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Autoinflammatory Alliance

@autoinflammatory.bsky.social

The Autoinflammatory Alliance is a 501c3 nonprofit org helping to improve awareness, care and treatment for rare autoinflammatory and immunedysregulatory diseases. We are here to help patients, caregivers, and support research.

109 Followers  |  6 Following  |  2 Posts  |  Joined: 17.11.2024  |  1.421

Latest posts by autoinflammatory.bsky.social on Bluesky

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πŸ“£ Calling all rare disease community members. #RareDC2025

Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.

Take action: everylifefoundation.quorum.us/campaign/111...

25.02.2025 12:39 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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Update on ocular manifestations of the main monogenic and polygenic autoinflammatory diseases Autoinflammatory diseases include disorders with a genetic cause and also complex syndromes associated to polygenic or multifactorial factors. Eye involvement is present in many of them, with differen...

This is a great paper showcasing eye involvement in #autoinflammatory diseases from earlier this year. This week, we heard from a patient that their #Rheum was not aware of SAID #ophthalmology findings, so I am sharing this here to spread some awareness. pmc.ncbi.nlm.nih.gov/articles/PMC...

13.12.2024 01:08 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Hello! The Autoinflammatory Alliance has joined Blue sky. #autoinglammatory #immunedysregulation #cytokines #inflammasomes #rheumatology #immunology

17.11.2024 08:31 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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