Fiona Robinson, PhD

TODAY! 2PM ET
Add your voice to those of our medical, health access, and lived experience experts in the discussion of who is left out of bleeding disorders care.

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Who Is Left Out of Bleeding Disorders Care?
In this week's NBDF @htrstoday.bsky.social Research Journal Club medical, health access, and lived experience experts discuss health equity.
Bring your questions to advance this important conversation
Nov 5, 2PM ET
Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Access to care too often depends on who you are or where you live
Wed Nov 5 2PM ET
The NBDF @htrstoday.bsky.social Research Journal Club will discuss these challenges in bleeding disorders care with health access, clinical care, and lived experience experts.
Pre-register (free): bleeding.org/events

Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF Speakers: Guy Young, MDDescription: Join Dr. Young, speaking on behalf of HEMA Biologics, for an informative conversation about a treatment option for hemophilia A or B with inhibitors. This session w...

TODAY! 2PM ET
In this week's NBDF Wednesday Webinar we will
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community with Dr Guy Young.
www.bleeding.org/events/disco...

TODAY 2PM ET
Don't miss this rare opportunity to learn about an ultra-rare bleeding disorder from lived experience and medical experts!

The Odyssey of FX: Voices, Symptoms, and the Evolution of Care | NBDF Speakers: Brian Branchford, MD; Ariel Loraine

Next week's NBDF Wednesday Webinar offers a unique opportunity to learn about The Odyssey of FX: Voices, Symptoms, and the Evolution of Care from medical and lived experience experts.
Wed, Oct 8
2PM ET
Pre-register (free): www.bleeding.org/events/the-o...
#FactorX
#Ultrarare
#BleedingDisorder
#LEE

TODAY!
2PM ET
It's not too late to pre-register (free) at the link below!

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events

TODAY!
2PM ET
It's not too late to pre-register (free) at the link below.

Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF Learn about a treatment option for hemophilia A or B with inhibitors in this insightful talk with Dr. Young.

NBDF Wednesday Webinars are back!
Join me Sept 10, 2PM ET
as Dr Guy Young provides helpful insights to better understand the HEMA Biologics treatment option for hemophilia A or B with inhibitors.
www.bleeding.org/events/disco...

TODAY 2PM ET!
In the NBDF Wednesday Webinar we learn from medical research and lived experience experts about research into why some people with severe hemophilia A develop inhibitors, and others do not.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Why do some people with severe hemophilia A develop inhibitors and not others? In the next National Bleeding Disorders Foundation Wednesday Webinar lived experience and medical experts explain research into this question and the My Life, Our Future genetic database
Aug 13 2PM
bleeding.org/Events

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

TODAY 2PM ET!
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar. Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free weekly educational 1-hr webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to bring knowledge about the latest in research, breakthrough developments, and more to the inheritable bleeding and blood disorders community. The audience consists of healthcare professionals and lived experience experts (patients, families, caregivers) from around the world. Topics range from research into new therapies and diagnostics, to lived experiences of people with bleeding and blood disorders, and the latest advocacy and community organization news. Webinars are held on Wednesdays at 2PM ET. Your registration gives you access to all webinars in the series.

Do you know all the available #hemophilia #treatment products?
In next week's NBDF Wednesday Webinar we will hear all about HEMA Biologics' treatment option for the hemophilia community from one of the very best medical educators: Dr Tami Chrisentery-Singleton!
Pre-register (free): bit.ly/4mSA5cr

A New Rebalancing Therapy Delivered by Subcutaneous Injection for Hemophilia A and B | NBDF This presentation will cover the benefits and safety of this new treatment, as well as how to get started and what life could look like with this product.

For decades living with #hemophilia meant IV infusions for many people, but now some treatments are given by subcutaneous injection.
In tomorrow's NBDF Wednesday Webinar Dr Akshat Jain will tell us all about one of these!
July 23
2PM ET
Pre-register (free): www.bleeding.org/events/a-new...

