ALK Positive Inc.'s Avatar

ALK Positive Inc.

@alkpositive.bsky.social

Patient-driven organization seeking a cure and working to improve patients' quality of life and life expectancy worldwide.

293 Followers  |  350 Following  |  210 Posts  |  Joined: 19.11.2024  |  1.5267

Latest posts by alkpositive.bsky.social on Bluesky

Post image

This Sunday at 7pm ET ๐Ÿ’™

tALKing about Treatments: An ALKtALK Roundtable for ALK-positive patients & care partners.

Connect. Share. Learn from others who truly get it.

No medical advice โ€” just real conversation and community.

Join us: alkpositive.org/event/alktal...

See you there!

13.02.2026 22:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

ALK+ community,

Join us tonight at 7pm ET for a Healing Arts discussion on clinical trials with Jeff Sturm, Dr. Ken Culver, and Sadia Yaakov.

A patient-centered space to ask questions, learn what to expect, and explore your options with clarity and support.

See you there!

12.02.2026 15:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

An ALK diagnosis can turn your world upside down. In this community, we learn how to turn it downside upโ€”finding people who understand the scans, the waiting, and the hope.

This #WorldCancerDay, we celebrate our ALK family. ๐Ÿ’™
#UnitedByUnique #LungCancer #Community

04.02.2026 20:58 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image Post image Post image

13 years after a stage IV ALK+ lung cancer diagnosis at age 15, Jake Legasse is not just living, but thrivingโ€”and even running marathons. Learn how Jake thinks about mindset and copes with uncertaintyโ€”and his advice to people with ALK+. alkpositive.org/blog/patient...

27.01.2026 16:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

In this clip from Cancer Nurses Today, Dr. Ken Culver shares how nurses help people with lung cancer navigate treatment and decisions.

At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.

22.01.2026 13:46 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

โœจ Together, we did something extraordinary. โœจ
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.

Every gift fuels hope, research, and connection.
From the bottom of our heartsโ€”thank you. ๐Ÿ’™

#Grateful

16.01.2026 16:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐ŸŒŸ Watch Our First ALKtALK of 2026!

Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the โ€œQueen of ALK,โ€ as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...

15.01.2026 13:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

What does progress look like for the ALK-positive community?

At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancerโ€”bringing science, real-world patient insight, and unmet needs directly to industry and researchers.

14.01.2026 18:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐Ÿ’™ Weโ€™re feeling the love.
In-person tickets for the 2026 ALK+ Summit are sold out.

You can still join the waitlist or attend live virtually โ€” with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...

13.01.2026 21:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

Meet Sara J. ๐Ÿ’™
A facilitator of our Multilingual Chat / Charla Multilingรผe, a welcoming space for patients & caregivers worldwideโ€”where language is never a barrier to belonging.

๐Ÿ“… Jan 13, 3 PM ET
๐Ÿ”— Link in bio
#StrongerTogether

13.01.2026 00:33 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐Ÿ‘‘ Dr. Alice Shaw returns to ALKtALK
๐Ÿ—“ Sunday, Jan 11, 2026 | 7pm ET

A global leader in ALK-positive research, Dr. Shaw shares the latest scienceโ€”including an emerging MTAP deletion clinical trialโ€”and what it could mean for future treatment.

๐Ÿ’ฌ Live Q&A

09.01.2026 21:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

We're honored to see ALK Positiveโ€™s grant supporting Dr. Alice Shawโ€™s research at Dana-Farber featured in Dana-Farber Impact Magazine. Funding MTAP research in ALK+ lung cancer to drive better outcomes for patients worldwide.

๐Ÿ“– alkpositive.org/blog/alk-pos...

09.01.2026 15:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐Ÿ“ฃ Only 18 in-person tickets left for the 2026 ALK+ Summit!

Once those are gone, weโ€™ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us

07.01.2026 23:37 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Booking your trip to the 2026 ALK Positive Summit? โœˆ๏ธ
Use Health Care Fares to save on flights and give back โ€” they donate $10 to ALK Positive for every ticket booked.

