Physios For ME

Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social

YouTube video by Norges ME-forening - Rogaland Fylkeslag Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)

youtu.be/vv0pUwoF9J0?si…
Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

One of us is an avid player of lawn bowls
One of us attends a punk/rock festival annually
One of us has published four horror novels
One of us goes to France every year to cycle up mountains (slowly)

We celebrate our six year anniversary It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...

It's our six year anniversary!

To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like.

You can read a whole recap of our year in our latest blog post here
www.physiosforme.com/post/we-cele...

Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

You might need to try this link instead

www.physiosforme.com/onesheetprin...

Thank you for flagging

www.physiosforme.com/onesheetprin...

Does this one work?

. @meactionuk.bsky.social @actionforme.bsky.social
@longcovidkids.bsky.social @physiosforme.bsky.social
@longcovidadvoc.com @longcovidphysio.bsky.social
@longcovidsupport.bsky.social

Finally, on #MEAwarenessDay we'd like to emphasize the importance of learning about ME to physiotherapists and other healthcare professionals

And to #pwME we'd like to offer our continued support and let you know that you have a dedicated team on your side 💜

And of course here's some information about our book, which provides more detailed evidence based material to help you understand more about safe management of people with ME

#MEAwarenessDay

www.physiosforme.com/our-book

Here are seven slides that give a basic overview of ME and relevant issues for health professionals

#MEAwarenessDay

t.co/X9eVenALoX

Here is a one page handout to help identify areas of any practice that might need to be adapted to work safely with people with ME

physiosforme.com/onesheetprinto…

#MEAwarenessDay

On #MEAwarenessDay we encourage all physiotherapists and other allied health professionals to take a moment to learn about this condition, as it is relevant no matter what speciality you work in.

We have some resources to help...

@thecsp.bsky.social @thercot.bsky.social

World ME Day 2025 Today is World ME Day. Physios for ME continue to strive for improved awareness, education and care for people with ME, and we've had a busy few months.We are proud to support the There for ME campaig...

Today is #MEAwarenessDay

We've published a blog with some updates of our recent activities.

www.physiosforme.com/post/world-m...

Just back from a wonderful week in Norway
for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different.
Fantastic to meet @putrinolab.bsky.social
@bmhughes.bsky.social in person along with others who I can't find to tag
...1/3

Total pleasure to be part of the presenting line up @meforeningen.bsky.social conference in Stavanger

We welcome your thoughts and input.

Blue background with white text that reads Survey Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS. Four logos at the bottom of Long Covid Support, Action for ME, ME Local Network, #ThereforME.

📣 1/5. The UK Government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with #LongCovid and #MECFS.

We've launched a survey to gather your insight. ⬇️

5/5Endorsed by Bury&Bolton MECFS & Fibromyalgia Support Group, Hope4ME Fibro Northern Ireland, Keyworker Petition UK, 25% ME Group, MERCPAG, Supporting Healthcare Heroes UK &
@longcovidadvoc.com
@longcovidkids.bsky.social
@meactionuk.bsky.social
@physiosforme.bsky.social
@longcovidsos.bsky.social

A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform - ME/CFS Priority Setting Partnership A new campaign has been launched today by Action for ME, ME Research UK and the ME Association based on the work of a group of academics, practitioners, clinicians, charity representatives and people ...

Proud to be part of this campaign for more strategic research funding for #ME and #longcovid

It's time to properly fund this vital research @physiosforme.bsky.social

psp-me.co.uk/campaign-str...

5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay

You can read more details on all of the above - and more! - in our new blog post www.physiosforme.com/post/spring-...

We met the new chief executive of
@thecsp.bsky.social
to introduce ourselves and the issues still facing our profession.

From this we met with
Ash James, Director of Practice and Development, and we look forward to working with him to expand our message

We have two original research projects currently running, and several in analysis/write-up stage.

You can see details of all our projects here. www.physiosforme.com/research

Chronisches Fatigue-Syndrom (ME/CFS) verstehen und managen - 2025 - Ein Leitfaden für Health Professionals | Hogrefe Dieses Buch richtet sich an:Health Professinals, Ergotherapeut_innen, Physiotherapeut_innen, Pflegefachkräfte, Selbsthilfegruppen und -verbände, Patient_innen.Myalgische Enzephalomyelitis (ME) oder Ch...

Our book is being published in German this June!!

We've had no involvement in the process but are excited that our work can be shared further afield.

You can pre-order a copy here www.hogrefe.com/ch/shop/chro...

New blog post published, with updates on current projects and some exciting news.

physiosforme.com/post/spring-...

Summary below 👇

People with ME are calling on the government to invest in their future and reverse generations of neglect. As Physios for ME, we are standing with them, to say- “please, fund the plan.” #FundThePlan

The government is due to publish a new delivery plan for ME, and we’ve been involved with the process. But now we’ve heard that no additional funding has been allocated to the plan. Just £20 million a year behind the plan would make an enormous difference.

ME desperately needs more research, better education for health professionals and services that provide evidence based care. But this can’t happen without funding, and historically this condition has been significantly underfunded.