Red head.
Long Covid and ME/CFS since 2022.
Here for learning and talking about Long Covid.
Software engineer.
RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Music 🎶 Film 🎞️ Long form journalism 🧐
Hot Chips 🍟 Happiest by the sea 🌊
#pwME.
Living small with ME on unceded Whadjuk Noongar country ("Perth, Australia")
I’m trying to make this a public health account
News for Oxfordshire. Est. 2022.
Weekly newsletter: https://oxfordclarion.uk
For stories: news@oxfordclarion.uk
After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes SCUBA diver.
🌉 bridged from https://mas.to/@brianvastag on the fediverse by https://fed.brid.gy/
Writer of The Gauntlet, about COVID and public health.
Read:
thegauntlet.news
Subscribe:
thegauntlet.news/subscribe
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Surgeon, Writer ("Being Mortal," "Checklist Manifesto"), and formerly led Global Health @USAID.
ER doc, public health professional, researcher, and former chief medical officer at the CDC. Working to improve health in communities while figuring out what is next for me
The European ME Alliance (EMEA) is a grouping of European organisations founded in 2008 by national patient organisations and charities across Europe, and dedicated to supporting patients suffering from Myalgic Encephalomyelitis (ME), also known as ME/CFS
Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Professional Disabled Person, science enthusiast, extremely cosy. she/her
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
My #LongCovid is mainly #PEM + #POTS + #MCAS
