Jenn Wieworka DNP, OCN's Avatar

Jenn Wieworka DNP, OCN

@jwiew.bsky.social

Patient Advocate and Educator, #MultipleMyeloma, #IMF, roller derby #MNRD, my views are my own, (She/Her)

103 Followers  |  89 Following  |  16 Posts  |  Joined: 25.11.2024  |  1.8794

Latest posts by jwiew.bsky.social on Bluesky


When I meet with Myeloma Support Groups I explain the importance of conferences like #ASH25; to truly do that we also need to explain how conferences function-follow along with #IMFASH25 to see the Myeloma Voices at ASH team for our take aways from this year! x.com/i/status/199...

05.12.2025 16:24 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Wait! Dr. Joe @jmikhaelmd.bsky.social I'm sending you some more via Becky Support Group Director Extraordinaire, your ribbons might be able to touch the ground! #IMFASH25

03.12.2025 21:05 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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If you're facing myeloma, you are not alone. โค๏ธ This #GivingTuesday, will you stand with us to support the myeloma community every step of the way? Your gift matters. Help the myeloma community thrive at https://fundraise.myeloma.org/campaign/728167/donate

23.11.2025 17:31 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
MINNESOTA ROLLER DERBY PRESENTS:
Wizard of Ows
November 22, 2025
Roy Wilkins Auditorium
Doors open at 5pm
First whistle at 6pm

MINNESOTA ROLLER DERBY PRESENTS: Wizard of Ows November 22, 2025 Roy Wilkins Auditorium Doors open at 5pm First whistle at 6pm

โœจITโ€™S BOUT WEEK!โœจ

THIS SATURDAY our home teams will face off in two, action-pack bouts at the Roy Wilkins Auditorium.
Be sure to get there early to catch the junior roller derby pre-show bout between the MN Frostbite and Sioux Falls Junior Derby!

Doors open at 5pm, the home team bouts start at 6pm

16.11.2025 17:54 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Information on MNRD's admission policy for kids. Anyone 9 or under is admitted for free with the purchase of an adult general admission ticket. More information is available at our website: www.mnrollerderby.com, and our next bout is November 22nd. 

Graphic is a photo collage of five photos, four on the left and one large photo on the right. The four on the right are of skaters with children at previous bouts. The image on the right is of children dancing during our halftime show.

Information on MNRD's admission policy for kids. Anyone 9 or under is admitted for free with the purchase of an adult general admission ticket. More information is available at our website: www.mnrollerderby.com, and our next bout is November 22nd. Graphic is a photo collage of five photos, four on the left and one large photo on the right. The four on the right are of skaters with children at previous bouts. The image on the right is of children dancing during our halftime show.

Looking for a night out for the whole family? Kids 9 and under get in free to Minnesota Roller Derby bouts with an adult general admission ticket.

Join us on November 22nd for two games, a junior roller derby pre-show, halftime dance party, chicken toss and more, all wrapping up by 9pm.

07.11.2025 21:55 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Terror of Two Cities poster
Helmet with skyline of Minneapolis and Saint Paul in visor portion 
Lighting in background over a sunset gradient
Season 22 October 18 doors at 5pm first whist at 6pm at Roy Wilkins Auditorium in downtown Saint Paul.
Mnrollerderby.com

Terror of Two Cities poster Helmet with skyline of Minneapolis and Saint Paul in visor portion Lighting in background over a sunset gradient Season 22 October 18 doors at 5pm first whist at 6pm at Roy Wilkins Auditorium in downtown Saint Paul. Mnrollerderby.com

TERROR OF TWO CITIES, our first bout of season 22, is happening October 18th at the legendary Roy Wilkins Auditorium in downtown Saint Paul!

Doors open at 5pm with the first whistle at 6pm.
Get your tickets now: www.mnrollerderby.com/events-ticke...

06.10.2025 15:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
IMF Patient and Family Seminar 2025 โ€” Chicago, IL Register NOW for the FREE Patient and Family Seminar in Chicago, IL.ย  We are excited to announce that the 2025 Chicago Patient and Family Seminar will take place on October 3-4, 2025, in Chicago, Illi...

After a successful events this weekend in Massachusetts and NYC, the @imfmyeloma.bsky.social heads to the Chicago area for a Patient Family Seminar on October 3-4. Please join us! #knowmyeloma #mmsm www.myeloma.org/events/imf-p...

29.09.2025 16:33 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#BloodCancerAwarenessMonth is in full swingโ€”isn't it time your followers #KnowMyeloma too? Share your myeloma story with our new easy-to-use custom graphic creator to make an impact on your community. Make yours at knowmyeloma.org & don't forget to share with #KnowMyeloma!

