Open Science: What do patients or people with lived experience think?
My name is Laurie Proulx and I have lived with a chronic condition for most of my life. For the last 15 years, I have been active as a patient partner in research. On March 21, 2025, I am presenting t...
I am presenting at an Open Science event on March 21st & would like to get the patient community involved & influencing how I present the patient perspective. If you have 5 minutes, please consider completing this survey to share your feedback: docs.google.com/forms/d/e/1F... Many thanks!
13.03.2025 15:08 β π 12 π 11 π¬ 1 π 1
#courage
21.02.2025 01:21 β π 0 π 0 π¬ 0 π 0
So proud to be part of a team that will co-develop a psychometric tool to evaluate #coproduction in #mentalhealth #patientorientedresearch #research #spor @camhnews.bsky.social @camhresearch.bsky.social
02.02.2025 03:46 β π 3 π 0 π¬ 0 π 0
a cartoon character from inside out is saying hi while stretching her arms .
ALT: a cartoon character from inside out is saying hi while stretching her arms .
If you love #research #patientengagement #PPI #POR, please let me know so I can follow you! I really miss my community & hope to connect and reconnect here to this important work! β€οΈ. (is there a way to follow hashtags on this platform)?
20.01.2025 22:15 β π 6 π 0 π¬ 0 π 0
Director, Centre for Education and Research on Aging & Health (CERAH), #Lakehead University - Social Work Assoc. Professor, Qualitative Researcher, Podcast Host, Canadian Grief Alliance
Dad. Son. Spouse. Ottawan. π³οΈβπ
Health and healthcare advocate, CEO of the Canadian Medical Association.
Vive le Canada! π
Welcome! Iβm a scientist, advocate, editor, and mentor. I value meaningful, professional connections and prioritize messages related to advocacy, mentoring, and collaboration. I do not engage in personal/unsolicited inquiries. Thanks for understanding
Public contributor | Honorary Research Associate @CardiffUni | Advocate for womenβs health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public β¨ Crocheter & Rescue Dog Mum
Lover of old films, books, Doris Day and Rosemarys Baby and other who-haa. Cranky empath. Dealing with servere ME. and cancer. Politically sensible, sensitive and left.
Patient Partner UBC + UVIC, Research Ambassador BC SUPPORT Unit via SPOR (Canada's Strategy for Patient-Oriented Research). Re-posts = enthusiasm!
Mom of 6. Active patient partner with varied interests.
Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafoundation #KnowledgeTranslation #KnowledgeSynthesis #RareDisease #PainScience #Disability
We believe the best solutions come when people with lived experience are equal partners in decision-making. As a peer-led organisation with 2,200+ network members, weβre transforming how society addresses complex challenges.
https://expertlink.org.uk/
SPOR National Training Entity | EntitΓ© nationale de formation de la SRAP
Wildlife photographer in British Columbia Canada. All photos are mine and of wild animals or birds. You might notice that I have a particular fondness for photographing owls.
Scientist she/her; Canada Research Chair, investigating how our early life environment modifies our health; @McMaster U Canada, Dept Biochem & Biomed Sci; opinions are my own
www.slobodalab.com
@sloboda_lab
www.artofcreationstudy.com
@aoc_study
Canada's #1 source for weather forecasts, news and information βββ‘β #ShareYourWeather videos and photos with us!
https://www.theweathernetwork.com/ca
We want a fairer, more sustainable Wales where everyone has a voice that's heard. Come and join us!
https://linktr.ee/copronetwales
An Inquiry to develop an action plan for the UK HE sector to better support co-produced and participatory research. Led by Catherine Durose (Liverpool), @itsbethperry.bsky.social (Sheffield) and Liz Richardson (Manchester). LinkedIn: /groups/14550112/
We train, mentor, and mobilize todayβs advocates, champions, and leaders in family engagement.
π - https://linktr.ee/familyengagementinresearch
π - What is the FER Course? https://tr.ee/lKU4zw
π - Ready to apply for the FER Course? https://tr.ee/Z1Kj79
The NIHR Applied Research Collaboration (ARC) West is one of 15 @nihrarcs.bsky.social funded by the National Institute for Health and Care Research (@nihr.bsky.social). We work with our partners in the West of England on applied health and care research
We are a #co-production community where everyone is welcome! Together we learn, connect and champion co-production for lasting change.
www.coproductioncollective.co.uk
Saskatchewan Centre for Patient-Oriented Research
Professor, Epidemiologist, Research Chair in University Teaching. Teller of stupid jokes, Keeper of good hair, Servant to a 5-year old, Scourge of the ignorant.
www.deonandan.com