Rose Newell | codeword: creative's Avatar

Rose Newell | codeword: creative

@codewordcreative.com.bsky.social

Creativity. Tech. Words. ADHD. British-born. Naturalised German. Hyperlexic. Bendy. Adventure gamer. Married. Ally. Vegan. Idealist. Green web dev. Copywriter. SEO. Translator. Designer. W3C Invited Expert. Long covid survivor. I mask indoors.

412 Followers  |  763 Following  |  703 Posts  |  Joined: 21.11.2024  |  1.6369

Latest posts by codewordcreative.com on Bluesky

Yo. Please feed Palestine. People in Gaza are starving to death, hostages included.

07.08.2025 16:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I'd really like something to just protect me from reinfection so I don't have to mask everywhere... It's so limiting.

06.08.2025 08:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Yeah, I know someone in that situation, too. MCAS is sort of autoimmune adjacent, and we all end up with that. But that can be helped with the things I mentioned and there is hope. But auto-antibodies is a whole different pile of crap. Sorry to hear about your diagnosis.

06.08.2025 08:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I was then able to reduce drugs, travel to see my family, even hike on a good day. Now it's a waiting game to see if I'll make scientific history and fully recover from endothelial damage in time. I say that because it's complete no man's land. Nobody knows.

06.08.2025 08:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

...in concert with midodrine and methylphenidate for blood pressure issues.

Vaccines (Biontech/Pfizer) always helped.

Andrographis was what turned the corner. Then about 6 months into taking andrographis, one vaccine just massively changed everything. Like it finally got the last bits.

06.08.2025 08:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

That also helped a friend with LC and EDS. I think covid was in our bladders - viral reservoir - as our general symptoms also improved massively with that.

The main things that allowed me personally to clear it from reservoirs (based on symptoms) were doxycycline, curcumin, and andrographis...

06.08.2025 08:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

So before covid, I did once have chronic bronchitis that just kept coming back.

We're also vulnerable to recurrent bladder infections and interstitial cystitis. Essentially self-diagnosed and treated my issue with that after covid - with doctor's involvement after I'd started. 6 weeks doxycycline.

06.08.2025 08:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It really just depends on our muscle tone and natural immune system quirks.

I have Ehlers Danlos Syndrome on top, so my immune system is specifically weak to coronaviruses due to how they multiply based on collagen. Flu isn't like that. But EDS is also vulnerable to real, deep lung infections.

06.08.2025 08:01 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

There's no relevant research or treatments. The only things I am on that help are ones I researched myself - things relating to NO:
Escitalopram
Nebivolol

Both reduce vascular inflammation via nitric oxide, something of a desired side effect more than the main method of action.

06.08.2025 07:55 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

So I had basically retained the usual good reaction to flu in the respiratory system, but my vascular system - or to put it more accurately, the endothelial system and the associated mast cells, just couldn't cope.

06.08.2025 07:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

To give you an example:
I used to be as good as immune to flu. It was some weird fluke with me. Only caught it properly once and it was bird/swine flu. Everyone was in bed for weeks. Me? 2 days.

Caught normal flu at the doctor's in Jan. Down for 3 or more weeks with vascular systems only. So odd.

06.08.2025 07:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yep. And constant vulnerability to things.

Recarding the allergies, it's mast cell activation - at different levels. So yeah, immune system damage.

I had LC actively for 3.5 years - my airways never got that affected. Vascular system is still a mess, though, even years into recovery (first waver).

06.08.2025 07:51 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

To be fair, I have a neighbour with a chronic dry cough. It's constant. I feel things like that are so much more common since 2019. It must be covid effects. Adults seem to cough more, too.

06.08.2025 07:45 β€” πŸ‘ 8    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Preview
Long COVID in Young Children, School-Aged Children, and Teens This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.

Long Covid has overtaken childhood Asthma in the US. There must be a similar picture globally in countries like the US who have pushed the natural immunity narrative. It’s not mild, there is at present no cure. Children have a chronic wet dry cough. jamanetwork.com/journals/jam...

06.08.2025 07:36 β€” πŸ‘ 131    πŸ” 71    πŸ’¬ 9    πŸ“Œ 5

The many innocent civilians of the state of Palestine are still starving.

29.07.2025 20:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Ah yes, because everyone just loves AI art in games, and every game played by everyone ever involves AI.

29.07.2025 10:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

A Monday reminder that Gaza is still starving.

Genocide is still happening.

Every nation that remains silent and failing to sanction Israel - even supplying support - is still complicit.

28.07.2025 11:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I got tagged in a tweet announcing an AI-generated adventure game, making some wild claims about how it’s fully voiced by a star-studded cast with orchestrated music (it’s all AI)

The worst part? It isn’t even original, it’s a knockoff of Maniac Mansion.

Please don’t do this, people.

27.07.2025 14:09 β€” πŸ‘ 56    πŸ” 7    πŸ’¬ 1    πŸ“Œ 0

And goalies that can deflect penalties...

28.07.2025 11:46 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This is an extremely good way to put it!

28.07.2025 11:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Joint statement on Gaza from AFP, AP, BBC News and Reuters

24.07.2025 09:11 β€” πŸ‘ 1505    πŸ” 954    πŸ’¬ 43    πŸ“Œ 71
Preview
Israel is starving Gaza | Editorial ***

Gaza is starving, and Israel is responsible.
www.haaretz.com/opinion/edit...

24.07.2025 23:36 β€” πŸ‘ 3103    πŸ” 1104    πŸ’¬ 222    πŸ“Œ 76

Interesting! It feeeeeels like a lot of extra work just to use Elementor, though. It's comparatively easy to get 100/100/100/100 without all the effort in Oxygen or static. But kudos to you for showing it can be done!

25.07.2025 22:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Noticing a theme here.

24.07.2025 19:37 β€” πŸ‘ 15698    πŸ” 6268    πŸ’¬ 1835    πŸ“Œ 918
Feed Palestine

Feed Palestine

Who cares about dead bad people, like Hulk Hogan or Epstein, when kids are starving to death in Gaza?

Hunger should never be a weapon. We must never do business with a state that thinks it is.

Feed, feed Palestine.

24.07.2025 20:37 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Feed Palestine

Feed Palestine

24.07.2025 18:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The problem is that goes against the standard default, globally. But I figure anyone with serious preferences will have set their preference specifically. Or alternatively, they can use the GUI to fix it. The only page without a GUI fix is the 404 page - that just uses global preferences.

13.07.2025 17:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

My ADHD client the other day, who has as much trouble with me when it comes to light mode:

"Do we have to have light mode...?"

Unfortunately, yes, we do. Accessibility. But my code makes dark mode the default unless specified otherwise.

13.07.2025 17:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

My dad: "Bah, neurodiversity. Whatever."

Also my dad:
"Oh, I always felt numbers had genders."
"I need to print a crossword to do while we watch our special TV programme."
"I can't stand light mode..."

#adhd #runsinthefamily

13.07.2025 13:37 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Ban X.

09.07.2025 22:24 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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