PersephonesVeil (she/they

Wieslaw Kukula

Chief of the General Staff of the Polish Armed Forces Wieslaw Kukula: “Poland is in a pre-war stage,” Russia has begun preparing for war with Poland. At this time it is conducting cyberattacks & acts of sabotage on Polish soil. Several countries including France have sent jets to boost defences.

I don’t expect a petition to change anything directly (even if the FDA was working like it used to).

But I’m sharing it - and will, again and again - because the good news about the UniQure trial broke containment and this news hasn’t. Because it’s a huge show of support for folks who need it.

Sign the Petition Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval

I’ve been advocating for this community for more than a decade. I’m devastated and full of rage (for this community, for everyone who has already been and everyone who will be affected by this anti-science crusade—everyone).

And I want to explain why I’m sharing this petition:

c.org/Z6yPyYQqTj

Last week, the FDA decided to change its mind. It’s threatening to reject the trial design they’ve been in alignment on for years- seemingly part of the broader attacks on vaccines and other clinical advances that don’t value double-blind placebo testing over reality.

en.hdbuzz.net/uniqure-and-...

UniQure spent years designing an ethical trial - hand in hand with the FDA - for an accelerated approval process relying on natural history data as a control (vs a placebo group having sham brain surgery and potentially missing their own window for treatment as the disease progressed).

So most people facing it have already watched it play out across their families, across generations. They’ve been care partners for every step of it, they know what’s ahead.

The UniQure trial news two months ago was some of the most promising news the community has ever had—but now it’s in limbo.

Two months ago, some pretty wonderful news came out about a clinical trial showing that a gene therapy might be able to delay the progression of Huntington’s Disease.

HD is a devastating neurological disease that attacks behavioral, cognitive and motor function.

It’s fatal and it’s genetic. 🧵

We passed 10k signatures last night, friends!! I love everyone who signed - most especially the pirates 💜 - and if you haven’t had a chance to sign or share, it’s a beautiful morning for it!

A frame from the mcm 23 ofmd panel livestream of vico in a neon green and black vest combo speaking and sitting on a couch next to samson who's wearing a black graphic t-shirt and a black coat

A frame from the mcm 23 ofmd panel livestream of vico in a neon green and black vest combo and sitting on a couch next to samson who's wearing a black graphic t-shirt and a black coat, they are both laughing

it still feels sick and twisted that we only got one (1) con panel with the tealoranges sunshines

Trust & Safety Tycoon Manage your team, set policies, make investments, and tackle the challenging world of Trust & Safety

Mike Masnick!

trustandsafety.fun

it's funny that one of the people on bluesky's board made a "social media head of trust and safety simulator" game years back, and the way to get a five star rating was to stand up for sex workers and tell the government to fuck off and die

I can reassure the New York Times that networks of mutual protection, and misogynist retaliation efforts that benefit abusive men at the expense of the young women they prey upon, are very much still intact post-Me Too.

LET THEM FIGHT

MOREOVER, ICE MUST BE DESTROYED

For a very particular reason, ALAN DERSHOWITZ, I’m thinking about how the Harvard Law Faculty, which Dersh is a member of, were VERY vocal about how Harvard’s mee Obama-era title IX standards were too stringent and “unfair” to accused perpetrators

SNAP funding pause to soon end, but anxiety and anger may linger The first ever disruption to the nation's largest anti-hunger program came as a shock. It's shaken trust in the program for some and stoked concern that it could happen again.

The first ever disruption to the nation's largest anti-hunger program came as a shock. It's shaken trust in the program for some and stoked concern that it could happen again. n.pr/4nVfELc

Malliotakis Mondays | Bay Ridge · Indivisible Brooklyn ### Families Taken. Food Assistance Cut. Health Care Out of Reach. While ICE and other federal agencies tear families apart, the same cruelty shows up in the choices of those in charge in Washington—...

Join us on 11/17 for a candlelight vigil at the office of Rep. Nicole Malliotakis to mourn those lost, detained, or deported and to remind her of her moral duty to protect and serve peaceful people, not punish them.

www.mobilize.us/indivisiblen...

@indivisible.org

NYC SAYS: SCHUMER, STEP ASIDE! · NYC Indivisible Protest at Senator Schumer's Manhattan office to hold him accountable for yet another Schumer Surrender! ---- Chuck’s latest deal with MAGA Republicans is bad policy that will raise healthcare prices...

