Sue Poncin

A screenshot from the Brite Bytes Facebook page of “Scientists identify biological cause of Long Covid brain fog, shedding light on cognitive symptoms” headline under a picture of an elderly man bent forward at the neck with steam/fog rising up from his head.

I love the depiction of brain fog in Long Covid.

Although I wish Bright Bytes didn’t use an old person.

And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.

Following

Hope looks like the smile from Captain Serious as he takes the ice 🌈
If he can get back to doing what he loves, maybe others of us who suffer from Long Covid will too.

This type of garbage harms us all who suffer!

Thanks for sharing stories and advocating for those who suffer!

I will happily share my story and be the poster person for “You don’t want Long Covid” if it could save others from suffering this awful disabling virus.

My story: www.sueponcin.com

“Over a 3-year follow-up, individuals with C19 infection had significantly higher risks of developing HPV-related cancers compared to those without:
67% increase cervical cancer
131% vaginal cancer
98% vulvar cancer
92% anal cancer
78% in oropharyngeal cancer.”

Still think it’s ’just a cold’?

@joshjohnsoncomedy.bsky.social
I can almost hear you already!

The science is catching up to what most with Long Covid and those who treat us already know. Therapists and doctors have compared my symptoms to MS all along.

Hope looks like solving the mysteries behind Long Covid 🌈

Neurofeedback helped with my ability to read and noise sensitivity although it wasn’t a quick fix.

🤞🤞🤞🤞

Still true four years later.

Because of…..
Stigma. Deniers. Lack of knowledge.

Continue to share your Long Covid stories to help educate others.

My story: a.co/d/0Rz6Hjx

Ultimately, we hope this work not only contributes both to a reliable diagnostic tool and a deeper understanding of ME/CFS but also continues to bring understanding of the biological problems that result in the lived experiences of these patients”

ME/CFS help = Long COVID help

“Co-payments, reduced working hours, and expensive treatments not fully covered by insurance. What begins as a manageable strain can escalate”

Each year, Long Covid exponentially hurts our financial situation. We didn’t know we needed a long term plan. No one predicted “long” meant 5+ yrs

Chronic illness steals worth, love, & ability. It takes community, family, & therapy to rebuild a stripped away sense of self. Do not feel less than because you struggle when you’re ripped out of your life.

Share your story to let others know they are not alone navigating the unknown.

My story:

💯💯💯💯💯💯

We need to support each other through our transition from overachieving and always saying yes to taking care of ourselves. I’m 4.5 years in trying to reverse a lifetime of beliefs.

Repeat over and over…….
I am more than my accomplishments.
I am worthy of love for just being me.

Great results!

Me too!

“Our findings clearly demonstrate that Long COVID brain fog should be recognized as a legitimate clinical condition. This could encourage the healthcare industry to accelerate the development of diagnostic and therapeutic approaches for this disorder”

Hope looks like identification and treatment 🌈

Sharing our stories helps raise awareness. You never know who your story will reach or who it will help. Together, we cannot be ignored.

My story: a.co/d/datEOs4

Risk of long COVID in children doubles after second COVID-19 infection, according to study by Lurie doctor Risk of long COVID in children doubles after second COVID-19 infection, according to study co-authored by Lurie doctor.

Children are twice as likely to develop long COVID after two COVID-19 infections, compared with children who’ve only had COVID-19 once, according to a new study co-authored by a doctor at Lurie Children’s Hospital.

Grateful researchers are looking for Long Covid identifiers, aka a needle in the haystack….

“testing for 7000 plasma proteins, a few dozen plasma proteins were identified that were expressed differentially in the plasma of adult patients with Neural Post-acute sequelae of COVID-19 (Neuro-PASC)”

“The implications of these findings are profound, as they redefine Long COVID brain fog as a biologically verifiable disorder with measurable molecular abnormalities”

The science is catching up to what we’ve known all along:

Long covid = brain damage.

To my Lupus, chronic illness, chronic pain, cancer survivors, rare diseases & disability communities:

NEVER FORGET: WE'RE NOT DATA, WE'RE FLESH & BLOOD! YOUR LIFE IS VALUED OFF THE CHARTS! 🙏💜

Hope is a verb.

Jonathan Toews returning to the ice gives hope to all of us sidelined by Long Covid. 🌈🌈

I sobbed the night he last played in Chicago knowing how hard it is to walk away from the career you love. This faceoff comes after two years of never giving up to comeback!

I greatly appreciated “the team exposed the blood samples taken before and after exercise to elements” to make their findings as validation of what we know in our souls as we lie there, unable to move or communicate during PEM crash.

Validation something is wrong.
Validation of our disability.

Overactive immune responses in ME/CFS Scientists found signs of overactive immune responses in people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

“While what gives rise to ME/CFS remains obscure, understanding the ways it disrupts the body’s various biological processes on the molecular level is revealing biomarkers for specific ME/CFS subtypes that may inform clinical research and lead to targeted interventions,” Lipkin says.

It was absolutely unbearable until I started HRT and had a uterine ablation. Long Covid left me with nothing left!

Pyramidal neurons lost = Long Covid?

Pyramidal neurons functions:
- send signals down the spinal cord to control voluntary walking, running, and writing
- help consolidate new information and retrieve it later
- crucial for decision-making, planning, and attention

All signs point to yes. #disabled