Just moved over from x/Twitter was @mefibromyalgia1

19.01.2025 19:35 — 👍 3    🔁 0    💬 1    📌 0

This underscores the importance of stratifying patients who are given the CFS or ME/CFS label. A diagnosis of #MyalgicEncephalomyelitis needs to recognize the enterovirus connection. The #MEICC is a useful tool to stratify patients.

drive.google.com/file/d/1OLvC...

03.01.2025 17:00 — 👍 5    🔁 2    💬 0    📌 0

() ME/CFS and Quality of life What is quality of life? Quality of life is the degree to which an individual is healthy, comfortable, able to complete the tasks of daily living, and to enjoy life. — Researchers based at Cardiff University - alongside people with lived experience of ME/CFS, conducted a study to explore how ME/CFS impacts quality of life. Results suggested: && • ME/CFS had a negative impact on quality of life for both those with the disease, and for their family members. • For many people with ME/CFS, the disease had resulted in isolation and lack of support. Muirhead et. al., Medicina, 2024., and Vyas et.al., Neurology 2022. ME RESEARCH UK INFORM. INFLUENCE. INVEST. SC036942

ME Research UK:

Researchers based at Cardiff University – alongside those with lived experience of ME/CFS have published two papers investigating how ME/CFS impacts quality of life.

Read about what the team found here: tinyurl.com/3wb4y9s8

#MECFS #QoL #myalgicencephalomyelitis

08.01.2025 16:27 — 👍 18    🔁 3    💬 0    📌 0

More evidence that ME/CFS is not just related to brain dysfunction. A decrease in blood perfusion to muscles causes ion imbalances which damages the muscle and causes dysfunction of the mitochondria. Possible targets for new treatments! Article below.
#ChronicFatigue
#MyalgicEncephalomyelitis

10.01.2025 18:06 — 👍 12    🔁 5    💬 1    📌 0

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS
symptoms

#MECFS
1/

10.01.2025 03:27 — 👍 110    🔁 41    💬 10    📌 11

What is myalgic encephalomyelitis? from LONG COVID ESSENTIALS a resources series by The Sick Times x Long COVID Justice Myalgic encephalomyelitis Myalgic encephalomyelitis (ME)*, is an umbrella term for a debilitating, multi-systemic disease often triggered by an infection. It can range in severity from mild to very severe and cause people to be home-bound or fully bed-bound. The disease is life-changing, even when mild.

New short overview piece with links

"What is myalgic encephalomyelitis?" by @thesicktimes.bsky.social & @longcovidjustice.bsky.social ( @mileswgriffis.bsky.social , @betsyladyzhets.bsky.social & @sunsopeningband.bsky.social )

longcovidjustice.org/what-is-me/

#MyalgicEncephalomyelitis #PwME

11.01.2025 18:05 — 👍 66    🔁 22    💬 2    📌 2

I have ME/CFS. It sucks and makes this writing gig bloody hard, but I'm still here.

This is a shout-out to all the other writers with a hidden disability, who still do what we do because we love it.

#MyalgicEncephalomyelitis #ChronicIllness #HiddenDisability #MMAuthor #Sunflower

12.01.2025 08:29 — 👍 24    🔁 2    💬 0    📌 0

@MeResearchUK.bsky.social
"Researchers suggest that ME/CFS leaves genetic changes on immune cells, known as T cells, making them more prone to T cell exhaustion - a state where they are overworked and eventually stop functioning properly.
#MECFS #myalgicencephalomyelitis

16.01.2025 10:48 — 👍 8    🔁 3    💬 2    📌 1

19.01.2025 19:17 — 👍 2    🔁 0    💬 0    📌 0