Poor walnut brain kitty!
16.09.2025 00:19 β π 1 π 0 π¬ 0 π 0@evacatherder.bsky.social
Chronically ill with severe gastroparesis. Proud tubie screaming into the void. But, cats! Find me at mojovampire.com
Poor walnut brain kitty!
16.09.2025 00:19 β π 1 π 0 π¬ 0 π 0This is my new superhero logo. I am Triple-tubed Girl. mojovampire.com/burnout/
#tubie #gastroparesis #chronicillness
Yeah, I tried Reglan and Domperidone and both gave me tremors. And I agree, so many of our very few options are horrible.
02.04.2025 19:54 β π 0 π 0 π¬ 0 π 0Thatβs because it is horrifying. And same here, I can dull it, but it doesnβt go away. Compazine helped it the most, but it gave me serious tremors. My right arm was just jumping around and I had no control. So I had to go off it.
31.03.2025 17:08 β π 1 π 0 π¬ 1 π 0I hate the nausea. It is worse than the pain IMHO.
30.03.2025 23:34 β π 0 π 0 π¬ 1 π 0No clue. Just wham! My guts went on a permanent vacation.
30.03.2025 23:05 β π 1 π 0 π¬ 1 π 0It's been 3 years for me. Whereabouts you located? I'm in California.
30.03.2025 22:10 β π 0 π 0 π¬ 1 π 0I have been finding the process of writing posts to be so draining that it takes a bit before I can post them.
mojovampire.com/nothing-here...
#gastroparesis #chronicillness #NEISvoid #insurance
I go on a rant and then walk in back. Up next: mojovampire.com/musics-back/
mojovampire.com/nevermind/
#gastroparesis #tubie #chronicillness #NEISvoid
Ok. Little chat. As we are hitting the 5 year anniversary of Covid lockdowns beginning in 2020, as someone who is permanently disabled by Long Covid, hereβs what Iβd *love* to see when people talk about the ongoing pandemic and how it effects them:
10.03.2025 23:40 β π 599 π 208 π¬ 2 π 21German touristsβ ordeal reportedly ending as they are returned from US detention
11.03.2025 20:16 β π 219 π 63 π¬ 17 π 12The words βThank you for contacting the abyss. Your scream is really important to usβ over a swirling galaxy in shades of blue with stars in the black void of space.
#NEISvoid
08.03.2025 20:34 β π 21 π 5 π¬ 1 π 0@rds773.bsky.social Happy Birthday!
07.03.2025 21:38 β π 1 π 0 π¬ 1 π 0Short update on my life mojovampire.com/five-hundred...
07.03.2025 21:37 β π 2 π 0 π¬ 0 π 0To: All SEC Employees From: Ken Johnson, Chief Operating Officer Date: March 3, 2025 Subject: RE: Update on LARO, PLRO and CHRO Leases As some of you might be aware, the General Services Administration (GSA) has been involved in a process across federal agencies to review office space leases and potential options for reducing space and related costs. GSA has now decided to end all federal leases goverment-wide where GSA can do so unilaterally and where the agency is not providing direct services to the public. As part of this decision, GSA recently informed us it has decided to teminate the building leases for the Los Angeles Regional Office (LARO) and the Philadelphia Regional Office (PLRO). GSA retains the sole authority to terminate the leases because they manage those leases on our behalf. To be clear, these lease terminations are not associated with any reorganization or reduction in force plan regarding SEC personnel, but rather apply solely to SEC space. As part of the initiative described above, GSA also notified us they intend to terminate the lease for the Chicago Regional Office (CHRO). The SEC has responded to the Administration and pointed out that CHRO's lease terms are different iand do not allow for unilateral GSA termination without significant financial penalties. We will keep you posted as we learn more about GSA's decisions. The SEC will be working with GSA on the process for finding new space for these offices. We understand that GSA aims to have the space exited by the end of August 2025 for PLRO and CHRO, and the end of September 2025 for LARO. It is the SEC's intent that if new office locations are not ready by the time the GSA-initiated lease terminations take effect, then the affected SEC staff will be placed on full-time telework. We will provide more information as we learn it. Thank you.
