Tess Falor, Ph.D.

Andrew works in the Zhu lab, which develops technologies using mass spectrometry-based metabolomics, in combination with advanced chemometrics, for the sensitive, reliable and non-invasive detection and monitoring of human diseases.

Andrew Gold, a PhD student at Ohio State, saw the fundraiser posts, thanks to everyone sharing them, and reached out to me to offer lower cost metabolomics testing.

Exciting news! The community raised enough money to cover all of the samples for David Esteban's study. We don’t have to raise the full $7k, because a lab has offered to run them for lower cost! 🙌

Total so far is $4,356 of $7,000 goal raised! Pls donate if possible - every $5 matters - more than double the impact of this PASC (Long Covid) metabolites study (lab closed that was to process the samples). This research will likely help people with ME/CFS as well and other populations. #medsky

Wow! Making good progress on this fundraiser @tessfalor.bsky.social 😊 Just a little more to go folks... donations of any size will help complete this very important #longCovid study!

The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!

#LongCovid

This is just a pilot/feasibility study, but maybe we will find some clues to follow up on with larger N & more controlled testing. Even if we don't, we will come out with new skills & a more connected team. It's going to be so fun!

We pride ourselves on decentralized studies, but this one will save a lot of money by coming together for it & analyzing our own samples, rather than mailing in samples.

Dates are set! May 13-19. #InnovationInn

5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.

Support David Esteban's study on Microbial Metabolites in Long COVID * Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...

Hey y’all—David Esteban’s @patientled.bsky.social funded Long Covid study has hit a snag just before the finish line—the cost to process samples went up. They’ve collected 43 but now can only run 20. $7000 would cover the rest!

Thanks so much for giving or boosting!

Yay! Thanks for sharing and donating!

Support David Esteban's study on Microbial Metabolites in Long COVID * Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...

The $7k would amplify the study's impact on understanding Long COVID!

Read more about the study and donate here: www.zeffy.com/en-US/fundra...

A new company can analyze the samples, but it’s double the cost, so doesn’t fit into the budget.

He has funding for only 20 of the 43 collected samples. If we can raise $7k more we can run the additional 23 samples, though!

The hardest part of the study has been completed. 43 samples are at Vassar, collected from Long COVID patients all around the US.

... and then we found out that the planned metabolomics company can no longer run the samples.

The proposal was funded & I was fortunate to become a patient rep for it, along with @themegascope.bsky.social 🥳

Side note: this was another cool aspect of the Patient Led process. Each project that was funded was given 2 patient reps to give input at all stages.

My favorite proposal was by David Esteban at Vassar, a cost-effective study of microbial metabolites in Long COVID using decentralized at-home sample collection. The possible impact/cost ratio was huge!

3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the @patientled.bsky.social research fund).

It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.

🧵

Round Table on lactate levels in #MECFS and #LongCovid! 👇

Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!

Bio photo of Steve Smith, MD You are invited to attend our next Renegade Research #Clinician Roundtable on April 11, 2025 ✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more. https://us06web.zoom.us/webinar/register/3817419991507/WN_stWTJAMYRse9wUGUsDwm-Q#/registration

You are invited to attend our next Renegade Research #Clinician Roundtable on April 11, 2025

✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more.

us06web.zoom.us/webinar/regi...

Near Ann Arbor, Michigan

Nice. This is great! Thanks for putting together

Very excited to say that @crunchme.bsky.social's first report is out and about 🙌

The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions

Our goal here is to bring together the key info needed to make the case for taking action *now*!

drive.google.com/file/d/17fgU...

Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples.

It's happening. My house. April or May 2025.

@RenegadeRes #RenegadeResearch

#InnovationInn #ResearchRetreat
🔬🏡

I do have the Aspen Vista and like it. I just go by feel for adjusting fit, though.

Maybe @isabelrb.bsky.social has some tips?

Welcome! You are invited to join a webinar: Clinician's Roundtable with A. Azola, MD, & P. Rowe, MD, of Johns Hopkins ME/CFS Clinic, Part 1. After registering, you will receive a confirmation email ab... Johns Hopkins MECFS Clinic Update Part I (Clinical) Drs. Azola and Rowe will prepare a case presentation and then respond to Q&A from the audience. Alba Azola, MD is an Assistant Professor of Physic...

us06web.zoom.us/webinar/regi...

"426 (59%) were Dx w/Chiari, which shared a significant overlap w/hEDS. Of those who elected to undergo surgery (n = 612), 61% required craniocervical fusion. Notably, of the 460 individuals diagnosed w/hEDS, 404 chose surgical intervention, of which, 73% required CCF for craniocervical instability"

We found that individuals with hEDS had a higher frequency of certain comorbidities, such as Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome, and neurosurgical intervention compared to individuals without a CTD diagnosis (unaffected).

"460 (64%) individuals were diagnosed with hEDS, 7 were diagnosed with a CTD other than hEDS, and 250 lacked a formal CTD diagnosis.

#MEspine #MEspine24 #MEspine25 #hEDS #EhlersDanlos