbx
14.04.2025 05:57 β π 4 π 1 π¬ 1 π 0
Bronx-born Philadelphian. #Journalist. #Author of 'brilliant but disturbing' books from The New Press and Mumblers Press. No longer on Substack; find me on Medium, WagingNonviolence.org, On Watch, and an oped near you. #Disabled from 40 yrs of MS.
π Green MP for North Herefordshire
Here for BBC Radio 4 show The Archers. She/her. π¬π§π³οΈβππͺπΊ
God is love.
We are our brotherβs keeper.
Kindness is the better path.
May it be so.
-John Pavlovitz
(Not likely to reply to DMs.)
MS Warrior for 30+ years.
Proud Mama Bear! β€οΈπ§‘ππππ
She/ Her
London's oldest & finest bookshop, since 1797. Remarkable booksellers, signed editions and fascinating author events.
I guess I am going to Bluesky...
π πΉ πΆ πΊ π§‘
Music, Multiple Sclerosis, Shenanigans
Co-Manage God Street Wine
Sewest, crafter, LARPer. I enjoy learning new skills, costuming, animals, reading, and going on adventures.
Diagnosed with Multiple Sclerosis Dec 4th, 2012. Currently writing something π€«
Trying to reach fitness goals, reading goals, writing goals, eat what I like (and not gain the weight back π
), all while trying not to melt in TX
π§‘
Punk rock, love, and reading. Oh! And some sewing.
Foreign correspondent Sky News
sometimes an artist mostly a simp π€
husband of an indie game dev πΎ (inkus.ca)
greyscale colourblind
23
ppms+cptsd
π§ββοΈ
π΅π±π¨π¦
business account: @hauntedpuppetsco.bsky.social
also me: @satanizedskies.bsky.social
#theworldofvekari
π« NO GEN AI π«
Weβre here to provide support for people living with multiple sclerosis and drive research into better treatments. Together, we are strong enough to stop MS.
https://www.mssociety.org.uk/
A 3.5-year research project on digital interventions for #multiplesclerosis at @kingsioppn.bsky.social funded by @mssocietyuk.bsky.social
Link to survey on sexual difficulties: https://shorturl.at/bMjEz
π¨ποΈArtist/Designer/Photographer/Crafter πΌοΈπ·
π₯ Spoonie/Disabled βΏ Neurodivergent
πΈοΈ Alternative&WitchyπΈοΈ
π¦ΉββοΈShe/herπ§ββοΈ
π«No Ai/NFT
https://beacons.ai/gelfycheriru - for all links
https://ko-fi.com/gelfycheriru - for support, memberships, and shop
Doting grandmother, among other things.
Yes, itβs just a V. Iβm divorced, would have more than two #cats if allowed, and have #MS. Always a #liberal; βwokeβ; #atheist/humanist forever; love animals, books, and music (vocalist).
*Straight fem, π«camgirls or empty profilesβ¦ Iβll block you.
music β’ cricket β’ Southampton FC β’ green socialist β’ humanist β’ republican (not that kind) β’ #thearchers
ππ§‘π #UniteBlue #Caregiver #DisabilityRights, husband has #MultipleSclerosisπ§‘ #LGMD2L self π#Dogs #LGBTQ+Allyπ Mom #LegalizeitπΏ #MedicalResearch #KindnessMatters #BLM retired educatorMSEd Leadership #RepoRights π«MAGA,crypto! IFBR asap! ππ¦
Mysageadvice.com
Exeter, UK. Interests include Science, Technology, Medicine, Healthcare, and Disability Rights. Partner of Heart/Lung transplant recipient.
Here to escape the toxicity of X, but you can find me there too as @MartinJBonner
Ex rugby player, ex triathlete, ex runner, ex cyclist. MS since 1990, now SPMS, doing as much as I can while I still can!