Indivisible groups across NYC are telling @schumer.senate.gov to step aside & make room for leaders who will actually fight!This Fri 11/14 at 4pm at 780 3rd Ave, btw 48th & 49th. See you there!

www.mobilize.us/nycindivisib...

@indivisible.org @nychange.bsky.social @targetmajoritynyc.bsky.social

Search Continues For Trapped Miner - West Virginia Public Broadcasting Crews are now pumping approximately 6,000 gallons of water a minute from the Rolling Thunder Mine in Drennen. A miner was trapped Saturday after a wall holding back an unknown pocket of water was compromised.

Crews are pumping about 6,000 gallons of water a minute from the Rolling Thunder Mine. After a wall holding back an unknown pocket of water was compromised, 17 miners made it out safely.

Don't cross the picket line for mediocre coffee, folks.

Union strong. 💪

For students who rely on SNAP, school food pantries offer some relief The food pantry at Brashear High School is open once a week, and each student gets about five minutes to shop. Any snacks they don't take often go to teachers, to offer to hungry pupils.

The food pantry at Brashear High School is open once a week, and each student gets about five minutes to shop. Any snacks they don't take often go to teachers, to offer to hungry pupils. n.pr/47NnEYp

Earlier today, we received notice from Amazon that they had terminated our KDP account, through which we publish ebooks, including LOGICAL FANTASY by John Wyndham. I have written to Amazon, including proof of our permission to publish the book. Please accept my apologies that our ebooks are unavailable while I try to sort this out. Sincerely, Bill Schafer

A quick note on the availability of our ebooks...

This current trend for companies to only make shareholder profits by endless mergers and cost stripping is a stark, stark red warning klaxon that their underlying business models are shot. Shareholder return merger cuts show an org is prioritising dividends over output quality.

Shopping for an Affordable Care Act health plan? NPR wants to hear your experience If you buy your own health insurance through the ACA marketplaces, how do this year's prices look to you?

If you buy your own health insurance through the ACA marketplaces, how do this year's prices look to you?

Wow: Per Hamdi's legal team, his only charge was a visa overstay — after Trump revoked his visa.

Despite DHS tweeting that Hamdi supported terrorism, they never charged him with any criminality.

In other words: Trump revoked a journalist's visa, so agents could arrest him for overstaying his visa.

Graphic that says: Nov 15 Neighborhood Day of Action, ICE and troops OUT, learn how we keep us safe

Activism can take many forms — from massive marches to calling your reps. Nov 15th, let’s bring it to our neighborhoods! Join or organize an event in your local community.

In BK: bit.ly/3X47MMa
In nyc: handsoffnyc.com

@indivisible.org @handsoffnyc.bsky.social @50501newyork.bsky.social

9 strategies to find free or low-cost food when money is tight Kevin Curry, a food influencer and a former SNAP recipient, explains where SNAP recipients can get the most up-to-date information on their benefits, and how anyone can find free or affordable food.

Kevin Curry, a food influencer and a former SNAP recipient, explains where SNAP recipients can get the most up-to-date information on their benefits, and how anyone can find free or affordable food. n.pr/47Awavd

This systemic deliberate Russian terror, year after year, generation after generation, country after country. The impact of all this on health and wellbeing… the scale of this, that has never been properly accounted for

If you know anyone who works on medieval Judaism, please send them this! Binghamton is hiring a Talmud/Rabbinics assistant prof: half in Judaic Studies, half in the Med/Ren center. A killer R1 job for the right person, and not a ton of applicants so far....

Small digital drawing of Ed from Our Flag Means Death. He's dressed in Stede's clothes and his hair is down around his face. His shirt and leggings are white and his breeches are dark orange. He's ready to stare down every crew member until they sufficiently clap.

Wanted to do another tiny Ed tonight. He's ready to introduce the crew to their brave, brave Captain.

#ofmd #OurFlagMeansDeath

Ed and Stede as animal/vegetable medieval manuscript creatures. Ed, on the left, is some sort of bird with fuzzy paws, a long neck, and a tail made out of leafy vines. He’s looking lovingly at Stede, who’s human on the top half, some sort of hairy beast on the back half, and with a big leafy tail.

animal/vegetable guys based on the weird little dudes from the Luttrell Psalter for @madcatacres.bsky.social !!