21.09.2025 19:12 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Mark your calendars, we're coming to #Chicago for a free 2025 IMF Patient & Family Seminar on 10/3โ€“10/4! Learn about the latest developments in treatment, ask our panel of myeloma experts your questions. Save your seat: https://mmsm.link/4hzascT

30.08.2025 20:48 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#kNOwMyeloma, while most individuals with myeloma are diagnosed at age >65 we know that individuals may have a myeloma precursor disease (SMM, MGUS) for decades before diagnosis. Earlier diagnosis, earlier treatment, better outcomes.
@imfmyeloma.bsky.social

05.09.2025 15:27 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Enjoy TWO high-energy bouts in one night, get your hands on exclusive merch, and boogie your heart out during the halftime dance party!

Which team are you rooting for this season; Bodies of Water, Maul Rats, Roller Vortex, or Wednesday Warnings?
Drop your pick in the comments!

06.08.2025 16:00 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The #MyelomaMinute is out! Read & subscribe. We feature the state of myeloma in 2025, why quadruplet therapy is now the standard of care for newly diagnosed myeloma & upcoming events.
https://my.myeloma.org/webmail/1077653/993073649/2d6698c0ce975d3cd2b19778511a0d4cd2f985c9a2b1926d7da03ae29e7187c9

21.06.2025 19:22 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Poster for roller derby double header live on All Womenโ€™s Sport Network.
Rose City Axles of Annihilation vs Minnesota Roller Derby All-Stars
Happening July 19th, 2025, streaming on Pluto TV

Poster for roller derby double header live on All Womenโ€™s Sport Network. Rose City Axles of Annihilation vs Minnesota Roller Derby All-Stars Happening July 19th, 2025, streaming on Pluto TV

We got some exciting news!

Your MNRD All-Stars are taking on the @rosecityrollers.bsky.social -Axles of Annihilation, and you can watch them LIVE on the All Women's Sports Network!

Catch the second part of this historic series, streaming on Pluto TV, on July 19th at 8PM (10PM central time)!

23.06.2025 22:04 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Whether youโ€™re new to myeloma or have been receiving treatment for years, thereโ€™s something for you to learn at an @imfmyeloma.bsky.social Patient Education Series. Join us in Denver June 21st!

02.06.2025 16:52 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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What a wonderful first presentation in our patient education program today in Edina, MN. Thank you Dr. Joselle Cook (Mayo) for educating us on Understanding Myeloma Basics. @imfmyeloma.bsky.social #myeloma #patienteducation

26.04.2025 14:51 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

What an exciting game this is going to be, will you be there!?!

26.04.2025 14:47 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Image of a derby bout poster, advertising the MNRD event on April 26th at The Roy Wilkins Auditorium. The drawn image is of two skaters in space suits floating above a blue and green dappled planet. The skater on the left is head-up, with the skater on the right head down. The poster has the league logos of MNRD, Philly Roller Derby, and Ohio Roller Derby. 

Text is as follows:
Minnesota Roller Derby presents
BOUT OF THIS WORLD
An All Stars Extravaganza!

The Legendary Roy Wilkins
Auditorium

Tickets and more info at mnrollerderby.com

Doors at 5pm First Whistle at 6
Game 1                    Game 2
[PRD]                       [ORD]
vs                            vs
[MNRD]                   [MNRD]
All-Stars                  All-Stars
MN Nice

Center text:
April 
26
2025

Image of a derby bout poster, advertising the MNRD event on April 26th at The Roy Wilkins Auditorium. The drawn image is of two skaters in space suits floating above a blue and green dappled planet. The skater on the left is head-up, with the skater on the right head down. The poster has the league logos of MNRD, Philly Roller Derby, and Ohio Roller Derby. Text is as follows: Minnesota Roller Derby presents BOUT OF THIS WORLD An All Stars Extravaganza! The Legendary Roy Wilkins Auditorium Tickets and more info at mnrollerderby.com Doors at 5pm First Whistle at 6 Game 1 Game 2 [PRD] [ORD] vs vs [MNRD] [MNRD] All-Stars All-Stars MN Nice Center text: April 26 2025

Roller derby, but make it cosmic ๐Ÿ’ซ
This isnโ€™t your average derby nightโ€”itโ€™s Bout of This World!
On April 26, Minnesota Roller Derby will host its first All-Stars games of 2025 at the Roy Wilkins Auditorium. Two matchups are set for liftoff:
GAME 1: Philly vs. MN Nice
GAME 2: Ohio vs. MN All-Stars

12.04.2025 17:16 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Wellness is such an important part of survivorship. 1st session Iโ€™m attending at #ONS50, great to see hundreds of oncology nurses talking about sexual health, and how we have health conversations around it. Proud to be a part of the #IMFSGteam addressing wellness in #myeloma

09.04.2025 21:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Info-graphic with a photo underlay, announcing the Windchill Pre-Show Bout. Photo is of a previous Windchill pre-show with two opposing Blockers facing each other. There are more skaters beneath the text of the image. The corners of the image have flowing filigree bands in combinations of light and dark blue and white. 

