Chloe (she/her)

@luckyerica3.bsky.social Hi, hope you're surviving & doing as okay as possible! I wanted to get in touch with you about potentially signposting a specific group of people to @notthevoiduk.bsky.social but saw that you can't see DMs on here - what is the best way for me to contact you with more info?

Creating news for (and with) people with learning disabilities The BBC's William Kremer unpacks how to make news more accessible for people with learning disabilities.

How to create news for (and with) people with learning disabilities? A new project by William Kremer looks at a structural blind spot in journalism and an opportunity for public service media to be more inclusive, relevant and useful

Click to read
reutersinstitute.politics.ox.ac.uk/creating-new...

Amazing!

It was an absolute joy to co-produce (& do the voiceover for!) an animation for children & young people who are autistic &/or have a learning disability about the NHS England accessible ear checks programme that I worked on for a few years.

Big thanks to the Seashell Trust & NHS Creative, too.

A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts Aim We aimed to co-produce a tool for evaluating co-production within evidence syntheses. Background Participatory approaches are recommended to enhance the salience and quality of evidence synthe...

Great to see our first paper from this study out now!
Hopefully more coming on this…

“A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts”

onlinelibrary.wiley.com/doi/10.1002/...

Next week, I'm starting NHS therapy for Avoidant/Restrictive Food Intake Disorder (ARFID).

The Counselling Psychologist who I'll be seen by has been proactive in understanding how she can reduce the likelihood of replicating iatrogenic harm I've experienced - how refreshing!

It's been a joy to deliver co-production & safeguarding training to PhD Mental Health Science students over the past few years.

The latest (last!) cohort are looking for folks with relevant lived/living experience to join their thesis committees: www.coproductioncollective.co.uk/news/our-fin...

I've been working with Vocal Collective CIC to make sure that people with lived/living experience of suicidality & self-harm/self-injury get a genuine say in what research in this area is funded by the @medresfdn.bsky.social.

Do check it out! www.vocalcollective.org.uk/new-project

It's #crohnsandcolitisawarenessweek.

I have an ulcerative colitis diagnosis.

I go to the hospital every 4 weeks for an infusion, but I have yet to find a treatment that has put my disease into remission.

We need greater awareness of inflammatory bowel disease & its impact.

EXTENDED DEADLINE - 8th DECEMBER

Apologies for being quieter online than planned over the past few days - I’m a full-time carer, and things have been particularly intensive recently. I’ve been incredibly moved by the support for the study and by the surge of last-minute responses. 1/2

Say it for the people at the back!

I really appreciate you saying this, thank you. We ALL deserve better - there are so few of us getting the support we deserve.

Thank you, your support is always so appreciated!

My individual funding request for specialist therapy was rejected.

As a commissioner myself, I am privileged to have the knowledge to navigate "the system".

I will fight to get specialist therapy to set the precedent for other patients, even if it progresses to a legal battle.

Understanding the relationship between autism and hypermobility | Precision Medicine Doctoral Training Programme | Usher Institute Precision Medicine Project - Understanding the relationship between autism and hypermobility

We are recruiting a fully-funded 3.5yr PhD student to examine the potential genetic relationships between autism and hypermobility. Full details of the project and how to apply here ⬇️

usher.ed.ac.uk/precision-me...

Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.

I've had trichotillomania (pulling my own hair out) since I was 15.

Today, I shaved my head for the 6th time in 7.5 years due to it.

I've accepted that it's quite possible that I'll always have trichotillomania.

I'm genuinely at the point of believing that "it's just hair".

