Katie J.

Somatic symptom disorder: Why your doctor doesn't believe you're really sick SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis

New post exploring how sexism, bad science, and an inability to acknowledge uncertainty, can lead doctors to treat everything they don't understand (or prefer to ignore) as psychosomatic. Specifically: somatic symptom disorder (SSD).
mecfs.substack.com/p/somatic-sy...

@tessamunt.bsky.social did you speak to @ashleydaltonmp.bsky.social on this?

Savannah cannot wait for a new service. She has been without nutrition for 8 WEEKS in constant agony and is literally dying.

You MUST force the hospital to listen to her expert & restore pain meds and nutrition.

#mecfs

we need to talk about that Ring Super Bowl ad

"Ultimately, all disabled people risk confrontation because nobody can live up to the impossible stereotype required for being truly ‘deserving’."

Although I haven't read the whole thing and maybe there's something terrible hidden in this thing as well!

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact all aspects of life. Despite its significant prevalence, ME/CFS remains one of the most ...

I feel like the vagus nerve inflammation thing is just a theory, whereas there are proven things like immune dysfunction, mitochondial dysfunction, HPA axis changes, which prove it's a serious disease even if we don't have the whole picture. Maybe this one pmc.ncbi.nlm.nih.gov/articles/PMC...

Had to check this wasn't one of those satirical newspapers, but apparently not!

YouTube video by Unrest Film Unrest Feature Documentary (Original with English subtitles)

I watched Jennifer Brea’s excellent documentary Unrest today and I highly recommend it for anyone interested in learning more about ME/CFS and the medical dismissal and gaslighting ME patients face

youtu.be/RLQNfsTih10

BREAKING: Another rapid response action! Indivisible Vancouver is leading a protest rally THIS FRIDAY January 30 against Jim Pattison, who is planning to sell one of his warehouses in Virginia to DHS/ICE to become a human processing facility. #boycottpattison #ice #iceraids #protest

I'm setting up a new account, @lighterkatiej.bsky.social, for the non-ME/CFS aspects of my life, mainly books & films I love and some politics. I'm unfollowing a bunch of people here but rest assured, I'm going to follow you on the new account!

An overpass occupied by people with signs, and a large banner between them that says, "Come for one, face us all." Because Fuck ICE, that's why. This is not my photo. I don't know who it belongs to.

Just outside Seattle on I-5 🤘

Protest breaks out at Dilley immigration detention facility holding 5-year-old Liam Ramos A protest broke out Saturday at the ICE-run South Texas family detention complex in Dilley, where five-year-old Liam Ramos is being detained.

Reminder that, in recent days, children have rallied and protested for their freedom inside an ICE detention center where water has been described as "putrid" and meals reportedly contain “bugs,” dirt, and debris. This is where the kidnapped 5-year-old Liam Ramos is being held.

YouTube video by neilyoungchannel Neil Young - Harvest Moon [Official Music Video]

Neil Young is from my hometown, and he just took gave his entire music catalogue to Greenland!
www.youtube.com/watch?v=n2Mt...

The best compliment in the world is when someone discovers your account and likes a bunch of old posts. 😀

An NHS hospital is starving a severe ME patient and has now stopped giving her fluids Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk

An NHS hospital is starving a severe ME patient and has now stopped giving her fluids! Please scroll to the end to copy/paste an email to NHS Trust Chief Executive! Please share! www.thecanary.co/uk/analysis/... #pwME #MECFS #SevereME

I've sent an email, I used the one from the Canary article and changed it a bit. This is so heartbreaking. 💔💔💔

With so many of us watching the tremendous mobilizations in Minneapolis, culminating in the call to action against ICE today, I wanted to share some of what I have gathered from talking to comrades in Minneapolis over the past few weeks. A few things stood out:

I'm deeply grateful to all the people in Minnesota who are standing up for humanity and decency by taking part in the protests and the general strike today.

What we’ve seen in Minnesota should make you furious, but it should also inspire you.

I'm still coming to terms with the fact that managing my chronic illness is a full-time job. I'm basically a full-time carer, but the person I care for is myself. #moderateME

“Have you considered that it could be burnout?”—psychologization and stigmatization of self-reported long COVID or post-COVID-19 vaccination syndrome - BMC Medicine Background People reporting long COVID (LC) or post-COVID-19 vaccination syndrome (PCVS) not only suffer from their symptoms but also from stigmatization. Despite ample account and characterization of...

“Have you considered that it could be burnout?”—psychologization and stigmatization of self-reported long COVID or post-COVID-19 vaccination syndrome
link.springer.com/article/10.1...

Vancouver firm Hootsuite provides services to ICE U.S. procurement records show that Vancouver tech firm Hootsuite is providing social media services to the Department of Homeland Security.

It's a good day to stop using Hootsuite and tell them why.

You seem anxious about these bad patients. Have you considered that perhaps your anxiety might be causing the problem?

Godwin is famous for Godwin's Law, which says that if any internet discussion goes on long enough, someone will call someone else a nazi, which will end the discussion.

That is such a strange way to say "it's not actually getting milder".

I know someone who got skin cancer, went in for very minor surgery, rested for a day, and was 100% fine & cancer-free. Imagine if that was our view of cancer!

The same people who hate gay/trans/autistic people because "no-one was like that when I was young," hate us as well. It's about not wanting to change your view of the world.

It's partly because there aren't documentaries about us, science programs, news programs. We are erased from society, so for a person to believe in us requires them to understand that they were lied to, or at least not told the whole truth.

Wessely also used the tactic of 'overloading' - sending a 17 page message that would take a great deal of time and energy to engage with. He sent it to the publisher, not the author, knowing the publisher would be less savvy to this kind of trick and more likely to cave to intimidation.

Simon Wessely used intimidation to change how an author wrote about ME and Long Covid. The threat of a law suit was likely a bluff, but still had the desired effect. This is how Wessely operates.