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CareBerry

@careberry.bsky.social

๐Ÿ’œ CareBerry (www.Ceider.org) Supporting #dementia & Alzheimerโ€™s, #caregivers, & researchers. ๐Ÿ’ก Resources and tips| ๐Ÿซ‚ Caregiving Tools | Research Participation๐ŸŒŸ Empowering lives, one CareBerry at a time. โค๏ธ See our games & supports.

1,064 Followers  |  2,108 Following  |  67 Posts  |  Joined: 24.11.2024  |  1.5831

Latest posts by careberry.bsky.social on Bluesky


Post image 27.04.2025 15:07 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

A must read.

28.02.2025 21:49 โ€” ๐Ÿ‘ 6    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Caregiving is deeply meaningful but can feel incredibly lonely.

Friends drift and exhaustion sets in. If you know a caregiver, reach outโ€”your support matters. No one should walk this path alone. #CaregiverSupport #YouAreNotAlone #dementia #Alzheimers

17.02.2025 16:53 โ€” ๐Ÿ‘ 8    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Love isnโ€™t just about memoriesโ€”itโ€™s about presence, patience, & heart. Even when dementia changes life, a bond remains.

On this Valentineโ€™s Day, we celebrate the love that endures beyond words & memoriesโ€”a love that can span decades & adapt to this great loss.
#LoveyouMom #LoveyouDad #LoveyouHoney

15.02.2025 02:03 โ€” ๐Ÿ‘ 20    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Dementia is cruel and does not care about your past, your achievements, or your skin.

To beat it we must understand it.
To understand it we must study it.
To study it we must be patient.
To be patient we must have faith.

Repost if you agree.
#endalz #alzheimers

13.02.2025 04:19 โ€” ๐Ÿ‘ 7    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

A beautiful ๐ŸŒน message we should all read and consider.

๐Ÿ™

13.02.2025 04:11 โ€” ๐Ÿ‘ 13    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

New Product!

Introducing our Dementia-Friendly Shower Sign!

โ€ข Reversible suction cup
โ€ข Cues hygiene routine
โ€ข Changing font draws attention to key points
โ€ข Improve showering accuracy & comfort
โ€ข Great for a single caregiver or a facility

Get yours today! www.ceider.org/product-page...

08.02.2025 23:01 โ€” ๐Ÿ‘ 7    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

Dementia Caregiving Tip: Keep a โ€œYes, andโ€ฆโ€ mindset. Instead of correcting a loved oneโ€™s confusion, go with their reality and gently guide the conversation. It reduces stress for both of you and keeps the bond strong. #DementiaCare #Caregiving #alzheimers

06.02.2025 22:18 โ€” ๐Ÿ‘ 21    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

๐Ÿ‘€ wow.

Maybe they just wanted to make sure that the diagnosis was accurate? Maybe they were trying to funnel Medicare payments to the neurologist?

I know there are virtual support groups out there that only require signing up and logging in to the virtual meet. Maybe try to find a virtual group.

01.02.2025 16:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Caregiver support groups a can be extremely helpful to caregivers.

Has anyone found good virtual support groups they would recommend? If so, please add to comments.

Thanks!

01.02.2025 16:02 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

๐Ÿ’™ Dementia caregiving is toughโ€”but you donโ€™t have to do it alone.

Support groups (both in-person & virtual) offer guidance, shared experiences, and emotional strength from those who truly understand. Let us knowโ€”what has your experience with support groups been like? #alzheimers #Caregiver

31.01.2025 15:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

๐ŸŒŸ Support The Dementia League: 5-Day Donation Campaign! ๐ŸŒŸ

We're on a mission to quickly raise $2,780 to expand our impact & bring dementia prevention news to even more lives! 501(c)(3) deductions.

๐Ÿ‘‰ Donate today! Every $1 helps! PayPal Donation Link: https://buff.ly/4huxodj

Repost! ๐Ÿ’œ

24.01.2025 23:04 โ€” ๐Ÿ‘ 7    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

๐Ÿ˜ฑ

21.01.2025 20:10 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Lori, FYI, there is an additional 40% OFF coupon for people who sign up on the research participation registry. Itโ€™s just signing up to learn more if a study becomes available, itโ€™s not an actual study.

20.01.2025 13:50 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Airtags are actually fairly thin.

20.01.2025 13:20 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Good question. The soles are a bit thick and have a hole for the AirTag. You canโ€™t really feel it. I weigh 200+ lbs and if I stand on my heel hard then I can feel it, but just walking is no big deal. My mother has never complained.

20.01.2025 13:19 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

Yes!

20.01.2025 03:16 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Sailor's Syndrome?

Maybe dementia should be called the Sailor's Syndrome because of how it can take a life-long kind person and turn them into a foul-mouth sailor. ๐Ÿฆœ

Dementia and Alzheimer's are more than memory. Cognition, insight, and executive functioning all decline. ๐Ÿง  #caregivers

20.01.2025 02:59 โ€” ๐Ÿ‘ 11    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

Thanks Sarah!

19.01.2025 23:48 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

We now sell AirTag-compatible insoles to help monitor your loved oneโ€™s locationโ€”comfortable and easy to install. I made these available after my mom wandered off several times; now, she has a set for both pairs of shoes. Please repost to spread awareness!
33% OFF

#endalz #dementia #alzheimers

19.01.2025 23:37 โ€” ๐Ÿ‘ 9    ๐Ÿ” 4    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 3
Post image

Could CBD/THC help agitation in dementia?

๐Ÿง  Studies show low-dose CBD/THC combo (<10 mg THC) reduces agitation in people with dementia. โš ๏ธ Excessive THC causes discomfort/illness. Not med advice.

https://buff.ly/3PtOqwp
https://buff.ly/4fYcPoq
https://buff.ly/3PxtZ1y
#Alzheimers #caregiving

18.01.2025 12:31 โ€” ๐Ÿ‘ 16    ๐Ÿ” 3    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1

๐ŸšจLetโ€™s get some advice for our caregivers and families.

What is the best book(s) you have read about dementia or Alzheimerโ€™s (lowering risk, caregiving, general, etc)? ๐Ÿ“š

09.01.2025 18:41 โ€” ๐Ÿ‘ 9    ๐Ÿ” 2    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 1

Thanks for contributing! Weโ€™ll have to check it out!

17.01.2025 16:55 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Thanks for sharing that information, I suspect a lot of people didnโ€™t know.

15.01.2025 12:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Younger people donโ€™t understand.

The average total healthcare spending in the last 5 years of life was $287,038 in patients with dementia. This is about $58,000 per year. This is a tremendous burden on American families. โ˜น๏ธ

15.01.2025 01:52 โ€” ๐Ÿ‘ 7    ๐Ÿ” 4    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

So challenging Lori. Have you checked out virtual support groups?

15.01.2025 04:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Younger people donโ€™t understand.

The average total healthcare spending in the last 5 years of life was $287,038 in patients with dementia. This is about $58,000 per year. This is a tremendous burden on American families. โ˜น๏ธ

15.01.2025 01:52 โ€” ๐Ÿ‘ 7    ๐Ÿ” 4    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

โ€œEndless patienceโ€ - yes indeed.

14.01.2025 17:35 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Excellent points!

14.01.2025 17:34 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

For the past or current caregivers:

What are two things you wish you had that would have made the journey easier for you?

14.01.2025 15:03 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 7    ๐Ÿ“Œ 0

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