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MND Research

@mndresearch.bsky.social

Every day we drive research into motor neurone disease β€” from understanding causes to finding treatments. Because every day matters.

92 Followers  |  20 Following  |  22 Posts  |  Joined: 11.12.2024  |  1.7519

Latest posts by mndresearch.bsky.social on Bluesky

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1 month to go πŸŽ‰

This time next month we will be joined by over 800 people from the #ALS #MND community for the 36th International Symposium on ALS/MND.

Are you one of them?

If not… register today for in person or virtual ⬇
symposium.mndassociation.org/register/
#alsmndsymp

05.11.2025 14:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

Time is running out to register for the Annual Stephen Hawking #MND LectureβŒ›οΈ

In-person spots are full, but you can still join the waiting list or attend online!

Join us to learn more about applying genetic research in MND care -book before 28 Oct on mndassociation.org/education-ev...

13.10.2025 09:40 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Text reads: Join us in San Diego, California, 5-7 December 2025

Text reads: Join us in San Diego, California, 5-7 December 2025

Prices are rising tomorrow! πŸ“ˆ

Want to hear the latest #MND #ALS research updates? Make sure you register for the 36th International Symposium on #ALS #MND TODAY before the price goes up!

Register now: symposium.mndassociation.org/register/
#alsmndsymp

14.10.2025 07:17 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Text reads: Now open! Accepting applications for biomedical research projects. Deadline: 31 October 2025

Text reads: Now open! Accepting applications for biomedical research projects. Deadline: 31 October 2025

Applications for our Biomedical Research Projects are open. πŸ”¬πŸ§ͺ
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
πŸ“† Deadline: 31 October
More info: www.mndassociation.org/research/for...

02.10.2025 07:58 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

It's the last week to register for the 2025 CoP Networking Day!

πŸ“…7 October
πŸ“Birmingham

Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK

See what guests said about past events and find out more on mndassociation.org/education-ev...

22.09.2025 14:49 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We're hosting Harnessing AI for ALS: Longitude Prize on ALS networking event, in London. Make sure to attend on 14 October. Spaces are limited so please register before 20 September. www.linkedin.com/events/harne...

22.09.2025 16:27 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Tell us your views on MND research Please take the time to complete our survey. Your feedback is important.

We've published our new organisational strategy, which has renewed our commitment to research.

Now we want to hear from #MND #ALS researchers πŸ”¬

Please complete this survey to tell us more about your views πŸ‘‡
www.smartsurvey.co.uk/s/EOLHKG/

Thank you πŸ’™πŸ§‘

19.09.2025 10:47 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Behind the Scenes of Peer Review Discover how peer reviewers on the BRAP and HRAP panels help shape MND research funding. Professor Rob Layfield shares insights into the peer review process and its impact on advancing innovative MND ...

This @peerreviewweek.bsky.social we’re highlighting the vital role that peer reviewers play in helping us to ensure we fund the best and most promising #MND research πŸ”¬

Read more about this in our latest blog post πŸ‘‡
mndresearch.blog/2025/09/18/b...

18.09.2025 16:39 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This @peerreviewweek.bsky.social we would like to say a massive thank you to all @mndassoc.bsky.social peer reviewers who have volunteered their time to review applications for #MND research funding! πŸ‘

This year, we've had 180 peer reviews from experts in the field! Thank you!

17.09.2025 14:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“£ Virtual registration now open!πŸ“£

Can’t make it to San Diego for the 36th International Symposium on #ALS/#MND?

Join us virtually to access:
πŸ“Ή select live-streamed sessions
πŸͺ§ the virtual poster hall
πŸ“Ί on-demand access to all sessions

Register: symposium.mndassociation.org/register/

08.09.2025 12:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Text reads: Beat the price rise! 36th International Symposium on ALS/MND

Text reads: Beat the price rise! 36th International Symposium on ALS/MND

Time is running out! βŒ›

Early bird registration for the 36th International Symposium on #ALS #MND closes tonight!

Register now ⬇️
symposium.mndassociation.org/register
#alsmndsymp

05.09.2025 10:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Protein signature could predict ALS a decade early A new study has identified a blood-based protein signature that may predict ALS up to ten years before symptoms appear.

