17.03.2025 19:04 β π 2 π 0 π¬ 0 π 0
Did you know?
Every 90 minutes someone is diagnosed with ALS.
31.01.2025 22:38 β π 1 π 1 π¬ 1 π 0
Living with ALS is a challenge every day - Let's Kick ALS Together
24.01.2025 23:35 β π 1 π 0 π¬ 0 π 0
What a blessing that would be π
#endALS
25.12.2024 16:09 β π 1 π 1 π¬ 0 π 0
To all ALS/MND researchers: thank you for your tireless work and dedication. Your efforts bring hope to so many. I'll keep raising funds to support your missionβtogether, we can find the cure. Here's to breakthroughs, progress, and a future without ALS/MND! π #EndALS #MND
21.12.2024 22:38 β π 6 π 0 π¬ 0 π 0
ALS robs people of their strength, voice, and independence. Together, we can fight back. Support those living with ALS and fund vital research. Every donation makes a difference. π Donate now to ALS Quebec and help end ALS: www.alsquebec.ca/donate
20.12.2024 21:58 β π 1 π 1 π¬ 0 π 0
This Christmas, letβs reflect on ALSβs impact. Thousands face the holidays battling a disease that robs them of movement, speech, and independence. Families feel the strain of caregiving and financial burdens. Letβs spread hopeβsupport research, donate, or lend a hand to those in need. π #EndALS
18.12.2024 19:30 β π 2 π 0 π¬ 0 π 0
Live your life to the fullest this holiday season. Be grateful that you're alive. #fightALS
15.12.2024 13:59 β π 1 π 0 π¬ 0 π 0
Do not take life for granted. ALS or countless other diagnoses can steal it from you. Live your life to the fullest. #FightALS #CoachPhil4ALS
13.12.2024 15:49 β π 0 π 0 π¬ 0 π 0
ALS, you won't steal my humor!
#FightALS #CoachPhil4ALS
12.12.2024 16:07 β π 3 π 0 π¬ 4 π 0
Fight Against ALS
ALS touches more lives than you thinkβchances are, you know someone affected. This relentless disease steals independence, but we wonβt let it win. Together, through awareness, research, and support, we can defeat ALS. Stand with us and make a difference.
#FightALS #CoachPhil4ALS
11.12.2024 20:57 β π 3 π 0 π¬ 1 π 0
Mondays at 9pmET on MSNBC
MaddowBlog.com
From Russia with Lev: MSNBC.com/Lev
Ultra podcast: MSNBC.com/Ultra
Prequel: MSNBC.com/Prequel
Disrupter. Director of Digital at a media company. In a relationship with @RogueNerdOne Corgi mom. BBQ enthusiast. Books, music, art. Punk. Born in #YVR. Lives in #YEG π¨π¦
https://scilogs.spektrum.de/die-sankore-schriften/
π§ π§¬PhD in Neurogenetics
#Neurogenetics
#Neurodegeneration
#Neurolinguistics
#DeepLearning
#Surveillancecapitalism
#Chess
#Macroevolution
#Evo-Devo
#BrainMachineInterface
#BlackLiterature
#AfricanDiaspora
Medical School Counselor, Lost my partner of 40 years to ALS. #ALSSUCKS
#EndALS #IAmALS. Love my dogs and hate trump. No DMs unless I know you. #Resistance2.0
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
Academic lawyer/bioethicist studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), and clinical research ethics and regulation, with a splash of psychedelics.
Division Chief of Pediatric GI at SUNY downstate. Pain, EED, health equity, and intestinal barrier science. formerly of UCSF/Columbia. Ed board @jpgnreports . hater of ALS. only represent me. he/him
Afro Cuban, Husband, Dog Dad, Fmr Business Analyst & an FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. ππ³οΈβπ
https://linktr.ee/tavaresspeer
Neuroscientist π§ | ALS researcher π§ͺπ©π½βπ¬ | human | biotech | she/her
There is no π without ART
Lapsed historian turned web product person turned #ALS warrior. Aspiring novelist. Dad. Long-suffering #NUFC & #RipCity fan. Suffering builds character. Columbia City, Seattle via Portland & SF. βοΈβοΈβοΈ
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org.
Designed & built a custom AAC eye gaze computer.
BCI candidate to drive my exoskeleton. Python & CoPilot noob.
Interested in EAPs. #MedSky
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinsonβs, FTD, rare diseases. #patientsincluded
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
onein300.com
In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit