Devin Shuman (she/her)

After three months in Immigration and Customs Enforcement custody, a Filipino green-card holder who had been arrested at Seattle-Tacoma Airport has finally gone home.

Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try!

I'll be posting more here: www.devinshuman.com/guk1

Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker

A school photo of a gently smiling teenage girl. She has long brown hair and a black cardigan.

My dear friend’s niece, who in October developed sepsis when a Georgia hospital refused her a D&C after a miscarriage, will be taken off life support tomorrow.

I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws.

But her name was Haley.

The FBI is trying to criminalize Habitat for Humanity for receiving climate grants from the EPA.

Yes, the nonprofit that builds houses for low-income people.

This clearly demonstrates just how absurd and extreme the Trump regime has become.
It's targeted harassment.

Exclusive: NIH to terminate hundreds of active research grants Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminated, according to documents obtained by Nature.

“For all this talk about free speech, this is direct censorship of scientific research.” www.nature.com/articles/d41...

After we published a public audit on Saturday, Elon Musk’s DOGE deleted hundreds more claims from its mistake-plagued “wall of receipts,” wiping out an additional $4 billion in so-called savings that the group had claimed to secure for U.S. taxpayers.

board support group. did the boards not go the way you planned? you are NOT alone.
open for those that did not pass this cycle of the boards. this will be a safe space to connect w/ others that have been through this, connect with other test takers, gain support, strategize for future exam plans.

They are offering two days to join. come to one or both! Wednesday 12th 2025 6 pm EST or Tuesday April 15th 2025 6 pm EST. vis zoom. sign up with link: https//forms.gle/WCvAD54ymbhtbbYL7

I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too

What the Disability Community Told Us About Sheltered Workshops Reporter Madison Hopkins tells us how she learned the context behind what she was hearing from Missouri’s disabled workers and their families.

Re: misleading claims that disabled people "love" sheltered workshops: Journalists found that "The seemingly widespread support among sheltered workshop employees & their families masked the failure of the state to provide them with meaningful employment options."

www.propublica.org/article/what...

Welcome! You are invited to join a meeting: Disability Community Connection: An informal hour to meet with other Disabled GCs to bond, share, and mentor.. After registering, you will receive a confirm... Meeting the 4th Tuesday of every month at 12 pm PST/3 pm EST. Having connections to other disabled GCs is invaluable and so we wanted to create an informal, safe space where GCs and students with all ...

honor of #RareDiseaseDay, GSF will be hosting a "Disability Community Connections" monthly Zoom meetup for GC with disabilities to connect and support one another. Join them on the fourth Tuesday of every month at 12pm PST. Register here: shorturl.at/FeFTV GC grad students welcome!

It's Time to Start Trusting Our Disabled Genetic Counselors The article below reflects the personal opinions of the author(s) and does not reflect the views or opinions of the Perspectives editors or committee, or the National Society of Genetic Counselors (NS...

perspectives.nsgc.org/Article/its-.... For rare disease day we ask, stop doubting GCs with genetic conditions in our ability to counsel patients about our condition

I was today years old when I remembered that the founder of ABA therapy was also a founder of conversion therapy...which tracks... but YIKES

en.m.wikipedia.org/wiki/Ole_Iva...

US immigration is gaming Google to create a mirage of mass deportations Thousands of press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration

Thousands of ICE press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration
www.theguardian.com/us-news/2025...

Medical journal editors must resist CDC order and anti-gender ideology The news that on 31 January 2025 the Trump administration instructed scientists employed by the US Centers for Disease Control and Prevention (CDC) to withdraw or retract articles from medical and sci...

"We will not retract published articles on request by an author on the basis that they contain so-called banned words"
@bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology"
www.bmj.com/content/388/...

Huge protest outside the USAID building today against Trump and Musk's illegal shutdown.

Disability is not the cause of that crash. Go screw yourself white house. 🤬

I saw during COVID what RFK Jr.'s brand of skepticism could do | Op-Ed During COVID, when health professionals needed support from the public with vaccinations, I saw firsthand how misinformation led to death and trauma.

Thank you @seattletimes-rss.bsky.social for publishing my Op-Ed today.

RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy”

www.seattletimes.com/opinion/a-nu...

How to Keep Tabs on ICE Agents Who May Be Surveilling Your Neighborhood Here’s a step-by-step guide.

Teen Vogue coming through with excellent reporting on pressing issues:

“When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”

This whole interview @maanvisingh.bsky.social did with @sfdirewolf.bsky.social is good, and this bit in particular stood out to me as such an essential perspective on belonging, community care, and disability justice www.theguardian.com/society/2025...

What in the world is this....

Governor Gavin Newsom at the Pacific Palisades Fire on President Biden:

"It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'"

👏

As of January 1, Minnesotans won’t have co-pays higher than $25 per month for prescription drugs used to treat chronic diseases, and we’re putting a $50 per month cap on all related medical supplies.

We’re putting the wellbeing of our people before the profits of big pharma.

I posted the shop in the comments. I don't have an Etsy store but bought them from a favorite * ie I did not make them so don't know who she used to get them done

If you think you might have Covid - or you’re just feeling sick - stay home this holiday season. Don’t be the reason someone’s loved one ends up in the hospital (or worse).

If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.

May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!

Posted this at the old place, but thought folks on @bsky.app might like to know I finally met my "mother".

After The UnitedHealthcare CEO Was Killed, People Share Stories Of Their Claims Being Denied "My mom has stage 4 breast cancer and has maxed out her insurance, and her insurance is saying they won’t cover anything again."

Such a horrible reason to have such an important discussion. Health insurance in the US is broken and is killing millions 💔

Https://www.buzzfeed.com/morgansloss1/stories-of-healthcare-claims-being-denied

Can't wait to read this paper because my first reaction is, it can't be accurate. Non-reportables are way too common and have been pretty well studied before with nowhere remotely near as high of a malignancy rate ,🤔