BREAKING β The Securities and Exchange Commission (SEC) has just announced the closure of major regional offices in Philly, LA and Chicago, per email shared with me.
β5 alarm fire,β SEC employee tells me.
Full email text:
Like people who rely on their meager social security checks have enough in their monthly budget to save any. π€¬
03.03.2025 21:22 β π 1 π 0 π¬ 0 π 0I love Oz in all of its multiverses. I also grew up on The Wizard of Oz and The Wiz. This medley got me right in the Gen X feels.
#Wicked #oscars #WizardofOz #TheWiz
youtu.be/In-GXkhzFNM
Back in the ER. All I wanted/needed was some hydration. 6 hours later, after a normal CT and land, I*finally* got a liter of fluid and a discharge. #gastroparesis #tubie #NEISvoid
02.03.2025 01:35 β π 3 π 0 π¬ 0 π 0My latest update in my Gastroparedic life. mojovampire.com/an-octopuss-...
26.02.2025 23:17 β π 0 π 0 π¬ 0 π 0Latest in my life journey with gastroparesis. mojovampire.com/so-close/
#gastroparesis #chronicillness #NEISvoid #tubie
NEW: It's not just coders.
DOGE is filled with lawyers, elite attorneys with conservative credentials.
We have new names:
www.propublica.org/article/elon...
The end of the no propane/G-J tube flipped saga:https://mojovampire.com/wonder-of-wonders/
28.01.2025 20:40 β π 1 π 0 π¬ 0 π 0Indie Bookstores Will Soon Be Able to Sell E-Books to Customers www.nytimes.com/2025/01/28/b...
While I am at it, let me add a plug for libro.fm for audiobooks from independent booksellers.
#books #resist #independentbooksellers
A white presenting woman is wearing a green dinosaur onesie. She is shown from the chest up and is wearing a black t-shirt under the partially unzipped onesie. The hood of the onesie, showing white teeth, a snout and yellow eyes, with spikes starting at about her forehead, is covering her eyes and nose. All you can see are her smile and chin, with a cascade of long, dark brown hair on one side.
This has not been a Good Day.
mojovampire.com/just-when-yo...
#gastroparesis #NEISvoid #tubie #chronicillness
I will do my best. Both to find the joy and to be ready when the time comes to actively defend what I can.
23.01.2025 00:51 β π 1 π 0 π¬ 0 π 0I literally do not know how I am going to make it through the next 4 years. The administration is undoing the work of the civil rights movement with the stroke of a pen.
And that is only one of a million things that have been destroyed or corrupted and it is only day 3. π
some reporters have been too loose with phrasing like DEI. makes it sound like it's all abt post-George Floyd murder stuff. As he notes, they're ditching anti-discrimination policies that go back to LBJ.
22.01.2025 21:13 β π 2570 π 835 π¬ 65 π 24A white presenting man with short, greying, but floppy hair and big sunglasses, wearing a pink button up shirt with a royal blue fleece vest over it. Peering over his right shoulder is a woman wearing a grey hoodie, with the hood over her head, wearing sunglasses pose on Stinson Beach in west Marin county, CA. It is a sandy beach with some people and ocean waves in the background
I wrote a brief update on my continuing efforts to transition from TPN back to enteral feeding.
mojovampire.com/a-brief-brief/
#gastroparesis #tubie #chronicillness
That is impressively inaccurate.
16.01.2025 23:02 β π 0 π 0 π¬ 0 π 0I hear you. 9 months in our current place and the only room fully unpacked is the bedroom. But there were 3 hospitalizations in there, a PICC line, TPN and 4 months of extreme pain.
Nevertheless, I look forward to the day when our house is set up the way we want it. Until then, this will do.