A new study has identified a blood-based biomarker panel that can detect #ALS up to a decade before symptoms appear.

Using machine learning and protein profiling, researchers found 33 proteins that distinguish ALS from other conditions.

ukmndri.org/2025/08/28/2...

28.08.2025 13:40 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🚨 Beat the price rise! 🚨

Make sure you register before 5 September to get the early bird rate for the 36th International Symposium on #ALS/#MND.

🌍 San Diego, USA and Online
πŸ“† 5-7 December 2025

Register today: symposium.mndassociation.org/register

29.08.2025 10:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Celebrating 10 years of our Non-Clinical Fellowships! Learn about the impact of Non-Clinical Fellowships in MND research and their role in shaping future leaders in the field.

This week we’re celebrating 10 years of @mndassoc Non-Clinical Fellowships! πŸŽ‰

Check out our latest blog where we take a deeper dive into this programme and what’s happened so far πŸ‘‡

mndresearch.blog/2025/08/18/c...

18.08.2025 12:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Encourage 2025
YouTube video by MND Association Encourage 2025

Developing the next generation of researchers is vital in the fight against #MND #ALS πŸ§‘β€πŸ”¬

Last month we held #MNDEnCouRageUK, designed specifically to support and develop future research leaders.

Watch below to find out more ⬇️
www.youtube.com/watch?v=88pV...

13.08.2025 07:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Text reads: Beat the price rise! 36th International Symposium on ALS/MND

Text reads: Beat the price rise! 36th International Symposium on ALS/MND

Join us at the largest scientific and medical conference dedicated to #MND #ALS!

🌍 San Diego, USA and Online
πŸ“† 5-7 December 2025
🐀 Early bird registration closes 5 September!

Register today: symposium.mndassociation.org/register/
#alsmndsymp

05.08.2025 15:22 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Tell us your views on MND research Please take the time to complete our survey. Your feedback is important.

We recently published our new organisational strategy, which has renewed our commitment to research!

Now we want to hear from #MND #ALS researchers πŸ”¬
Please complete this survey to tell us more about your views πŸ‘‡
www.smartsurvey.co.uk/s/EOLHKG/

Thank you πŸ’™πŸ§‘

21.07.2025 08:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Senior Research Technician - DEMENTIA RESEARCHER The Isaacs Lab at UCL, London, seeks a Senior Research Technician to assess CRISPR gene therapy for FTD/ALS in C9orf72 mice, lead assays, & manage lab research

The Isaacs Lab @adrianisaacs.bsky.social at UCL, London, seeks a Senior Research Technician to assess CRISPR gene therapy for FTD/ALS in C9orf72 mice, lead assays, and manage lab research on neurodegeneration. Closing date: 30th July

www.dementiaresearcher.nihr.ac.uk/job/senior-r...

11.07.2025 10:36 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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πŸ“£ Introducing part two of our #MND #ALS blog series! πŸ“£

Back to basics aims to break down topics in MND research to help the community follow the latest research more easily.

Continue your MND research journey todayπŸ”¬ ⬇️
mndresearch.blog/back-to-basi...

11.07.2025 10:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Text reads: submit your abstract! 36th International Symposium on ALS/MND.

Text reads: submit your abstract! 36th International Symposium on ALS/MND.

🚨Last chance🚨

Today is the last day to submit an abstract for the 36th International Symposium on #ALS/#MND research!

Don't miss out on presenting at the largest international conference dedicated to ALS/MND.

Submit today (by 23:59 BST) πŸ‘‡https://symposium.mndassociation.org/abstracts/
#alsmndsymp

10.07.2025 07:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tell us your views on MND research Please take the time to complete our survey. Your feedback is important.

@mndassoc.bsky.social recently published our new organisational strategy, which has renewed our commitment to research.

Now we want to hear from #MND #ALS researchers πŸ”¬

Please complete this survey to tell us more about your views πŸ‘‡
www.smartsurvey.co.uk/s/EOLHKG/

Thank you πŸ’™πŸ§‘

26.06.2025 16:15 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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⏳ Time is running out! ⏳

If you are planning on submitting an abstract to present your #MND #ALS research at the 36th International Symposium on #ALS/#MND, you only have two weeks left!

