Ness

Anyone in Melbourne able to help Anna find a safe room to move into?

Do you know any #Naarm #FDV #disability support people? Maybe there’s some on here? Sometimes they do work outside official employment, but I don’t know the right people.

Regular people are welcome to help. This is the hardest one. Nobody in Melbourne wants to help.

I can’t do this alone.

E-books When Tortoise joins Gecko on the high seas, he learns that the stories we're told and the ones we tell transform us. With talking animals, pirates, empire, & buried texts, this shapeshifting philosoph...

The Amazing Adventures of Tortoise & Gecko (Part 1) is complete!

A tale of talking animals, pirates, empire, & buried texts, you can download a free copy here: theamazingadventuresof.tortoiseandgecko.au/p/e-books

#tortoiseandgecko #sff #books #ebooks #booksky 🪐📚💙

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

WE MADE THE GOAL
chuffed.org/project/1619...

We will keep it open because Anna will certainly have more expenses relating to moving, health and generally setting up her life again after she finds a place

NEXT STEP - need a room to move into and an advocate in Melbourne

Also PLEASE if anyone can help Anna out with a room or advocacy, making phone calla on her behalf to access services or any support in Melbourne please email her directly

Halcionandon at gmail dot com

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

Thank you SO much for getting us 80% of the way there!
Paypal is now an option for payment

Anna's expecting 44 degrees in the heatwave today and has no aircon. Help her get out of there so she doesn't have to suffer through another heatwave or at the hands of her family again

#MutualAidAustralia

I have an increase in headaches & nausea, and new sudden vomiting with POTS from longcovid. It’s not improving after stopping Mestinon. Anyone have recommendations for things I can ask my neuro’s NP next week?

$2,995 Raised of $5,000!

chuffed.org/project/1619...

The link has non-financial ways to help if you can't give $

(Help would be easier given by people in Australia though)

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

#Urgent Appeal: Help Anna Escape #Abuse – Time is Running Out!

@phonakins.com kindly helped make a Chuffed ♥️

Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms.

chuffed.org/project/1619...

#SevereME #MutualAid
#Disability #MECFS #ChronicIllness

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

I have helped Anna @halcionandon.bsky.social to set up a chuffed to raise funds the help her have a chance!

Anna lives with severe ME and is abused and neglected by her family - Her doctor fears that staying in this environment will kill her

Please share widely!

chuffed.org/project/1619...

Oh my word, this was an exercise in tenacity on your part, thank you🙏 It's like academia can't fathom that there might be incompetence at any step in the process --> no accountability. Good on you for pursuing it relentlessly (super poor form for ethics to fob you off like that)

You might be thinking, "CPSC, does a dry Christmas tree really burn that much faster than a well-watered tree?"

Friend, let's find out together by watching this PSA.

...I didn't ask if they meant the overlap is only with their MECFS-subtype LC patients, though they are ME/CFS-aware.

Coincidentally, someone in my life who's a general practitioner plus a long-term survivor of polyarteritis nodosa recently said they see loads of overlap between their long covid patients and their own PAN symptoms. And that antihistamines *might* be helping their PAN (a bit too soon to be sure)....

Scientists rely on this COVID-19 data. It's made by a volunteer in Melbourne Meet the Melbourne IT specialist who tracks "incredibly valuable" COVID-19 data in his spare time.

Huge thanks to @mikehoney.bsky.social for all the valuable COVID data he tracks. His work has become incredibly important for scientists and health professionals, and with so little data available now, it really matters for people who want to stay safe and informed.

www.sbs.com.au/news/article...

A book from the 19th century that depicts the Rhine Valley by creating an impression of three-dimensionality and spatial distance.
@MasayukiTsuda2 #globalmuseum #books #travel #19thcentury

Best wishes for your birthday 🎂 💙

In the foreground, red and yellow flowers poke out of large grassy clusters on long stems. In the background, old gum trees and a fluffy cloudy sky.

Fire flowers on today's little walk
#FlowerReport #Bloomscrolling

An illustration of a pear tree with bright green leaves. There is a spider on a web between the branches and a caterpillar at the bottom, next to a fallen leaf.

Illustration of a branch from an apple tree with several ripe apples, lush green leaves, and a small owl perched on one of the branches. A butterfly flutters at the upper right corner.

An illustration of a small tree with bright red fruit. Perched on a branch is a small bird. There is a caterpillar on the stem.

A fruity find! 🍎

This practical guide to fruit varieties, now known as The Tradescant’s Orchard, was made for gardeners, not as fine art.

Later bound by Elias Ashmole, it joined Oxford with his collections and moved to the Bodleian in 1860.

Shelfmark: MS. Ashmole 1461

💔😢😢

Perhaps get soft/2B pencil and use it to pop a bit of graphite in that E string groove in the nut, if that's where the problem is.

I've never done it with a guitar, but I've had success with cello & violin with this trick

Edinburgh University PhD 3 year funded fellowship. Closing date 16th January 2026: "Personalised blood-based biomarkers for ME/CFS symptom severity"

www.findaphd.com/phds/project...

Screenshot from Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.

His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work

I'm looking at a room of bags & boxes piled up, and wondering if I have it in me to continue. I'm a bit inspired to give it a crack....

Yep that awkward stage in the process when everything goes heaps messy 🫤

Sending vibes of encouragement & MEepy solidarity though, acknowledging what a huge effort this is⚡️👊

Here's hoping the next few days are gentle.

#MECFS pals—

There’s a study going on to assess whether FUNCAP can be used to capture PEM in the moment, in addition to its original purpose to capture the average impact PEM has on you.

You take their surveys twice, once during PEM and once after you recover.

Sign up at the link below!

David Tuller's Trial by Error Fall 2025 Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

For several years, I have spent my time busting terrible and even fraudulent research into ME, ME/CFS, Long COVID, etc. If this crowdfunding works out, I will do one more in the spring and then retire from Berkeley. If you'd like to support my work, here's how: crowdfund.berkeley.edu/project/47768

❗Help us spread ME/CFS awareness❗

People living with #ME/CFS are severely ill, yet often don't receive welfare, specialised medical treatment and accessible education opportunities.
Furthermore, sufficient awareness in the areas of politics, healthcare and research is lacking.

Privilege and Pain: Why the Medical Humanities Matter Katharine Cheston reflects on her own experience of ME and the need for a more caring, curious, and compassionate approach to health research.

I recently wrote a reflective piece for the Polyphony blog @the-polyphony.bsky.social explaining the motivations behind my work on ME, and what I think a medical humanities approach has to offer this field - and health research more generally

thepolyphony.org/2025/10/09/p...