Laminopathies meeting

Thank you for an inspiring Laminopathies meeting in Paris!

On behalf of @LMNAcardiac and all LMNA patients ❤️, we’re grateful for the strong interest and meaningful interaction between experts and patients. Hopeful for the future! 🙏

#LMNA #RareDisease #Cardio #PatientAdvocacy #lamin

24.05.2025 17:16 — 👍 5    🔁 0    💬 0    📌 0

Laminopathies Meeting 2025 wrapped up with two powerful sessions: “Towards Patients” & the Patient Session.
The exchange between experts & patients was incredibly valuable.

Thanks to everyone who joined us!

#Laminopathies #RareDisease #PatientVoices #lmna

23.05.2025 16:31 — 👍 5    🔁 0    💬 0    📌 0

Day 3 of the #Laminopathies2025 meeting is underway — our final day! We’re closing strong with sessions focused on patients and patient organizations, followed by a powerful round table discussion. Let’s keep the momentum going 💪🧬

#RareDisease #Patient #laminopathies

23.05.2025 07:20 — 👍 1    🔁 0    💬 0    📌 0

Day 2 of the #Laminopathies conference is underway! 💡 Dive into today’s sessions and connect with the global community driving progress in laminopathy research. Full program available at laminopathies.net

#RareDisease #Laminopathy #Laminopathies

22.05.2025 07:41 — 👍 1    🔁 0    💬 0    📌 0

An unforgettable evening at the #Laminopathies conference gala dinner/cocktail party - great conversations, inspiring connections, and a stunning venue. Huge thanks to the organisers and @LmnaCardiac for bringing this community together! 💙 #RareDisease #Laminopathy #lmnacardiac

22.05.2025 07:28 — 👍 2    🔁 1    💬 0    📌 0

The #Laminopathies Meeting is LIVE!

Experts, researchers & advocates are gathering to push forward breakthroughs in LMNA & lamin-related diseases. Follow the latest updates, science, and community highlights 👉 Laminopathies.net

#Laminopathies2025 #RareDisease #LMNA #lmnacardiac

21.05.2025 12:56 — 👍 0    🔁 0    💬 0    📌 0

Homepage

We start tomorrow! 🧬
The Laminopathies Meeting begins with registration at 14:00 — we’re looking forward to seeing you all there!

More info: laminopathies.net

#Laminopathies #RareDisease #LMNA #Genetics #PatientCommunity

20.05.2025 17:59 — 👍 0    🔁 0    💬 0    📌 0

🚨 The Laminopathies Meeting will also be available online! 🌐

🗓️ Join virtually via Zoom webinar:
👉 zoom.us/j/96240745334

Don’t miss this key event for the laminopathies community — whether you're a researcher, clinician, patient, or advocate. laminopathies.net 💻

#Laminopathies #LMNA #VirtualEvent

19.05.2025 10:24 — 👍 1    🔁 0    💬 0    📌 0

📢 5th Laminopathies Meeting in Paris update:

🧬 The poster abstracts are now available!
Scan the QR code below or visit Laminopathies.net to explore the latest research from the community.

#Laminopathies2025 #LMNA #RareDiseaseResearch #ParisScience #LaminopathiesNet

18.05.2025 09:01 — 👍 1    🔁 0    💬 0    📌 0

📢 The Laminopathies 2025 meeting is around the corner!

📄 Abstracts are now available — scan the QR code to access them instantly and explore the latest research in the field.

🔗 Learn more at Laminopathies.net
#Laminopathies2025 #RareDisease #LMNA #MuscularDystrophy #CardiacResearch #GeneTherapy

17.05.2025 16:12 — 👍 1    🔁 0    💬 0    📌 0

We’re excited to see many of you in Paris next week!
If you can’t make it in person, don’t worry—follow us here and on our website for access to the live stream.
#laminopathies #lmna #paris #livestream

14.05.2025 17:49 — 👍 2    🔁 0    💬 0    📌 0

Welcome to the official account for the 5th Laminopathies Conference! 🧬 Join us for cutting-edge research, inspiring talks, and live updates from the Laminopathies meeting in Paris. Follow for the latest news! #Laminopathies2025 #laminopathies #lmna #lmnacardiac

14.05.2025 17:36 — 👍 2    🔁 0    💬 0    📌 0