TODAY!!
2PM ET

Can #BleedingDisorders #research benefit #children? What kind of research is being done? Are there special considerations for research with #youth?
Join me this Wednesday and ask medical and lived experience experts your questions about bleeding disorders research in children and adolescents!

Research in Children and Adolescents with Inherited Bleeding Disorders | NBDF This session explores the latest advances and challenges in research focused on children and adolescents with inherited bleeding disorders, such as hemophilia, von Willebrand disease, and other rare c...

July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...

TODAY! 2PM ET
In the National Bleeding Disorders Foundation Wednesday Webinar,
hear from medical and lived experience experts about people with VWD reshaping research and care.
Pre-register (free): bleeding.org/events

#VWD
#LivedExperienceExpertt
#ClinicalTrial
#PatientCentered
#Outcomes

Upcoming Events for the Bleeding Disorders Community | NBDF Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

What if people with #VWD had a say in the outcomes #ClinicalTrials measure? Could they agree on outcomes to recommend?
In the June 4 NBDF Wednesday Webinar Mark Skinner, Elizabeth Clearfield, Baiba M. Ziemele, and Dr @james-paula.bsky.social explain how coreVWD did exactly this!
bleeding.org/events

TODAY!! 2PM ET

Wearable neurostimulation to treat heavy menstrual bleeding and cramps - for real? Come find out!

A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...

In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social

A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...

In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social

TODAY!
2PM ET

Understanding HYMPAVZI™ (marstacimab-hncq) | NBDF If you would like to learn more about HYMPAVI (marstacimab-hncq), Pfizer’s new therapy for the treatment of hemophilia, this webinar will give you further insights. This webinar will cover some high-l...

In tomorrow's National Bleeding Disorders Foundation Wednesday Webinar Bradley Schoenfeld from Pfizer will tell us all about recently approved marstacimab in the management of hemophilia.
Bring your questions for the live Q&A!
May 21, 2PM ET
Pre-register for free:
www.bleeding.org/events/under...

Welcome! You are invited to join a webinar: Breaking Barriers in Bleeding & Thrombotic Disorders in Women. After registering, you will receive a confirmation email about joining the webinar. Join us for the 2025 Research Journal Club (RJC) as we bring together experienced researchers, new research fellows, and lived experience experts (LEEs) to explore critical topics in bleeding and thro...

TODAY!! 2PM EDT
Join Connie Montgomery, Dr Leslie Skeith, and Dr Bethany Samuelson Bannow and I as we explore issues of bleeding and clotting disorders in women in the first
NBDF @htrstoday.bsky.social 2025 Research Journal Club.
Pre-register for FREE: bit.ly/3YgQqgl

Welcome! You are invited to join a webinar: Breaking Barriers in Bleeding & Thrombotic Disorders in Women. After registering, you will receive a confirmation email about joining the webinar. Join us for the 2025 Research Journal Club (RJC) as we bring together experienced researchers, new research fellows, and lived experience experts (LEEs) to explore critical topics in bleeding and thro...

The NBDF @htrstoday.bsky.social Research Journal Club brings together experienced researchers, new research fellows, and lived experience experts (LEEs) to explore bleeding and thrombotic disorders.
Everyone is welcome!
Wednesday, May 7, 2PM EDT
Pre-register for FREE: bit.ly/3YgQqgl

Welcome! You are invited to join a webinar: Breaking Barriers in Bleeding & Thrombotic Disorders in Women. After registering, you will receive a confirmation email about joining the webinar. Join us for the 2025 Research Journal Club (RJC) as we bring together experienced researchers, new research fellows, and lived experience experts (LEEs) to explore critical topics in bleeding and thro...

Join me next week for the first NBDF @htrstoday.bsky.social
2025 Research Journal Club featuring three medical and lived experience experts discussing Breaking Barriers in Bleeding and Thrombotic Disorders in Women.
May 7, 2PM EDT
Pre-register for FREE: bit.ly/3YgQqgl

TODAY! 2PM EDT
Dr Tami Singleton and I will discuss how RNAi can be used to treat a bleeding disorder. Please join us 😀