@fionacloud.bsky.social
Policy Director Kidney Care UK www.kidneycareuk.org Living with one donated kidney
Sonsare dreamt of growing old, then those dreams were put on hold, but on the eve of Organ Donation Week, Sonsare shares how thanks to an incredible family gifting Sonsare with precious lungs, he dreams again of getting old surrounded by his family:
shorturl.at/4G5as
Promotional image for Organ Donation Week, featuring a graphic of two smiling kidneys surrounded by a circle of human figures holding hands. Text states '6,887 people are waiting for an organ,' and the week runs from 22-28 September 2025.
🫀 It's Organ Donation Week, a chance to celebrate the lives changed by donation & to register your own organ donation decision 👉 organdonation.nhs.uk/register-you...
Want to get involved? Share this post or download our facts to post on your own profile ➡️ kidneycareuk.org/news-from-ki...
Promotional poster for the Diary of a Kidney Warrior Podcast episode 143, featuring Lucy and focused on Organ Donation Week. The image is red with images of the host and guest, Lucy mas well as the podcast logo.
📣 New episode! Organ Donation Week: Why your choice matters is the latest episode from #DiaryOfAKidneyWarriorPodcast. Listen here 👉 https://kidneycareuk.org/get-support/podcast/organ-donation-week-why-your-choice-matters/
For all of our Podcast episodes, tap here ➡️ https://kidneycareuk.org/podcast
With nearly 7,000 people in the UK on the #organdonation waiting list this debate comes at a very important time. Thanks for doing this, cc @kidneycareuk.bsky.social
25.09.2025 11:28 — 👍 0 🔁 0 💬 0 📌 0
This afternoon @cgrahamemsp.bsky.social will lead a debate marking organ donation week in Parliament.
Organ and Tissue Donation week runs from the 23rd-30th of September.
📺: www.scottishparliament.tv
This week is national organ donor week. An academic encourages others to join organ donation register after his twin’s transplant saves his life
northwestbylines.co.uk/news/health/...
Chef and dialysis patient Tony has spoken to BBC news about his experience of applying for PIP. We believe that the welfare system is too complex, stigmatising & does not reflect the needs of people with kidney disease.
Read Tony's story here: https://www.bbc.co.uk/news/articles/c4gzz0l7726o
In patients with CKD with and without type 2 diabetes, treatment with dapagliflozin slows the decline in health-related quality of life. Read more in #ASNJASN: kidney.pub/JASN0776
Sad but glad that Brett Dowds was included in here as a patient contributor; he has passed away but was a guy that made a difference kidneywales.cymru/kidney-wales...
15.08.2025 22:08 — 👍 2 🔁 1 💬 0 📌 0
A letter with visible logos of Kidney Care UK, Kidney Research UK, PKD Charity, UK Kidney Association and The National Kidney Federation at the bottom, addressing important health policy commitments.
🖊️ Do you feel #KidneyDisease is overlooked? It’s time to act. Sign our open letter to the Prime Minister calling for a national #CKDstrategy & a better future for kidney patients 👉 www.ukkidney.org/prime-minist...
@Kidney_Research @kidneycareuk @NKF_UK @PKDCharity @UKKidney
Promotional graphic by Kidney UK discussing the impact of inadequate support on individuals with kidney disease, featuring a quote on emotional challenges and an image of the report.
📣 Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease.
Click here 👉 kidneycareuk.org/news-from-ki...
Elderly person sitting on a couch, head bowed into hand, looking distressed. Text reads a quote about their spouse leaving after a long-term illness, with the Kidney Care UK logo visible.
🖋️ On Wednesday we launched our latest report, 'Left to get on with it', focusing on the real impact of inadequate psychosocial support in kidney care.
Read the full report here 👉 kidneycareuk.org/get-involved...
Three people standing on stage at the Global Patient Partnership Summit, smiling with a presentation screen in the background displaying the award shortlist. One individual is holding a microphone and another a green card. The setting has colourful ambient lighting.
Promotional image for Kidney Care UK's Bloody Amazing Kidneys campaign featuring two stylized kidneys in a red and black colour scheme. Text reads 'Kidneys are #BloodyAmazing. Support Kidney Care UK’s #BloodyAmazingKidneys campaign.' The Kidney Care UK charity logo sits at the top centre of the image.
🏆 Feeling incredibly proud of our #BloodyAmazingKidneys campaign winning the Global Innovation Partnership Award from @boehringerglobal.bsky.social last night at the Global Patient Partnership Summit. It's wonderful recognition of the impact of the campaign.
12.06.2025 11:40 — 👍 3 🔁 1 💬 0 📌 0And we are all so pleased that the kidney health resolution was passed. Thank you!
