Prevalence and outcomes of a pilot definition of severe refractory systemic lupus erythematosus: observations from a multinational Asia-Pacific cohort - Arthritis Research & Therapy Background Emerging therapies have the potential to be used in patients with severe refractory systemic lupus erythematosus (srSLE), but no agreed definition of srSLE exists. We evaluated a pilot srSL...

Happy to share this paper on a pilot definition of severe refractory #lupus - outcomes are poor. We need a data-driven way to identify patients for emerging therapies like CAR-T and TCE. Here is a first attempt - more to come!
arthritis-research.biomedcentral.com/articles/10....

☀️ Sunscreen plays a vital role in protecting your skin, especially for those with lupus. Aim for a minimum of 30 SPF and remember to reapply every two hours! Explore our resource for more information: buff.ly/zqk6MI0

Staying sun safe? Comment a 🧴 if you’re keeping your skin protected this summer!

Professor Eric Morand appointed Sir John Monash Distinguished Professor Hosted by Monash University's Faculty of Medicine, Nursing and Health Sciences, at the Monash University Prato Campus in Tuscany, the summit explored the theme “Enabling Technologies in Medicine”, off...

‘Professor Morand has elected, at the expiry of his term as Dean in early 2026, to focus on his critically important research at Monash on improving outcomes for patients with SLE’ #lupus 🙏🏻

👏🏻 Congrats Prof @ericfmorand.bsky.social

www.monash.edu/medicine/new...

one of your best, and that is saying something.

Stephen Colbert is a profoundly good and deeply talented man with a great staff and an excellent show. They all deserve better.

10 years in lupus – progress, but not enough Systemic lupus erythematosus (SLE, lupus) remains an enigmatic diagnosis with a poor prognosis. SLE is characterised by complex biology and heterogene…

Pleased to share a new Cellpress perspective article I had the privilege to co-author with my long-term colleague and collaborator Sarah Jones. Yes we have made progress in #lupus - but we need to do more.

www.sciencedirect.com/science/arti...

Cutting-Edge Cancer Therapy Offers Hope for Patients With Lupus (Gift Article) Lupus can be debilitating and sometimes deadly for the 3 million people who have it. A treatment called CAR T appears to stop it in its tracks.

CAR-T cell #clinicaltrials for people with severe #lupus are still in the early stages. In a @nytimes.com feature, lupus patients like Jennifer say the treatment has given them hope & the chance to live a more normal life. 💜

📖 Read more: buff.ly/wZ3wlHE

#LupusResearch

🚨 TRM-SLE website is now live!

We’re proud to be part of this global collaboration of 80+ SLE experts, patient reps, regulators & industry, working to improve outcome measures in #lupus trials.

🔬 Know more about this project led by Prof @ericfmorand.bsky.social‬!

www.monash.edu/medicine/scs...

Omg

Australian-first lupus treatment at Monash Health | Monash Health In an Australian-first, Monash Health in collaboration with Monash University, has successfully treating a patient with the autoimmune condition lupus with CAR T-cell therapy. “It is absolutely a gam...

So proud to be part of this Monash Health and @monashuniversity.bsky.social team tackling #lupus and bringing breakthrough treatments to the clinic. The courage of patients facing their disease is matched only by the courage to go into a Phase 1 trial. I am in awe.
monashhealth.org/latest-news/...

Safety and Efficacy of Obicetrapib in Patients at High Cardiovascular Risk | NEJM Obicetrapib is a highly selective cholesteryl ester transfer protein inhibitor that reduces low-density lipoprotein (LDL) cholesterol levels. The efficacy and safety of obicetrapib have not been fu...

More brilliant work from @monashuniversity.bsky.social and monash health star steve nicholls
www.nejm.org/doi/full/10....

And here is the podcast version thanks to @lupus.org !

www.podbean.com/ew/pb-yydxq-...

