Jessie Chaffee

I look forward to @memoirland.bsky.social’s Memoir Monday every week. Many thanks to @saribotton.bsky.social for including my @literaryhub.bsky.social essay about living with #longcovid in this week’s roundup! 🙏❤️

Word Games Diane Mehta on learning the frantic art of scrambling for words from her speedy and strategic 21-year-old son.

After playing anagrams for several hours via Game Pigeon on my phone with my son, who is in college, he wrote between classes and said, “Mom, stop.” Fun to write this for @oldstermag.bsky.social thank you @saribotton.bsky.social
oldster.substack.com/p/word-games

NIH cancels its first and largest study centered on women The Women’s Health Initiative has produced numerous influential findings

OH COME ON. NIH cancels a 34-year-old longitudinal study on women's health that started with 160,000 volunteers and continues to answer urgent questions about aging, heart disease, cancer & more 🧪 in @science.org

Was just reading through your excellent newsletter and saw you linked to my essay—thank you! So kind of you. And thank you for all the vital info!!!

Covid: April 10, 2025 | Threat Model Get more from Threat Model on Patreon

Just doing my part to introduce the term "cooker" to the rest of the world:

www.patreon.com/posts/covid-...

#Covid #LongCovid #Vaccines #StillCoviding

Margot! So happy to be connected here and THANK YOU for the comment support—I was so grateful for that 🙏❤️ And sending you strength and good wishes for your writing and health. And I’m excited to read your work!

Opinion | The NIH Is Our Crown Jewel. Don’t Shatter It Nowhere else on the planet offers anything close to our opportunities for medical innovation.

WSJ: 'The NIH Is Our Crown Jewel. Don’t Shatter It'

'Nowhere else on the planet offers anything close to our opportunities for medical innovation'

www.wsj.com/opinion/the-...

Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC - The Sick Times Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing edit...

The Sick Times: 'Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC'

H/T @betsyladyzhets.bsky.social @lisamccorkell.bsky.social

thesicktimes.org/2025/04/07/l...

Volunteers Needed Long COVID Clinical Trial Icahn School of Medicine at Mount Sinai Do you have a confirmed diagnosis of Long Covid? You may be eligible for a 6 month drug clinical trial involving antiviral drugs You may qualify if: • You are over 18 • You have a diagnosis of Long Covid from a physician • You are HIV negative • You are able to commute to our office • Other criteria are considered as well | Participation Involves: • Being randomly assigned into one of three groups • Truvada (drug) • Selzentry (drug) • Placebo • Attend 6 in-person study visits • Blood and saliva samples • Completion of surveys online Study goal: We are investigating if antiviral medications have an effect on Long Covid symptoms IRB Approved Effective Date: 12/17/2024 End Date:7/22/2025 Please email CoreResearch@MountSinai.org for more information Location: 5 East 98th St, SB-18 Lead Researcher: David Putrino, PT, PhD STUDY- 24-00088 Participation will be compensated up to $300

Long COVID and viral reactivation are linked. Our latest trial focuses on repurposing existing, broad spectrum antivirals to reduce symptoms in adults with #LongCOVID. Our clinical trial is currently recruiting! Email CoreResearch@mountsinai.org to inquire

Behind the BreatheTeq KN95 is Katie Holten @katieholten holding a sign that says, “STOP the COUP” sharing her action with #MaskTogetherAmerica

“Being immunocompromised, I need to avoid getting infected again with COVID or anything else, so wearing a face mask is essential.”— Behind the BreatheTeq KN95 is Katie Holten holding a sign that says, “STOP the COUP” supporting
#MaskTogetherAmerica
#Handsoff Public Health!

A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID “My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…

Jessie Chaffee on Ray Bradbury’s “All Summer in a Day” and living in the shadow of long COVID.

Thank you so much—I really hope it raises awareness. And I'm so glad to hear there's more LC coverage ahead! 🙏❤️

Powerful, gorgeous, hard read that is also a little about Stonewall and ends up being a lot about resisting erasure. The Women's House of Detention seems like a pretty important thing to remember right now.

Thank you so much for reading and sharing, @violetblue.bsky.social, and thank you for the kind words ❤️ And thank you for your ongoing coverage on C19 and LC 🙏❤️

"I subsist on teaspoons of life”
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)

A person wearing an eye mask and headphones lying on the ground in a public space, holding a sign with information about Severe ME/CFS Awareness Day in English and German. The text reads, “The Sick Times. An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. By Sam Pearce.”

What many people with Mild and Moderate ME and Long COVID do not understand — until it is too late — is the terrible progression of energy-limiting disease. The potential deterioration of quality of life is not “bad, a bit worse, and then worse again”; it is bad, worse — and then you fall off a cliff.

An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. bit.ly/42fSrue

Spectacular view of 100,000 people attending the #HandsOff march in NYC

Hands Off! DIY Online Action · Hands Off This is an online action - no street or zoom meet. Sign up to Phone-bank for US Congress Special Elections: [https://mobilize.us/s/Mq2gAI/a](https://mobilize.us/s/Mq2gAI/a) Hopefully flip the US Ho...

www.mobilize.us/handsoff/eve...

Hands Off! COVID Long-Haulers Fights Back · Hands Off **Donald Trump and Elon Musk think this country belongs to them.** We are fighting back! They're taking everything they can get their hands on—our health care, our data, our jobs, our services—and da...

www.mobilize.us/handsoff/eve...

Hands Off! Disabled Community Fights Back · Hands Off 🚨 Donald Trump and Elon Musk think this country belongs to them. We are fighting back! 🚨 They're grabbing everything they can—our health care, our data, our jobs, our services—and daring the world to...

Wishing I could be at today's #HandsOff2025 rally in person, but #longcovid is keeping me home. But I WILL be attending these virtual protests. Additional virtual opportunities in 🧵 #chronicillness #disability

Thank you so much, @bhanlon15.bsky.social ❤️

A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID “My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…

Literary Hub: 'A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID'

Jessie Chaffee: “For a moment, I am the girl, her existence of gray monotony broken by a sliver of sunlight while others revel...."

lithub.com/a-single-ray...

A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID “My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…

Well-written essay on living with Long Covid #LC #ME

lithub.com/a-single-ray...

Thank you so much, Lisa ❤️

Deze komt vandaag heel hard bij me binnen. Wat een mooi literair essay over leven met long covid, de impact ervan op je dagelijks leven, en het gevecht om erkenning.

Ik ben iets minder ziek dan de schrijfster - ik kan oa een paar keer per week de deur uit en ong 4 uur p/d licht actief zijn. Maar..

Thank you! ❤️

“Because there are people resisting erasure.”

“And resisting erasure will become both more difficult and more necessary.”

Thank you so much for reading and for sharing ❤️

📒A must read by @jessielchaffee.bsky.social

Haunting, vivid & poignant.
It weaves in the:
☀️ symbolism of Bradbury's 'All Summer in a Day'
📚 the setting of Greenwich Village & the prison turned library
✊ activism
🕳️ the quiet violence of absence we experience from #LongCovid

Thank you so much for sharing, @longcovidadvoc.com, and thank you for all of the support and advocacy! 🙏 ❤️