๐Ÿ‘‰ Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack

06.01.2026 22:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

2026 ALK+ Summit registration is open!

Join us July 24โ€“26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community.

Register now: secure.qgiv.com/for/2026alks...

05.01.2026 12:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Theyโ€™re still here โ€” 10+ years later.

This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support.

Help us reach our annual goal.
secure.qgiv.com/for/alkposit...

30.12.2025 00:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐Ÿšจ $10,000 MATCH CHALLENGE ๐Ÿšจ
Every donation made before December 31 is DOUBLED.

Your support fuels research, education, and real hope for the ALK-positive community.

โœจ Give today. Make it count twice. secure.qgiv.com/for/am-ml/

19.12.2025 20:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Now Streaming: ALKtALK Replay ๐ŸŽฅ

Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancerโ€™s PowerRD 2 Cure ALK+ Lung TeamLab.

โ–ถ๏ธ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...

#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime

19.12.2025 17:04 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐ŸŽฅ Replay now: Your Holiday Toolkit on ALKtALK available on YouTube

Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.

18.12.2025 17:47 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

When Colin was diagnosed with ALK+ cancer, the odds of reaching 5 years were just 2 in 100. Nearly 10 years later, heโ€™s here because clinical trials made todayโ€™s treatments possible.

Trials donโ€™t just help participants. They help all of us.
alkpositive.org/clinical-trials
#MoreResearchMoreTime

17.12.2025 16:47 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Clinical trials are beginning to focus on early-stage ALK+ lung cancer.
Read more to see which trials are open and what theyโ€™re studying.
alkpositive.org/blog/clinica...

16.12.2025 17:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Now open: an independent medical education grant from Pfizer + ALK Positive supporting people with advanced ALK+ NSCLC and care partners.

Focus: ALK therapy prep, side-effect management & shared decision tools.
Apply by Feb 18, 2026:
alkpositive.org/blog/alk-pos...

15.12.2025 16:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

If you thought 2025 was specialโ€ฆ just wait. ๐Ÿ’™

2026 ALK+ Summit registration is opening soon โ€” you're not going to want to miss out on this one.

#ALKSummit

14.12.2025 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Good news for ALK+ patients: Cigna Healthcare now covers ALUNBRIGยฎ (brigatinib) as of 10/1/25, bringing coverage to ~99% of commercial lives.

Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com

13.12.2025 17:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

ALK Positive Inc. is proud to announce the 2025 AACRโ€“ALK Positive Lung Cancer Research Fellowship grantee: Alice Tzeng, MD, PhD (Dana-Farber). Her research explores why resistance to lorlatinib developsโ€”and how we can overcome it to drive more durable treatments.

alkpositive.org/blog/alk-pos...

12.12.2025 22:15 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

This Sunday (Dec 14), Jesse Boehm returns to #ALKtALK with updates on Break Through Cancer's PowerRD 2 Cure ALK+ Lung Cancer TeamLab.

Join live for the latest progress + Q&A.

#ALKPositive #LungCancerResearch #MoreResearchMoreTime

12.12.2025 13:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Get ready โ€” 2026 ALK Positive Summit registration opens soon! ๐Ÿ”ฌโœจ
Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey.

#ALKSummit #RegistrationOpeningSoon

11.12.2025 23:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

We proudly introduced the Colin Barton Spirit of Courage Award at the ALK Summit โ€” celebrating a leader whose vision, advocacy, and impact have transformed ALK Positive and fueled hope for patients. ๐Ÿ’™
Read More: alkpositive.org/blog/the-col...

09.12.2025 15:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

This Sunday @ 7pm ET on ALKtALK: Dr. Karen Schurgin returns to help patients and caregivers navigate the holidays with honesty, compassion, and strength.

Join us for real talk, grounding tools, and Q&A.

05.12.2025 20:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Weโ€™re proud to partner with @GO2forLungCancr for the 2026 Lung Cancer Voices Summitโ€”the nationโ€™s largest gathering of advocates, survivors & professionals. Washington, DC | March 1โ€“3 Learn more: go2.org/voicessummit

04.12.2025 15:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@alkpositive is following 20 prominent accounts