Domains for inclusion in a novel Treatment Response Measure for Systemic Lupus Erythematosus (TRM-SLE): results of a modified Delphi study Objectives To achieve consensus on domains of active disease for inclusion in a novel outcome measure for SLE randomised controlled trials (RCTs), the Treatment Response Measure for SLE (TRM-SLE).Meth...

Proud to report the next publication on developing a new and improved outcome measure for trials in #lupus. Huge thanks to a huge community of patients and experts and partners who contribute to this ongoing project
lupus.bmj.com/content/12/1...

A New Trend in Global Elections: The Anti-Trump Bump In voting in Canada and Australia, right-wing parties that borrowed from the MAGA playbook were punished. Elsewhere, President Trump is having a more complex impact.

News Analysis: The Trump factor is shaping global politics, one election at a time — just not necessarily to the president’s taste. In major votes in Canada and Australia, centrists saw their fortunes revived, while parties that had borrowed from the MAGA playbook lost out.

No matter how bad you imagine smallpox was, it was worse than that.

PowerPoint slide that says: “does America do it, if yes, then no”

Just passing along some friendly advice on how to approach potential changes to the Australian health care system @drruthmitchell.bsky.social

There are high numbers of autistic people in the sciences. So one could argue that autism causes vaccines.

Something that the next Australian government really has to consider as a public health measure is serious quarantine restrictions on Australians returning from America, or Americans visiting here. Americans represent an increased public health risk and it feels insane to say that but look. LOOK.

Attention my American academic and science friends and colleagues…jobs at Australia’s biggest university now. Message me!

America used to fire the world’s imagination – but now the cultural conversation is being silenced | Van Badham Not only are TV-watching, book-reading, show-going, music-listening travellers declining to visit the US, we have started to cease to imagine it

My latest in the @australia.theguardian.com suggests why Peter Dutton is so profoundly misreading just why Trump America has become so toxic. #auspol

www.theguardian.com/commentisfre...

Yay to you.

Donald Trump has made himself—and by extension, us—the laughing stock of the world.

Update on measles in the US, cases and deaths, in context of vaccine introduction

He tried to kill his own Vice President, do you think he cares about you? Barack Obama

AAMRI 2025 Election Statement - AAMRI This Federal election, AAMRI is calling for immediate action to ensure the survival of the nation’s health and medical research sector, which has reached crisis point. As Australia’s health and medica...

"Without immediate and significant action, billions of dollars of previous investment and a generation of knowledge and experience will be lost."

@profhartland.bsky.social - @hudsonresearch.bsky.social

#standupforscience2025 #election2025 #AAMRI2025ElectionStatement

aamri.org.au/resources/el...

Judge Permanently Bars N.I.H. From Limiting Medical Research Funding The decision came as an initial win for a broad coalition of academic institutions that had argued the policy jeopardized ongoing research, but it set up an almost certain appeal.

Judge Angel Kelley granted a permanent injunction tonight barring the NIH from implementing its plan to cap funding for overhead at 15 percent in federal grants (one of the very first research/science lawsuits back in Feb.)

Trump administration essentially just folded so it can prepare to appeal.

Trump administration eviscerates maternal and child health programs Alarm over ‘the health of the nation’s children’ follows federal workforce cuts by health secretary RFK Jr Multiple maternal and child health programs have been eliminated or hollowed out as part of the Department of Health and Human Services (HHS) layoffs, prompting alarm and disbelief among advocates working to make Americans healthier. The fear and anxiety come as a full accounting of the cuts remains elusive. Federal health officials have released only broad descriptions of changes to be made, rather than a detailed accounting of the programs and departments being eviscerated. Continue reading...

Trump administration eviscerates maternal and child health programs

has the book burning begun?

oh dear...

75% of US scientists who answered Nature poll consider leaving More than 1,600 readers answered our poll; many said they were looking for jobs in Europe and Canada.

The massive changes in US research brought about by the new administration of President Donald Trump are causing many scientists in the country to rethink their lives and careers

https://go.nature.com/41OhAgK