@thewhn.bsky.social @yaneerbaryam.bsky.social
04.11.2025 19:38 — 👍 0 🔁 0 💬 0 📌 0@catsocialintel.bsky.social
Creative. Data.. Innovation. Changemaker…. Founder - @laboflivedexp.bsky.social Also #pwme #pwlc #longcovid
@thewhn.bsky.social @yaneerbaryam.bsky.social
04.11.2025 19:38 — 👍 0 🔁 0 💬 0 📌 0Shows x3 speakers on Emerging market pillars : clean, healthy, sustainable for a CSI Ecosystem online convening happening Nov 5th
We’re all set for our first online convening tomorrow to bring business, finance + design together in a virtual innovation room!
Exploring new markets of clean air, biomed + exclusion as innovation…
Leaders, DM me quickly to request a last min invite. 🚀
The root cause of the non-reporting is that there are data capture failures everywhere in our systems: - bsky.app/profile/cats...
02.11.2025 17:35 — 👍 3 🔁 0 💬 1 📌 0Shows Three layers representing three UK data systems are failing simultaneously - those out of the system can see it clearly: HEALTH SYSTEM: NHS can't record multi-system conditions BENEFITS SYSTEM: Misclassifies biological reality HR ABSENCE SYSTEM: Doesn't capture cumulative immune damage The result: Employers picking up costs. £66.3BN by 2030*
Here’s what I’m telling Boards and Sustainability Leaders now…
A triple data failure in UK health systems = flying blind
(CSI Ecosystem is the corporate facing side of the marketplace we are building with @laboflivedexp.bsky.social )
Last day to sign this @thewhn.bsky.social letter to @who.int 🔥🔥 to get proper masking into healthcare everywhere
31.10.2025 16:47 — 👍 2 🔁 1 💬 0 📌 0Also felt he made it clear that he wasn’t aware of post-acute infectious disease early/pre pandemic? Another leader totally unaware of the devastation of ME?
20.10.2025 16:59 — 👍 0 🔁 0 💬 0 📌 0My apologies for correcting the prestigious The Lancet, but we are still in a pandemic. We are not in a post-Covid world. Our collective health isn't better than before 2020 😶
14.10.2025 21:58 — 👍 99 🔁 14 💬 3 📌 2ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Pleased to see my @bylinetimes.bsky.social article from last year on #LongCovid #CleanAir #pwME being shared again.
Thanks @thewhn.bsky.social 🤩
Lovely to meet you today. Very thought provoking conversation!
Catch up soon.
Thank you! Look forwards to planning next steps together
15.05.2025 18:17 — 👍 0 🔁 0 💬 0 📌 0🔥🔥
15.05.2025 15:37 — 👍 1 🔁 0 💬 0 📌 0@longcovidadvoc.com
@kirsties.bsky.social
@smartairuk.bsky.social @plumskyjam.bsky.social @salwitcher.bsky.social @1goodtern.bsky.social @ruthbrooker.bsky.social @catinthehat.bsky.social
15.05.2025 15:31 — 👍 2 🔁 0 💬 1 📌 0Helping to protect our human biosystems, workplaces, communities, schools, hospitals with indoor #cleanair and #biomed futures funding is just smart business 🤓
15.05.2025 15:31 — 👍 3 🔁 0 💬 1 📌 0Great to chat to @peterholbrook.bsky.social @socialenterpriseuk.bsky.social today on the ongoing pandemic impacts to SMEs and livelihoods, and an urgent need to mobilise social ent finance….
15.05.2025 15:31 — 👍 8 🔁 2 💬 2 📌 0We sombrely mark #MEAwarenessDay #WorldMEDay 2025 with an extract from our latest article:
WE ARE WORKING TO SAVE THE PLANET, WHILST LETTING HUMAN BIOSYSTEMS & ENERGY COLLAPSE AROUND US
Time for a new approach.
We’ll be launching a comprehensive design lab to design what it all looks like in practice, built as digital for community + shared revenue model
09.05.2025 17:17 — 👍 1 🔁 0 💬 0 📌 0Plan is to start with social impact/ small biz/ b corps and build out from there…
09.05.2025 17:13 — 👍 1 🔁 0 💬 1 📌 0This is excellent:
"Enough is enough" - Marit Stafseth addresses the Oslo Chronic Fatigue Consortium
"...they ignore all facts that do not support their theory..."
"...It's as if the conclusion was written in advance..."
#MECFS #LongCovid @meforeningen.bsky.social
@exceedhergrasp1.bsky.social would love your thoughts on this new direction! 🤓
09.05.2025 16:26 — 👍 0 🔁 0 💬 1 📌 08/ Here’s step one on how we do this👇👇
bsky.app/profile/labo...
7/ We have to build a new finance system that invests in protecting human health and longevity
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 06/ We have to transform how we think about human energy and sustainability at a fundamental societal level
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 05/ But traditional advocacy routes require a functional government and healthcare systems - which doesn’t exist anymore
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 04/ Each week I witness the devastating impact of policy decisions that treat those whose bodies are in biosystems and energy collapse as disposable.
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 03/ The urgency is growing every day.
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 02/ I’ve come to the conclusion we have to build something entirely diffferent.
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 01/ As an innovation systems analyst/ designer, I’ve spent years talking to leaders across business, health and society and months deconstructing all the barriers that those in the disease, disability, clean indoor air and biomedicine advocacy world are facing…
09.05.2025 16:24 — 👍 0 🔁 0 💬 1 📌 0