What do the Germans call fluffy toys then?
19.10.2023 14:05 — 👍 1 🔁 0 💬 0 📌 0
Sorry to hear that. I seem to be worsening each year.
This is only my 2nd time on here. I’ve not been a regular, so can’t really compare. I’m still using the blue bird most of the time. I think here will get better as X gets worse, or we’re forced to pay. Take care Ravi.
19.10.2023 14:04 — 👍 1 🔁 0 💬 1 📌 0
@ravihvj.bsky.social
Hi Ravi. I haven’t seen you for ages. How are you doing? Any improvements?
💙🦋
19.10.2023 13:46 — 👍 2 🔁 0 💬 1 📌 0
I am so sorry. 😪💙
05.10.2023 13:18 — 👍 1 🔁 0 💬 1 📌 0
Photo of test kit
From UK ME/CFS biobank:
🔬 Exciting News! Our new study is underway.
🧬 Our focus? Exploring the link between HHV-6 DNA levels and ME/CFS severity.
📆 Over the next 6 months, our participants will be collecting saliva samples for us to analyse.
Want to know more? bit.ly/3Q3vKVm
#MEcfs #CFS #PwME
05.10.2023 11:48 — 👍 20 🔁 4 💬 0 📌 0
Same.
05.10.2023 13:04 — 👍 2 🔁 0 💬 1 📌 0
A huge loss. May he & Robert RIP. 😪💔🕯️🕊️
05.10.2023 11:21 — 👍 3 🔁 0 💬 0 📌 0
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp😷
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden
#pwME #MECFS #NEISvoid #ChronicIllness
Came here from: https://twitter.com/ezchili
News, interesting information and commentary on ME/CFS.
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
#FreePalestine
#SaveLebanon
#BLM
Living with #mecfs
Background image is from pinterest, I don't remember the artist's name.
I also post in German.
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae on Fridays, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
