Malwsmefys

I’m George Takei and I approve of this message.

I've got tickets to see them this year 😻

The irony of receiving a pen with my Action for ME magazine that ran out after writing 12 words is not lost on me 😂😂😂😂😂

Timeline cleanse

Evolution from primate all the way up to Donald Trump, the 2nd last person turns back and says 'go back. We f*cked up.

"As a medical practitioner myself, I thought that those working in healthcare were mostly understanding, empathetic and equipped to help their patients. ... I have experienced a lack of understanding, interest and care"

It shatters the illusion, but its not just ME and Long Covid.

an online conversation 1st person - remember to drink a fucking shit ton of water every miserable day of your life 2nd person-and good days too 1st person-what the fuck is a good day

Endothelial dysfunction in ME/CFS The endothelium - a thin layer of cells lining every blood vessel - plays a pivotal role in regulating blood flow, blood clotting, and inflammatory responses. Research suggests that ME/CFS may involve damage to the endothelium leading to endothelial dysfunction (improper functioning of the endothelium). ME/CFS research says: significantly impaired endothelial function in both small and large vessels compared to healthy controls herpesvirus infection, such as Epstein-Barr virus (EBV) and HHV-6, could contribute to damage of endothelium endothelial cells lining blood vessel reduced nitric oxide production in ME/CFS may suggest mechanism of endothelial dysfunction increased microRNAS in ME/CFS indicate endothelial dysfunction endothelial dysfunction may underly orthostatic intolerance in ME/CFS INFORM. INFLUENCE. INVEST. ME RESEARCH UK SC036942

From @meresearchuk.bsky.social

Recently we reported on a study suggesting endothelial dysfunction could play a role in orthostatic intolerance in ME/CFS. Read a summary of other ME Research UK articles related to endothelial dysfunction in ME/CFS - bit.ly/3Ej9sv8

#MECFS #myalgicencephalomyelitis

A butterfly clinging to a thin stalk with small purple flower. The butterfly has pale yellow wings outline in black with white dots.

Just something nice for your timeline

Butterfly (Scada zibia), Tatama National Park, Colombia

Long-term sick to lose benefits and need to search for work in DWP overhaul Liz Kendall wants to make the biggest change to the welfare system in a decade

This absolutely terrifies me.

I feel like I have to prepare somehow. I've been looking into proofreading & editing courses. Gosh they're expensive. But I feel I have no choice.

Disabled people are terrified right now. We won't survive. And that's their plan!

www.independent.co.uk/news/uk/poli...

It doesn't measure sleep but my heart rate activity would reflect that something is definitely going on when I'm dreaming. I've checked it when I've had a night of vivid dreams and it seems to support this.

Oh yes I definitely get this. I have a visible app that shows this (I wear mine overnight). The internal vibrations are much worse upon waking if I'm woken suddenly and it takes a very long time for me to be able to sit up and come round properly.

I feel like setting that kendal woman the personal challenge of finding me an employer who would pay me enough money while accepting a shit quality of work with no deadlines, that doesn't require me leaving my house/interacting with people/reading anything/numbers/noise/physical exertion etc. 😡

Them: You don't look like you have a chronic illness! Me: I'm sorry, I'll do some chronic illness-ing for you.

#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes

A reminder,
None of your problems come from me being chronically ill and bedbound.

Oh no 😧 sending gentle hugs to you, I really hope they can get you sorted quickly and that you're home soon xx

🏳️‍🌈 🏳️‍🌈

The Ventura County Star, US. 26th January 1993. #mecfs #myalgice #cfsme #myalgicencephalomyelitis

All of your favourite unelected bureaucrats have met in Davos again This gathering was every but as entertaining as the last one

This year's summit in Davis was simply amazing. Here is why:

www.normalisland.co.uk/p/all-of-you...

Today, January 27th is Holocaust Memorial Day 🕯️
May we never ever forget all that has happened 🕯️ 🕊️

#HolocaustMemorialDay
#HMD2025
#LightTheDarkness

Same, and completely terrifying. My mental health is in the bin already and the thought of this is making me worse 😶

I’m an introvert. I like being alone. I distance myself from time to time for my own personal reasons that have nothing to do with me acting funny or being upset about anything. I need space and peace of mind. People can be overwhelming at times…

✊️

#mecfs #mecfsawareness #mecfswarrior ##fibro #fibromyalgia #fibrowarrior #chronicillness #chronicillnessandme #chronicillnessawareness #neurodivergent #adhd #adhdawareness
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing
#EndMEcfs #MillionsMissingSpeakOut #MillionsMore #MyalgicEncephalomyelitis

It is very difficult and my mental health can be very fragile and is easily affected by others. I'm generally a happy positive person and used to be very driven, but I've had to learn to let go of the 'drive' somewhat. Emotional reactions are a major cause of PEM for me 😬

Living with siblings.. 😅

It’s a pity this article doesn’t discuss more of the reasons why the existing review is flawed such as the almost complete lack of reporting of objective measures as Michiel Tack, I & others highlighted in our formal comments on the review.
#MEcfs #CFS

I don't have any expectations any more. And that's not me being negative, I'm just quite learned to make a decision every morning about how I feel when I wake up. I'm moderate/severe. If I had any expectations it would cripple my mental health even more so I just go with the flow now.

I need to learn how to do this! Do you smoke, or make teas/add it to food etc? I have gummies but they're so expensive 😬