Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland.
Registered Charity Number 20011376
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Research Support Manager at Health Research Charities Ireland.
Autism! Cats! Sea! Weather! Cake! Books! Music! Cooking unnecessarily elaborate meals!
Professor at Maynooth University Psychology Dept. Neuroscience, brain, memory, art, science, folklore, mythology, writing, music, football.
Statistician and Head of Research at Cystic Fibrosis Registry of Ireland, Tennis Player, Hiker and Girl Guide Leader
Health Research Charities Ireland (HRCI) is the national umbrella organisation of over 45 charities engaged in health, medical and social care research, collectively representing over 2 million people in Ireland. www.hrci.ie
CEO, Health Research Charities Ireland @hrci.bsky.social (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
🤹♀️ PPI | research impact | health data | evidence-based policy | genomics | rare diseases...
Using genomic information to improve medicine
Researcher | PhD | Ireland
#PregnancyLoss #ReproductiveHealth #ReproductiveJustice #WeightStigma #MensHealth #CDoH #COI #PublicHealth #SDoH #ImpSci #KnowledgeTranslation #GraphicMedicine
Passionate about promoting science accessibility for all. 🤓🧠 Collaborates with patient and community groups on health and ageing research. From rainy Portland, now living in rainy Dublin.
Civic engagement, public involvement, stakeholder partnering... call it what you like, I'm trying to figure out how universities can do it better.
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