⏰ Deadline 10 July (23:59 BST)

Submit today: symposium.mndassociation.org/abstracts/
#alsmndsymp

26.06.2025 11:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tacrolimus added as the fourth investigational arm in MND-SMART

MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies

Read more about this milestone here πŸ‘‰ edin.ac/4jWf0uM

#GlobalMNDAwarenessDay #ALS

20.06.2025 14:21 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 2
Text reads: Rob Burrow Early Career Researcher Prize. UK based Early Career Researchers investigating MND/ALS. No more than 6 years post-PhD experience. Publication record in the field. Apply by 28 July 2025.

Text reads: Rob Burrow Early Career Researcher Prize. UK based Early Career Researchers investigating MND/ALS. No more than 6 years post-PhD experience. Publication record in the field. Apply by 28 July 2025.

Are you an early career researcher working in #MND #ALS in the UK❓

Why not apply for the new @mndassoc Rob Burrow Early Career Researcher Prize? πŸ†

Find out more and apply⬇️
www.mndassociation.org/research/for...

20.06.2025 15:54 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Axonal pathophysiology in ALS: investigating the role of FUS-ALS mutations in axonal damage and regrowth at University College London on FindAPhD.com PhD Project - Axonal pathophysiology in ALS: investigating the role of FUS-ALS mutations in axonal damage and regrowth at University College London, listed on FindAPhD.com

If you are looking for a PhD, are passionate about neurobiology and enjoy microscopy, come and join us for a PhD project on axonal pathophysiology in ALS!

www.findaphd.com/phds/project...
Applications close on Friday 4th July 2025

@mndassoc.bsky.social
@uclqsion.bsky.social

15.06.2025 11:25 β€” πŸ‘ 11    πŸ” 13    πŸ’¬ 0    πŸ“Œ 0
York and Scarborough Research Team pictured with Principal Investigator Malcolm

York and Scarborough Research Team pictured with Principal Investigator Malcolm

πŸ”” New Trial Centre Open πŸ””

Led by Principal Investigator Dr Malcolm Proudfoot, York & Scarborough Teaching Hospitals have joined the MND-SMART team.

Read more here πŸ‘‰ mnd-smart.org/news/mnd-sma...

#MND #ALS #MND-SMART #MAMS

18.06.2025 14:22 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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Great to have some of our research team at #ENCALS last week πŸ”¬

The event presents a unique opportunity for collaboration and networking amongst researchers and funders, allowing them to share knowledge, ideas and advancements in their fields.

More details πŸ‘‡
www.myname5doddie.co.uk/whats-on/art...

13.06.2025 09:06 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Text reads: submit your abstract! 36th International Symposium on ALS/MND

Text reads: submit your abstract! 36th International Symposium on ALS/MND

🚨 Less than 1 month to go! 🚨

If you want to share your research with the global #MND #ALS research community, make sure you submit your abstract for #alsmndsymp by 10 July!

More info: symposium.mndassociation.org/abstracts/

13.06.2025 09:00 β€” πŸ‘ 0    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
Text reads: Submit your abstract! 36th International Symposium on ALS/MND.

Text reads: Submit your abstract! 36th International Symposium on ALS/MND.

πŸ“£ Call for abstracts! πŸ“£

Share your research at the 36th International Symposium on ALS/MND! #alsmndsymp

Submit your abstract for the chance to present your work at the largest conference dedicated to #ALS #MND.

πŸ“† Deadline: 10 July

More details: symposium.mndassociation.org/abstracts/

02.06.2025 13:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Text reads: Join us in San Diego, California. 5-7 December 2025.

Text reads: Join us in San Diego, California. 5-7 December 2025.

πŸ’₯Registration and abstract submission now open! πŸ’₯

Join us at the 36th International Symposium on #ALS #MND to connect, network and collaborate with the global community.

πŸ“† 5 – 7 December 2025
πŸ“San Diego, USA
πŸ‘‰ More details: symposium.mndassociation.org
#alsmndsymp

12.05.2025 09:40 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@mndresearch is following 20 prominent accounts