30.05.2025 20:16 — 👍 2 🔁 1 💬 0 📌 0
Promotional image featuring the slogan 'WHO says Yes: Kidney health is a global priority!' alongside a stethoscope and a model of earth. Logos of Kidney Care UK, Kidney Research UK, Kidney Wales, NKF, PKD charity, Popham and UKKA are listed at the bottom.
❗We welcome the announcement today that the @who.int has formally adopted a resolution to reduce the burden of #KidneyDisease. You can read more about this milestone here 👇 kidneycareuk.org/news-from-ki...
@kidneyresearchuk.org, Kidney Wales, @nkf-uk.bsky.social, PKD Charity, Popham, @ukkidney.org
Fiona Loud with Guatemalan ambassador José Francisco Calí Tzay who has been one of the leading nations calling for the resolution.
Fiona Loud at the 78th World Health Assembly #WHA78 in Geneva.
1/3🤝This week @fionacloud.bsky.social, our Policy Director, has been in Geneva for the 78th World Health Assembly (#WHA78), talking about why #KidneyHealth needs to be seen as a #GlobalPriority. @who.int @theisn.org
Yesterday she met with Guatemalan ambassador (José Francisco Calí Tzay), ...
Historic decision at #WHA78:
Member States of WHO today formally adopted by consensus the world's first #PandemicAgreement to make the world more equitable and safer from future pandemics.
🔗 bit.ly/43p0DsH
One of the key themes from our parliamentary roundtable event last week was how we can learn from what other countries are doing to increase the number of people with CKD identified and diagnosed sooner. Read more here: kidneycareuk.org/about-us/pol...
20.05.2025 19:47 — 👍 2 🔁 2 💬 0 📌 0
Our Policy Director Fiona Loud will be joining the #WHA78 #CKMForum on 22 May. She will be sharing why early diagnosis & better, more coordinated, care for Cardiovascular-Kidney-Metabolic (CKM) conditions needs to be part of the global #NCD conversation 👉🏼 bit.ly/ckmforum
18.05.2025 06:31 — 👍 1 🔁 1 💬 0 📌 0
📣 Join ISN & @devex.com at #WHA78 side event: Kidney Health Matters: A Policy Imperative for Economic Resilience
🗓️ May 21 | 🕣 8:30 CEST
👉 Attend or join the live stream: pages.devex.com/kidney-healt...
With support from: @astrazeneca.bsky.social, @boehringerglobal.bsky.social, @novartis.bsky.social
UN Member States must support this resolution and vote in favor at the #WHA78 to drive meaningful action on kidney health.
🔗 theisn.org/in-action/ad...
The 78th World Health Assembly #WHA78 takes place May 19–27 in Geneva.
A proposed resolution, led by Guatemala and cosponsored by 19 countries, calls for global action on kidney disease, which affects 850M people and is projected to become the 5th leading cause of death by 2050
Be part of the conversation with people with #transplant in the @esottransplant.bsky.social webinar. How to cope with infection risk? @fionacloud.bsky.social
24.04.2025 15:54 — 👍 0 🔁 1 💬 0 📌 0
Kidney disease is a worldwide killer. Treat it that way www.nature.com/articles/d41...
22.04.2025 20:56 — 👍 2 🔁 1 💬 0 📌 0
Health awareness poster by Kidney Care UK displayed in a modern office setting, showing detailed illustration of kidneys, stating "Did you know you can lose 90% of your kidney function without realising?" Includes QR code for more information.
😲 It's been 6 months since our #BloodyAmazingKidneys awareness campaign went live, with our posters & adverts featuring QR codes linked to the Checker being scanned more than 2,200 times so far!
To download & display a poster somewhere, click here: kidneycareuk.org/kidney-disea...
📣 Next month in Geneva, the World Health Assembly, the decision making body for the World Health Organisation @who.int will be debating whether to make #KidneyHealth a priority.
We're calling in the UK govt to support this, find out more here 👉👇 kidneycareuk.org/about-us/pol...
At yesterday's Liaison Committee, I asked the Prime Minister about the Pathways to Work Green Paper.
There is real concern about the quality of the impact assessment. The @jrf-uk.bsky.social estimates the changes will push 400,000 people into poverty, not the 250,000 the government predicted.
Good morning all! And some great news to kick off the day!
After much effort from a coalition of patient groups including @nationalvoices.bsky.social @healthwatchengland.bsky.social and @patientsassoc.bsky.social NHS letters are due to get special status!
www.independent.co.uk/news/uk/home...
Despite gd intentions navigating England’s “complex” health and care system is “extremely difficult” and carers and patients are experiencing burnout, distress and harm as a result.
www.theguardian.com/society/2025...
Our friend and colleague Nick Palmer absolutely smashed his run on Sunday raising over £3k for the charity! Thank you Nick 😍 💪
07.04.2025 19:42 — 👍 2 🔁 1 💬 0 📌 0
