European Lung Foundation

🫁 New guidance for better bronchiectasis care

Join our free, patient-friendly webinar on 8 November to learn what the new European bronchiectasis guidelines mean for you and how they can help improve communication with your healthcare team.

Register here: europeanlung.org/en/get-invol...

💛 Patient voices were centre stage at the ERS Congress 2025! ELF representatives shared insights, connected with peers and helped shape discussions in the new patient-centred studio sessions.

Learn more about their highlights and how you can get involved: europeanlung.org/en/news-and-...

💙 Thank you to everyone who joined the ELF Annual Stakeholder Meeting 2025!

We brought together patients, carers & healthcare professionals to establish priorities for the year ahead, including youth engagement and strengthening patient advocacy.

Learn more: europeanlung.org/en/news-and-...

💬 This month, we spoke with Ourania Koltsida!

Ourania was a panelist on one of this year’s patient-centred studio sessions at the ERS Congress. Patients and professionals came together to discuss inequality in pulmonary rehabilitation across the globe.

Read more: europeanlung.org/en/news-and-...

🫁 Do you have asthma, COPD, or another long-term lung condition?

Persistent cough, extreme tiredness or repeated lung infections can be signs of aspergillosis.

Join the ELF Aspergillosis Patient Conference on 29 November to learn more.

Register here: europeanlung.org/en/get-invol...

🚨October’s Patient Organisation Round-up is here!

Find out what organisations from the ELF Patient Organisation Network have been up to this past month.

Read the full round-up: https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-october-2025/

Do you live with severe asthma? 💙
The ELF Severe Asthma Patient Conference 2025 is happening on Saturday 22 November. A free, online event with expert talks and a live Q&A #SevereAsthma2025

https://europeanlung.org/en/get-involved/events/severe-asthma-patient-conference-2025/

💙 It was fantastic to come together with so many patient representatives and partners in our Annual Stakeholder Event, to reflect on the past year and look ahead to 2026.

If you could not make it, we would still love to hear from you. Contact us at info@europeanlung.org 📩

🌍 Our Annual Stakeholder Meeting 2025 is happening now! Hear from ELF Chair, Dimitris Kontopidis, and ELF Director, Pippa Powell, as we reflect on our achievements and shape the priorities for 2026 together.

🕛 12:00–13:30 CEST
Join us: https://us02web.zoom.us/meeting/register/tCgqlnvJQqaUrnAe3zJPpw

⏰ Only two weeks left!

The ELF Chair 2026–2029 is your chance to turn your lived experience with a lung condition into real impact. Lead patient initiatives, shape education, and inspire change.

Apply by 1 November 2025 ➡️ https://europeanlung.org/en/news-and-blog/elf-chair-2026-2029

ERS, @europeanlung.bsky.social, @who.int, @cleanairfund.bsky.social and the UN Interagency Taskforce on NCDs called for worldwide action on chronic respiratory diseases by hosting a high-level side event during #UNGA80 📢

Find out more: https://bit.ly/3KGRh62

🎉 10 years of connection, collaboration and impact! 🎉

The full recording from the ELF Patient Organisation Networking Day 2025 is now available: europeanlung.org/en/get-invol...

Here’s to another decade of partnership and progress for people with lung conditions 💙 #PatientOrgDay2025

🫁 Have your say on the future of lung cancer screening!

The EU-funded SOLACE Project has re-launched its survey to understand how lung cancer screening is perceived and delivered across Europe.

🕒 Open until 31 Oct 2025, it only takes a few minutes!

👉 https://www.surveymonkey.com/r/VSBMVT7

⏰ 3 days to go!

Join us online for the ELF Annual Stakeholder Meeting on 16 October. This free event is open to all who want to help shape the future of lung health.

Register: https://europeanlung.org/en/get-involved/events/annual-stakeholder-meeting-2025/

#PatientPriorities #LungHealth

💙Today is World Mental Health Day🧠

Living with a lung condition can have a big impact on your mental health, not just your physical health. Our Mental Health Working Group is supporting lung patients to self-manage their mental wellbeing.

Learn more: europeanlung.org/en/get-invol...

📢 Tobacco use remains one of the leading causes of early death in Europe. That’s why ELF and @europeanrespsoc.bsky.social are calling for EU Member States to support the proposed reforms to the Tobacco Taxation Directive tomorrow. 🚬

Read the joint statement: www.ersnet.org/news-and-fea...

💙Patients and professionals were panelists for the studio session “Bridging the communication gap” at the 2025 ERS Congress. They explore the importance of “empathy, education, and shared decision-making" in lung healthcare.

Read the new AJMC article on the session: www.ajmc.com/view/ers-rec...

🌍 ELF is inviting applications for the Chair 2026–2029.

Are you someone with lived experience of a lung condition and a passion for advocacy, education and patient involvement?

Apply by 1 Nov 2025 ➡️ europeanlung.org/en/news-and-...

💻 Free ELF Aspergillosis Patient Conference on 29 November!

Hear patient stories, join expert discussions and learn practical tips for managing aspergillosis.

Register here: europeanlung.org/en/get-invol...

#Aspergillosis #PatientVoices #LungHealth

️There is still time to register for our Annual Stakeholder Meeting, which will take place on 16 October.

Join us for the chance to:

💙Review our Annual Report
💙Share your feedback on ERS Congress
💙Help us shape our strategy for the year ahead

Register here: europeanlung.org/en/get-invol...

As #ERSCongress comes to an end, we want to say a huge thank you to all our patient speakers 💙

From the new studio sessions to Patient Organisation Networking Day, our network of patient reps goes above and beyond to advocate for better lung care, and we could not be prouder!

Bridging the communication gap: patients and professionals discuss ways to improve clinic interactions 💙 #PatientVoices #LungHealth

Final day at #ERSCongress2025 🌬️

For those joining us today, you can enjoy our interactive workshops on prevention, communication and co-design in respiratory research. #PatientCentred #HealthyLungsForLife

Learn more: europeanlung.org/en/news-and-...

💙Today we had the last of our Patient Organisation presentations in the World Village Auditorium!

It was a great turn out and chance for orgs to network and share ideas. Thank you to all that got involved! 💛

#ERSCongress #PatientRepresentation

Extremely impactful #patient testimonials on neonatal respiratory diseases #ERSCongress @europeanlung.bsky.social

The #TakeTheActiveOption fun run/walk was a sell-out success 🎉 @europeanrespsoc.bsky.social

📸 The event photos are now live! Download your favourites and share them with your networks (tag us @europeanlung.bsky.social)

👉 europeanlung.org/en/get-invol...
#HealthyLungsForLife

The ELF Patient Advisory Committee came together here in Amsterdam during #ERSCongress!

Our committee is a driving force of ELF’s mission and consists of various European respiratory patient orgs. Representing different lung conditions, they ensure a united voice and equal representation. 💙

What an energising start to the day at #ERSCongress with #TakeTheActiveOption! 🏃‍♀️🏃

Huge thanks to all who joined our walk and run through Beatrixpark. It was a wonderful way to get moving and support #HealthyLungsForLife. 🌿💙

Learn more about the campaign and donate here: healthylungsforlife.org

💙 Patient-centred sessions underway: exploring family caregiving, transition care, and holistic self-management for patients worldwide. #PatientCentred #LungHealth

A new lay guideline on managing bronchiectasis in adults has been launched today at #ERSCongress2025 and is now available to help patients, carers and the public access clear and reliable information.

👉 europeanlung.org/en/informati...