Text is as follows:
THE
WINDCHILL
PRE-SHOW
BOUT

Come watch our training program
play before our Match 29th
Championship bout

Photo by Preflash Gordon

Info-graphic with a photo underlay, announcing the Windchill Pre-Show Bout. Photo is of a previous Windchill pre-show with two opposing Blockers facing each other. There are more skaters beneath the text of the image. The corners of the image have flowing filigree bands in combinations of light and dark blue and white. Text is as follows: THE WINDCHILL PRE-SHOW BOUT Come watch our training program play before our Match 29th Championship bout Photo by Preflash Gordon

Next weekend, our home teams will play their final bout of the season, and youโ€™re going to want to get there early!
MNRDโ€™s training program, the Windchill, are scrimmaging in the pre-show bout during CIRQUE DU DERBY ๐ŸŽช Theyโ€™ll be taking the track shortly after doors open!
(1/2)

22.03.2025 18:03 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
Infectious diseases specialist: 10 things to know about measles MD Andersonโ€™s Chief Infection Control Officer Amy Spallone, M.D., shares 10 facts about measles, including how to protect yourself, your loved ones and the community from the disease.

Great article Cancer & the measles outbreak. What it doesn't say is for the unvaccined-- an N95 will protect you from measles but you must be vigilant about wearing as droplets can stay active for over 2 hours.
And PLEASE WASH YOUR HANDS! #myelomamilestone www.mdanderson.org/cancerwise/i....

12.03.2025 15:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Itโ€™s #MyelomaActionMonth! My #MyelomaMilestone is that I started leading a support group for #myeloma patients and their care partners at the start of the COVID-19 pandemic. When ground-breaking research is combined with education, the result is HOPE! Basic science saves lives! ๐Ÿ’œ๐Ÿ˜Š #Grateful ๐Ÿฉท๐Ÿ’š

08.03.2025 20:12 โ€” ๐Ÿ‘ 9    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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One week from today, our home team skaters will clash in a dino-mite showdown of prehistoric proportions! ๐Ÿฆ–๐Ÿฆ•
Game 1: Maul Rats vs Wednesday Warnings
Game 2: Bodies of Water vs Roller Vortex
Who are you cheering for? ๐Ÿ’š๐Ÿฉท๐Ÿฉต๐Ÿ’œ
Thereโ€™s still time to get tickets๐Ÿ‘‰ bit.ly/MNRDb4s21

01.02.2025 19:03 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt

16.01.2025 17:36 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The PANGEA 2.0 model leverages trajectory data to improve the risk stratification of individuals with #SmolderingMyeloma.

Learn more in our recent interview with the lovely Irene Ghobrial:

๐Ÿ‘‰https://buff.ly/49ZYSFl

#Myeloma #MMSM #ASH24 #Hematology #HemeSky #HemeOnc @ash-hematology.bsky.social

08.01.2025 10:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Looking forward to hearing more on this, would be a game changer if it works. While radiation can help control lesions and pain it further compromises weak bones and healthy marrow producing areas. #mmsm

16.01.2025 03:46 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

โ€œA study published last year in JAMA Network, a publication of the Journal of the American Medical Association, found that 22% of cancer patients did not receive the care their doctors prescribed because of authorization delays or outright denials.โ€

27.12.2024 16:40 โ€” ๐Ÿ‘ 784    ๐Ÿ” 397    ๐Ÿ’ฌ 33    ๐Ÿ“Œ 24
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This is what #ash24 conferences are about, meeting and encouraging young learners. Both these @imfmyeloma.bsky.social scholars did a wonderful job on their posters looking into some great topics. Thank you to their mentors as well! #imfash24

09.12.2024 19:58 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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โ€œNow for the elephant in the roomโ€ addressing the specific infections in the studies, as every question section has questions on infection prevention thanks for getting to the point @dradsouza.bsky.social #ASH24 #IMFASH24

08.12.2024 18:11 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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How can we get more educated and eMMpowered patients? Bring them to the same conferences as their doctors! @imfmyeloma.bsky.social #IMFASH24 #ASH24

05.12.2024 22:15 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Imagine, educated and #eMMpowered patients. That is what the @imfmyeloma.bsky.social goal is with bringing support group leaders to #ASH24 #IMFASH24

05.12.2024 22:09 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@jwiew is following 20 prominent accounts