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Anna Motyl

@dibbouk.bsky.social

PhD, MND/SMA Research programme manager @My Name'5 Doddie Foundation All views my own #ALS #MND #SMA #RareDisease πŸ“ Edinburgh

117 Followers  |  87 Following  |  20 Posts  |  Joined: 25.11.2024  |  2.7628

Latest posts by dibbouk.bsky.social on Bluesky

Very proud to be a part of this community πŸ’™πŸ’›
One that brings together people affected by MND, their friends and families, our supporters and fundraisers, and also our researchers ~ thank you!

04.07.2025 08:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Front cover of Science Signaling journal with a micrograph of fluorescently labelled neuromuscular junctions (NMJs)

Front cover of Science Signaling journal with a micrograph of fluorescently labelled neuromuscular junctions (NMJs)

There are still few better feelings as an academic than when your paper’s image is chosen for the front cover of a journal #ProudPI #NMJ Confocal micrograph taken by the amazing @drchayts.bsky.social

15.04.2025 18:11 β€” πŸ‘ 54    πŸ” 5    πŸ’¬ 1    πŸ“Œ 1
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There’s only a few days to go until our webinar focusing on the Discovery Network and Advancing Treatments Award:

πŸ—“οΈ 15 April
⏰ 12pm

Researchers, if you’re thinking of applying, the webinar is a great chance to have questions answered and gain insights.

Join here πŸ‘‡
us06web.zoom.us/webinar/regi...

11.04.2025 09:08 β€” πŸ‘ 3    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0

πŸ‘©β€πŸ”¬ Join Dr Olivia Bird and me on the 15th of April at 12pm and ask us all your questions about our grant calls!

πŸ“£ Please share with researchers in your network who may be interested in applying, early career researchers included 🌟

07.04.2025 09:41 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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MND Non-Clinical Research Fellowships - DEMENTIA RESEARCHER Applications open for MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025.

Applications open for @mndresearch MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025.

www.dementiaresearcher.nihr.ac.uk/funding/mnd-...

30.03.2025 19:01 β€” πŸ‘ 3    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

Our Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to Β£1 million over 3 years!

Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky

24.03.2025 11:16 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

⚠️⚠️⚠️ Our Advancing Treatments Award is open for expressions of interest again! Get in touch with the research team at the Foundation if you have a project in mind/questions! πŸ’›πŸ’™ #MND #ALS #AcademicSky more announcements soon 🀫

18.03.2025 22:30 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We need new science stories I am midway through writing my 8th book. Please send help.

We need new science stories. New substack post, drunken cameo from @profaliceroberts.bsky.social

open.substack.com/pub/arutherf...

16.03.2025 08:38 β€” πŸ‘ 108    πŸ” 27    πŸ’¬ 21    πŸ“Œ 4

What good are remarkable scientific innovations and groundbreaking new treatments if policymakers don't follow suit, in the face of all the indisputable evidence in front of them?

05.03.2025 10:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We know from many studies and peer-reviewed publications that doing so alleviates financial costs for health organisations. We know it saves lives and can massively improve quality of life.

05.03.2025 10:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Spinal muscular atrophy in the UK: the human toll of slow decisions Spinal muscular atrophy (SMA) is a recessive condition that affects globally one in 14β€ˆ800 newborns.1 Infants with SMA type 1 do not acquire motor milestones and rarely survive beyond the first year o...

The fact that the UK still doesn't do newborn screening for SMA is nothing short of scandal. We have treatments we've known for years need to be administered as soon as possible.

Spinal muscular atrophy in the UK: the human toll of slow decisions - The Lancet www.thelancet.com/journals/lan...

05.03.2025 10:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Legends! ❀️‍πŸ”₯

04.03.2025 16:25 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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After rolling in to Glenalmond College for the night, teams on the blue route of Doddie’s Grand Tour were greeted by Gerard Butler, who heard we were in the area and wanted to come along to support and hear about what we're up to πŸ’ͺ

Wonder if we can convince Gerard to join us on the ride next year?πŸ€”

07.02.2025 17:04 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

What is the most exciting ALS/MND discovery research you've read recently/you're working on that is *not* focused on TDP43 or RNP biology? Please share some suggestions and papers!! #ALS #MND #AcademicSky

06.02.2025 14:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Gold.

24.01.2025 12:05 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

My Name'5 Doddie is on Bluesky! πŸ’™πŸ’› Give us a follow ⬇️

12.01.2025 21:48 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Lovely winter day to get started with #DoddieAid2025 - get moving this January, and join our challenge while supporting crucial research into Motor Neuron Disease #WeirInThisTogether

doddieaid.com/how-to-join

02.01.2025 15:55 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Super useful! Could you please add me too? :) MND researcher now working at My Name'5 Doddie Foundation, a research-funding charity in the UK (with international collaborations!)

04.12.2024 10:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Great that you like the Nation Leagues! Thanks so much for your support πŸ€—

03.12.2024 12:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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In case anyone on BlueSky hasn't seen it, this may be the funniest scientific study ever published. Bringing it up now as the amazing @scotsfriction.bsky.social has just issued a "teaspoon amnesty" for our common room www.bmj.com/content/331/...

28.11.2024 11:18 β€” πŸ‘ 66    πŸ” 22    πŸ’¬ 5    πŸ“Œ 2

I could definitely see that play a role in your love for EM!

27.11.2024 21:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Ooo, I'd love to take a peek at this one!

27.11.2024 09:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Doddie Aid 2025 Doddie Aid is a mass participation event, encouraging you to get active in January and raise funds to help find a cure to Motor Neuron Disease.

If you're a researcher working on MND, we created a Researcher League in the app - join it here directly for some healthy competition and to get involved with the community who raises the funds for your research

Please share! πŸ’™πŸ’›

@ukmndri.bsky.social

app.doddieaid.com/dashboard/le...

26.11.2024 17:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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MNDF announces milestone Β£18 million of funding for MND research as Doddie Aid 2025 launches on second anniversary of Doddie's death

There is much still to do, but with your support, we will continue to fund research and work towards finding a cure.

Let’s make 2025 the biggest Doddie Aid yet - Weir in this together.

Read the full announcement here:
www.myname5doddie.co.uk/whats-on/art...

26.11.2024 17:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Every single one of the 100,000 people who has joined us to jog, cycle or stroll over the past four years of Doddie Aid has played a role in this milestone.

Two years on from Doddie’s death, we are as focused as ever on reaching his goal of a world free of MND.

26.11.2024 17:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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We’re officially launching Doddie Aid 2025, with the announcement that My Name’5 Doddie Foundation has so far committed Β£18 million to vital motor neuron disease research πŸ”¬

Sign ups are now live, click below to get involved and download the new app πŸ‘‡
doddieaid.com
#DoddieAid25 #DoddieAid #MND #ALS

26.11.2024 17:10 β€” πŸ‘ 8    πŸ” 4    πŸ’¬ 3    πŸ“Œ 1

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