Ted Monroe

Long Covid A timeline in pictures and quotations

A Year in the life of a #LongCovid patient @longcovidsupport.bsky.social @longcovidadvoc.com

Thanks, Kate, Sending solidarity back!✊I hope you enjoy it when you get to it.

Thank you, Martin. And you put it so well: 'Illness not as dissonance, an affront to living, but indeed harmonious, inherent to life' - I wish I'd thought of that!

'Let us not seek our disease out of ourselves; ‘tis in us'

– Montaigne, one of his less impressive insights #mecfs #chronicillness #longcovid #pwme #pwlc

Thank you so much!

'Well, they are gone, and here must I remain' A meditation on FOMO and Long Covid

A Meditation on Long Covid and the Fear of missing Out, or FOMO
#longcovid #mecfs #pwme @longcovidadvoc.com @longcovidsupport.bsky.social
open.substack.com/pub/tedmonro...

Funded by the Buckinghamshire-based ME Association, external and carried out at Imperial College London, the Rosetta Stone study hopes to look for biomarkers and "decode the immunological profile" of both ME and Long Covid.

www.bbc.co.uk/news/article...

#OverlappingIllness #ME #LongCovid

A Failure to Convalesce An interminable struggle to put on a jumper.

For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’.

www.the-fence.com/a-failure-to...

My article for @thefence.bsky.social on #longcovid.

Pinned and Wriggling Post-viral illness and the poetry of T.S. Eliot

A Substack about post-viral illness and the poetry of T.S. Eliot
#longcovid #mecfs #chronicillness
Pinned and Wriggling
open.substack.com/pub/tedmonro...

Pinned and Wriggling Post-viral illness and the poetry of T.S. Eliot

A Substack about post-viral illness and the poetry of T.S. Eliot
#longcovid #mecfs #chronicillness
Pinned and Wriggling
open.substack.com/pub/tedmonro...

The Art of Convalescence How art and literature can guide us through the dark times of chronic illness

Check out 'The Art of Convalescence', a Substack with some teething issues about how art and literature can help people with chronic illness through the dark times... open.substack.com/pub/tedmonro...
@longcovidadvoc.com @longcovidsos.bsky.social @longcovidsupport.bsky.social

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome Research could offer hope for ME patients – but some experts urge caution and say more studies needed

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

@edyong209.bsky.social

@meactnet.bsky.social @longcovidadvoc.com @longcovidsupport.bsky.social @longcovidsos.bsky.social @meassociation.bsky.social @mecfsnews.bsky.social @longcovidphysio.bsky.social @putrinolab.bsky.social

A Failure to Convalesce An interminable struggle to put on a jumper.

For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’.

www.the-fence.com/a-failure-to...

My article for @thefence.bsky.social on #longcovid.

A Failure to Convalesce In his story, ‘Don’t Blame Anyone’, Julio Cortázar depicts one man’s interminable struggle to put on a jumper. The man is supposed to be meeting his wife at a store, and it is cold outside…

'To have Long COVID, then, is to be trapped in paradox. This is no more apparent than in our furious efforts to recover, in which a profane blend of Puritanism and Paltrowism (the Gwyneth variety) do battle.'

A beautiful piece from Ted Monroe.

www.the-fence.com/a-failure-to...