A University of Lancashire poster, inviting people to participate in research. Have you experienced harm from mental health services? You are invited to take part in this study which is looking to identify and examine overlooked and lesser known forms of harm in UK mental health services. Taking part will involve completing an anonymous online survey, involving questions about your experiences of harm. This will take approximately 15-45 minutes to complete. I am looking for individuals who are aged 18+, AND have experienced harm from mental health services within the UK from 2010 onward, OR are the carer/family member of someone who has experienced harm from mental health services within the UK from 2010 onward. For more information, or to take part, please scan the QR code or go to this web address: https://tinyurl.com/yt2ydvxx Who Am I? My name is Lauren Langley and I am a PhD student at the University of Lancashire. I am Autistic and have lived experience of trauma and mental illness. As a mental health patient, I have experienced harm from mental health services. If you have any questions, please get in touch: llangley1@uclan.ac.uk (picture below of a white person with ginger hair, wearing a blue t-shirt) Further information, including FAQs, and Easy Read and downloadable versions of the questionnaire are available on the study website: www.hiddenharms.wordpress.com Ethical Approval No: BAHSS2 01118

Hi, I'm v new to bsky. I'm a PhD student focusing on harm in UK mental health services, & I would like to hear about your experiences of harm in services between 2010-2025. (Mental health services includes NHS, charities, companies, private therapists & other orgs) 1/7 tinyurl.com/yt2ydvxx

💡Job Opportunity!💡

We're looking for a Research Fellow to join the #DiscoveringLiveability team on a full-time and fixed-term basis for 30 months 🔎

For more information, follow the link below:

Hi! We are a part-time (can work alongside) online ("live" *options*; costs the same in/outside the UK, can study from everywhere) MSc course on learning/intellectual disability, autism, and neurodiversity. Students have own tutor. We are recruiting for this term:
www.port.ac.uk/study/course...

#worldpatientsafetyday2025 #patientsafety #iatrogenicharm #trauma | Chloe Apter I spent today's World Patient Safety Day 2025 co-delivering safeguarding training to PhD Mental Health Science students at UCL, funded by Wellcome Trust. I spoke about how "being safeguarded" has cau...

I shared some thoughts over on LinkedIn for today's World Patient Safety Day 2025.

www.linkedin.com/posts/chloea...

Words that make me go hmmm: Professional ‘Professional’ is yet another of the ‘us and them’ words that dominate our narrative. It’s a blanket term used to distinguish the people who work in organisations (regardless of any professional qu…

New blog post: Words that make me go hmmm: Professional
#RewritingSocialCare

rewritingsocialcare.blog/professional/

Resources - Learning Disability and Autism Research Group People with learning disabilities, erasure and social murder This resource explains more about Professor Sara Ryan’s book, ‘Critical Health and Learning Disabilities: An Exploration of Erasure and Soc...

Professor Sara Ryan's new book 'Critical Health and Learning Disabilities: An Exploration of Erasure and Social Murder' is out today. There's a Plain English summary on our website: learningmet.mmu.ac.uk/resources/

This sheds light on a childhood experience I have had to make sense of as a later dx autistic adult:

Aged ~5, I was told I was lip-reading so had a hearing test (my hearing was fine).

I couldn't understand this "accusation" of lip-reading as I was just processing the only way I knew how.

As a child growing up in the "Tumblr era", I had a blog that attracted many people seeking advice from me: a child.

Undiagnosed autistic/ADHD & experiencing trauma, I felt morally obliged to offer support to people like myself.

This has left a legacy of complicated feelings towards peer support.

Similarly, my capacity for being able to engage in peer support spaces has completely depleted.

I can carry my own trauma & bear witness to the trauma of my close friends: the latter is a privilege.

I cannot hold space for strangers.

It's self-protection.

As someone with a dissociative identity disorder diagnosis, I used to consume a lot of media related to this condition.

In recent years, I haven't been able to. It's just too painful to bear witness to the consequences of trauma that is often perpetrated by other people.

It hurts.

I most certainly will! Thank you!

I totally agree.

Once I muster up the courage, I'm going to apply again this year. I feel like I now have the emotional capacity / spoons to put up a good fight should it inevitably be rejected initially & likely lead to tribunal.

TW: suicide attempt

The irony was that I didn't have the emotional capacity or spoons to get more time for mandatory reconsideration (once the initial period of acute distress had passed) because I was detained under the Mental Health Act after a suicide attempt.

I'm sorry you were asked it too.

TW: suicide

When I was assessed for PIP in 2022, I was asked why I hadn't "successfully" managed to kill myself.

I received zero points. I was too distressed to go to mandatory reconsideration or tribunal.

The assessment (& report) is utterly dehumanising.

#TakingThePIP